I recently was diagnosed with CD (Jan 2,2008). We have begun the medicine game and all that goes with that. This past Sat. I had a bad flare and ended up in the ER and then 5 days in the hospital. The hardest thing for me is trying to figure out what is "normal" with CD. Friday it all started with some cramping, and then it moved into throwing up, and then a high fever. At the hospital I had 185bpm heart rate, a fever 103.7, and shakes that would knock California off the map. I have come home from the hospital on 120mg prednisone, 50mg Mercaptopurine, and 2 antibiotics. I am feeling pretty good now but I stay terrified.
Every small cramp makes me think it is all starting again. So here are some questions that I have for you guys, that maybe will help me understand what the "norm" looks/feels like.
1- What foods (for you) are trigger foods?
2- Do you randomly have cramps with some foods?
3- If you feel a flare up coming is there anything that you do to try and stop it?
4- What do you drink?
5- Raw veggies? Fruit? Seeds?
6- I have a doctors appointment next week, and I was going to ask for a prescription of sleeping pills (to offset the prednisone effect at night), fenegrine enlight of my episode Sat. Are their meds. that you keep on hand "just incase"?
Thanks for any help.
Nanners covered that pretty well. However, I would add that the symptoms that drove you to the hospital sound like more than just a flare -- they are suspiciously like those that come with an obstruction. Did your diagnostic workup reveal any serious narrowing or obstructive areas? It may be that the meds you are now on will alleviate some of the inflammation that may have caused this, but be aware that if the narrowing was due to scarring rather than inflammation, meds alone may not suffice.
Re the 50mg mercaptopurine, also be aware that it an take up to 90 days for that drug to reach full therapuetic effect, so be patient with it. It ahs worked very well for many Crohns patients in reducing disease activity and achieving remission, or at least dramatic alleviation of symptoms.
Bspbtwins, good Morning and welcome to HealingWell and the CD Forum. I am so glad you found us.You have received answers from Nanners that are right on and as Mike said your flare was pretty severe. The high heart rate was problaby in response to the fever and the pain. Over time you will get to know your body and your disease and how to know when you are having a flare and when you need to go to the ER. I am glad you went to the ER as you were obviously very ill.
Here is a good site for newly diagnosised Crohn's. Read through it and hopefully you will find some answers to your questions. Also remember each person's disease process follows it's own path. Take care and I am so happy you found us. Stay with us.Kitt