My 1st dose of Humira!!

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2008 12:36 PM (GMT -7)   
Hi all, boy I've been away so long. What with a bad flare, sinusitis etc; I haven't felt much like posting, although I
check in every day.
Well I had my loading dose of Humira this morning, under the watchful eye of the nurse at the hospital, she had an
epi-pen at the ready, but thank goodness no reaction. I have to keep an epi-pen at home now for my further dosing.
With the scare of reaction over, I'm hoping I can start feeling better.... Fingers crossed.....
Judy, how you feeling hun, I hope you're begining to feel a little more like your self. I notice that you are not posting
either, it all just sucks huh!!
BTW, I'm now smoke free!! What I want to know, is when do I start feeling soooo much better, as promised!!!!
My love & best wishes to all. I've missed you!!

Randy I love the poem!!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


WS Gator
Regular Member


Date Joined Jul 2007
Total Posts : 46
   Posted 1/25/2008 12:43 PM (GMT -7)   
good luck with it & i hope it gives you flare free future . also a big congrats on quiting smoking- that is great.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2008 7:42 PM (GMT -7)   
Thanks Gator, remission is what I'm after, since I've never achieved that in 10 years. I'm really hoping this will be one medicine
I can stay on......
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


yankeespg23
Regular Member


Date Joined Dec 2007
Total Posts : 63
   Posted 1/25/2008 9:53 PM (GMT -7)   

hello vicky

I have just started to feel the Humia working and have been on it now about 3 months. It varies with the person and how severe your Crohn's is. My bm have decreased in recent weeks, but still have fatigue and ocassional D, but overall I do see an improvement.

Good luck to you, the worst part are the loading doses after that once every 2 weeks is not too bad.


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 1/25/2008 9:58 PM (GMT -7)   
Hi Vicky! I hope all goes well with you and Humira. It has been a miracle drug for me. I hope it will be the same for you. It does take a while to work. It took me just at three months to get into my first ever remission. I noticed some good changes though, not long after starting the drug. Good luck. Keep us posted.

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/26/2008 3:18 AM (GMT -7)   
Hi Vicky, I hope the Humira works wonders for you. I will keep you in my prayers and thoughts.

tbw
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/26/2008 10:13 AM (GMT -7)   
Hi tbw, it's good to see a familiar name. I'm really feeling good about Humira. I don't mind admitting I was scared, especially
after the anaphalaxis I had with Remi.
I also want to add, to all that maybe waiting to do your first shots...They Do Not Hurt. Now I know I'm so used to being poked
on a regular basis, and I'm very used to giving myself shots, but I have to admit, that one or two posts on here had me a little
concerned. I thought wow they must be real painful, but not so!! However I've opted to change to syringes just because they
are so much easier... Please don't fear them....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/26/2008 11:05 AM (GMT -7)   
Grats on starting the Humira! I just beat ya by a couple days. : ) I did my loading dose last Tuesday. Kinda funny how it went... The previous Friday, I had picked up my Humira syringes. I called my GI's MA, and asked her if I could go ahead and do the injections, as I had watched the training video already. She said no, I needed to do them under supervision in the office in case I had a reaction. Well, during my GI's visit, I asked him if I should do the injections right then. He said no, I could do them when I got home. ::scratches head:: So after he left, the MA came in, and I told her what he said. She kinda smirked a bit, then said to go ahead and do them while she watched. She had no epi pen, nor did she tell me I needed one to take home. Go figure. Anyway, three of the four shots I did were a non-event. Hardly even noticeable. But I must have hit a bad spot on one, cause it did burn alot more than I expected. I did two in each leg, btw.
 
That night, I did have a bit of a headache, but nothing other than that. The next day, the muscles in my leg felt fatigued all day long. The following day, I felt run down, and started getting "flu sydrome" symptoms, which peaked yesterday; I felt horrible all day. Muscle aches and pains that really did mimic the flu. Kept me from sleeping well last night. But today I feel much better. Crohns symptoms aside (ugh), I feel good. I know us Crohnies are supposed to stay away from ibuprofen (although recent info says it might be ok), but I took some yesterday and last night. It helped alot with the flu syndrome.
 
Let's keep our fingers crossed that this is the med that's gonna do it for us. Kinda discouraging to hear how long it can take to start working, though.
 
Edit: Forgot to mention... My head cold was not made worse by the Humira, thank heavans. It kept improving even after the Humira shots, and is completly gone now. I'm not endorsing nor recommending that anyone start Humira with an active infection; what I did was, quite frankly, stupid. I took a huge risk by starting the Humira with a head cold, and I got lucky.


Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

Post Edited (CrohnsDaddy) : 1/26/2008 11:12:02 AM (GMT-7)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/26/2008 11:43 AM (GMT -7)   
Well done CrohnsDaddy, I'm not sure either about the head cold as it's not technically an infection, but I would probably give it
some thought next time. Maybe if you found one of your shots a little painful, maybe next time try your tummy, maybe a little
easier to squeeze up some fat.
about the epi-pen, I don't think everyone gets one, it's just that I reacted badly to remicade, and these two drugs are very similar.
As far as waiting to feel better, I really think it varies. I know when I started Remicade I had the feeling of well being almost immediately
I know that is given by infusion, and therefore a quicker larger dose. So don't give up, it may come quicker than you think....

Ps I love your conviction of pred.. I think I'd have to agree with you.. and entocort is not too far behind. I don't care for any steroid.....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/26/2008 11:55 AM (GMT -7)   
Dunny2, did you do all of your shots in the tummy, then?

I had called the Humira hotline about the head cold. The lady said that they considered any type of upper respiratory infection an "active infection" per the prescribing information, and told me to not start it until it was completely gone. My problem was that I had my GI appointment the next day, and if I wasn't able to start then, I'd have to wait til my next appointment with him. He's booked over four weeks in advance. That would delay my starting for a month. It's a long story, but I can't go back to work until i have a month's history on the Humira. So it was either delay going back to work for another thirty days, or roll the dice and start the Humira with the head cold.

Have you had any "flu syndrome" symptoms at all since your loading dose? I've been reading around, and apparently it's quite common. I was about ready to call my GI in a panic before I read about how common it really is.

I'm very encouraged to hear about your quick results on Remicade. Sure hope we get the same result with the Humira.

I'm going to try and get my GI to discontinue the Entocort as soon as the Humira kicks in.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/26/2008 1:22 PM (GMT -7)   
Yes I put all the shots in my tummy, about a couple of inches away from each other and from my surgery scars and belly button, as long
as you stay below waist line in the fleshy bit, so you avoid hitting muscle, which hurts a lot more. Just ask my butt, that's where my B 12
goes.....

No!! I have no sign of flu symptoms, I guess I'm gonna be one of the lucky ones, but the way my life has gone over this last couple of years
I need a little luck.

The weirdest thing about this whole deal is, if you read my posts from awhile ago, I was so not looking forward to this. It has actually took a
long time to move ahead with this treatment. Remicade hurt my body so badly, I really didn't want to go back down the same road, but this
time I'm kinda backed into a corner, and all out of choices. So I'm doing this with baited breath....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/26/2008 3:26 PM (GMT -7)   

Vicky,
Congrats on your first dose and no need for the epi pen.  yeah That is awesome.
I have to give you a lot of kudos for quitting smoking.  That is super awesome and you did it.  How proud you must feel?

Keep posting to let us know how the treatment is and know we are here for you. Gentle Hugs.


 
Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Trsora1
Regular Member


Date Joined Nov 2007
Total Posts : 111
   Posted 1/28/2008 6:04 PM (GMT -7)   
It took about 3 months for it to work. I dropped to 4/6mg of sol medrol. I should be flaring by now so i think it is working. Cant say for sure until off steriods. I am also on 6mg of pentasa.

CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 1/29/2008 10:51 AM (GMT -7)   
Trsora1, how bad is your Crohn's? I only ask, because of the time it took for Humira to start working for you. Casual observation has me believing that the worse the crohns is, the longer it takes to work. Plus, I see you're taking solumedrol, which I think is usually reserved for people with really severe crohns, or at least in a severe flare.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/29/2008 12:24 PM (GMT -7)   
I gotta say the solumedrol is a new one on me, I've only been given that by IV while in hospital.
As for severity and length of time for Humira to work. I'm really not so sure. I really think it's more
of an individual thing, rather like the disease itself....
Vicky

Too many years with CD
Two bowel resections, several obstructions.


Laughter is the brush that sweeps the cobwebs from our hearts

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