Anyone take very low doses of Entocort/or take it intermittently?

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Ohana
Regular Member


Date Joined Aug 2007
Total Posts : 89
   Posted 1/25/2008 7:17 AM (GMT -7)   
I tried taking Entocort and after taking it for 3 days, I got really big side effects - sore mouth, shakes, extreme headache, breathing difficulty. I thought it was lost to me. Months later, my FNP suggested I try it again and only take one pill (3 mg) per day. I did and felt great for 3 days. On the fourth day, I again had this reaction. But, after that bought I was in remission for 4 weeks. Now, I'm out of remission but decided to try the Entocort again - 3 mg every other day - and see if it would help me at all. Has anyone done anything like this, or do you take really low doses of Entocort with success? Is this harmful to me to be doing this? I know if I ask my doctor he will just snort at me because he seems to do that about all my questions/thoughts.
Dx'd CD in August 2007 - 42-yr-old wife and mom
Bad reactions to Entocort, Prednisone and Asacol / Not sure what's next
Currently on Aciphex, probiotic, calcium and multi-vit; and Flovent (for asthma)


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 1/25/2008 10:05 PM (GMT -7)   
My daughter is in remission on 3 mg Entocort since May. Overall, she has been on Entocort for about 17 months. The only time she landed in the hospital was when she tried to go off Entocort 18 months ago...one day on, one day off the pill...on the third of the "off" days she flared.
 
She will stay on Entocort indefinitely. 

JUMPER
Regular Member


Date Joined Feb 2007
Total Posts : 74
   Posted 1/25/2008 11:57 PM (GMT -7)   

Yes this is what I do I Take one 3mg tab every other day has been workin for 2 years now.  Had a lot problems in the beginning.  Was on lot deferent things Pentasa,Imuran,Pred, lots antboitics had bad start Big abcess and couple of Fistula and partial blocage they thought they were going too have too do sugery but i missed that bullet.  Here i am 2 years later feeling great.  Postive got be positive cuase it can all change quick.  Anyway head up.

 

Jay


That which does not kill us makes us stronger.
Friedrich Nietzsche

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