Yes!! I got my surgery date!!

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smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 1/26/2008 12:06 AM (GMT -7)   
:yeah.gif','yeah','yeah');" height=25 alt=yeah src="http://www.healingwell.com/community/emoticons/yeah:
40 year old wife and mother of two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
currently waiting for surgery date (TI resection)


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 1/26/2008 1:47 AM (GMT -7)   
sorry but i dont see a date, when is it? and congradulations.
randynoguts 



     http://www.geocities.com/randynogutsweb/


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 1/26/2008 9:32 AM (GMT -7)   

I see a dancing smiley, I hope that means your message was good news.

Hugs, Kitt


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 1/26/2008 11:58 AM (GMT -7)   
I have no idea what all of that garble is!!!! That is not what I wrote last night!
Here it is in english......I got my surgery date for Feb.11th!!!! I am soo happy.
None too soon because I can tell that the stricture is getting narrower but the contents in the toilet bowl (skinnier than a pencil, now). I am so uncomfortable and so exhausted. So here's to the next chapter....
Thanks for your replies!
40 year old wife and mother of two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
currently waiting for surgery date (TI resection)


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 1/26/2008 5:16 PM (GMT -7)   
Hope it goes well! Update us when you can afterwards.

Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 1/26/2008 5:55 PM (GMT -7)   
I wish I could get that excited about surgery. Congratulations, I understand the anticipation since it will bring you much needed relief. I was in bad shape when I had my recent surgery but I still couldn't get that excited about it. I felt like I had been defeated. Just the process of being "admitted" to the hospital felt to me like I was surrendering to the enemy and being taken into custody. And now, with the bills rolling in, I feel like I've been robbed in the process.

But, of course, I am thankful overall since I probably couldn't continue to live very long with the way I was.

smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 1/27/2008 12:04 AM (GMT -7)   
driver37, I am so sorry that your surgery experience was so awful for you. I hope that you are benefitting from it now somewhat. Yes, I am excited about the surgery, only because now the wait will not be long. The anticipation and not knowing is worrysome. Getting the house organized and meals frozen for the family etc. will be my next step. I am also so thankful the surgery is in Feb. because we own a large dairy farm and come April 1st. my husband will be in the fields 14hrs/day. This way he will be in the house early morning after milking to take the boys to school and around during the day until the next milking to help me out. I have tried to avoid surgery, but nothing now is going to take away the scar tissue except surgery. I know it is going to be tough but right now the way I feel is unbearable. I can't imagine also having the financial worries to pay for the surgery on top of everything else. Canadian medical is so different. Take care and I am sending you my thoughts.
 
Shelley
40 year old wife and mother of two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
currently waiting for surgery date (TI resection)


Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 1/27/2008 12:39 AM (GMT -7)   
Yes, you will feel much better. If they do it laparoscopically, you may only be in the hospital for 5 days or less. I was back at work in 3 weeks which was fairly amazing considering I work long days and have a rough schedule. Just follow the instructions when you're discharged and don't try to do much in the beginning.

Sounds like a nice farm you all have there. Don't worry, you'll be back to your usual self in little time. It was a horrible experience for me, but I can't imagine where I'd be now if I hadn't done it.

sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 1/27/2008 9:56 AM (GMT -7)   

Smile,

May I ask what your symptoms were right before you were scheduled for surgery? Were kept on any meds after they found the strictures? Will you be on any maintenance meds after surgery?

I will be needing surgery too, but my GI wants to hold off on that as long as I can. I've been getting feed back on the pros & cons of that.

I was just wondering when is enough, enough already?

Good luck with your surgery. I hope all goes well and you have a speedy recovery and that the benefits will be long lasting.


~sukay~
Diagnosed Bipolar - August 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 1/27/2008 12:07 PM (GMT -7)   

Driver37...They do plan on doing the surgery laparoscopically so hopeful that will go as planned, and they say my hospital stay will be minimum 4 days and recovery about 4 weeks of taking it easy. Plan always looks so smooth on paper....lol. talk to you soon.

Sukay....Here's my story (short version, promise!) I have had diarrhea and severe cramping, weight loss etc for 20 years. Went thru all of the tests and they said I just had IBS, that was when I was 20 (40 now, yikes) So all of these years, I would have bad flares try different diets, read all the books and get thru it. It was never constant. When I was pregnant with both my boys, I never felt better. I was 30 with my first, and then say in the last five years my symptoms have changed. Severe D, fissures that would not heal, ulcers so they thought in my stomach, extreme fatigue. So I insisted on another colonoscopy, and the surgeon found a large lesion? in my colon and told me to be prepared because he thought it looked like cancer. Waiting for those test results was the worst days of my life. Biopsy results showed it was only inflammation. The surgeon who I highly admire, was so thankful but shocked because he has seen alot and to him it looked like the worst. Anyhow, he said at the time he thinks it might be Crohn's. So I found myself the best of best GI at a university hosp. and after many tests again they finally confirmed (by CT) that I have C. It showed a slight narrowing in the TI. I was put on Pentasa 500mg 2-2/day. I felt so much better. That was 2 years ago. Since then, D has stopped and stool is skinny. Severe cramps, vomitting, fatigue, joint pain. I was put on Entocort last summer and it helped maybe a little bit. I am now off the entocort because surgeon  believes it builds up too much in the bowels like sand and wants me off it for surgery. Especially when you have a stricture and the meds. can build up in one spot. I am assuming I will stay on Pentasa after surgery as maintenance. Surgery is was my only option now because no meds. will take away the scar tissue. Do you have a stricture and where? what meds are you on? Sorry my story was so long in the end...lol   Thanks for listening.

Shelley


40 year old wife and mother of two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
currently waiting for surgery date (TI resection)


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 1/27/2008 3:07 PM (GMT -7)   

Hi smile,

Thanks for your quick reply. I have a foot long of cd in my terminal ilieum. After a recent SBFT my GI stated that it was still contained in the same area and hadn't spread, but it was now more narrowed and with strictures. (Test done around Nov. 27, 2008)

I am only on remicade & methotrexate right now. He too took me off the entocort after the test results and said it wasn't going to help me anymore at this point and that my next move would be to have surgery, but said he wanted to prolong that as long as possible. He told me to get back to him if my symptoms were to get out of hand.

I have no D, but a lot of bloating, cramping, gas, occassional nausea but I am not in dire pain. Just uncomfortable some of the time.


~sukay~
Diagnosed Bipolar - August 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 


smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 1/27/2008 10:54 PM (GMT -7)   
Hi Sukay- well hopefully you can handle it for awhile and avoid surgery. I only thing I would keep in mind is how long the waiting time would be for you to have surgery. I do not know where you are but for me standard waiting time for surgeries can be months and if you wait until you are unable to handle the symptoms and feel it is time to have the procedure done, you may have to wait a long time while you are in agony. I saw my GI specialist in Nov.07, who made the referral for me to see the surgeon, saw him mid-Dec.o7 and he said he would like me to have the surgery asap in Jan08. Of course with shortages of OR time I got in Feb.11/08. I am extremely lucky to be able to get in this quickly. I wish you all the best.
40 year old wife and mother of two boys 8 & 10
symptoms since the age of 19
officially diagnosed with crohn's Nov.2006
meds: pentasa 500mg 2 x 3day
(just went off Entocort 3mg 2/day)
currently waiting for surgery date (TI resection)

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