I see a dancing smiley, I hope that means your message was good news.
May I ask what your symptoms were right before you were scheduled for surgery? Were kept on any meds after they found the strictures? Will you be on any maintenance meds after surgery?
I will be needing surgery too, but my GI wants to hold off on that as long as I can. I've been getting feed back on the pros & cons of that.
I was just wondering when is enough, enough already?
Good luck with your surgery. I hope all goes well and you have a speedy recovery and that the benefits will be long lasting.
Driver37...They do plan on doing the surgery laparoscopically so hopeful that will go as planned, and they say my hospital stay will be minimum 4 days and recovery about 4 weeks of taking it easy. Plan always looks so smooth on paper....lol. talk to you soon.
Sukay....Here's my story (short version, promise!) I have had diarrhea and severe cramping, weight loss etc for 20 years. Went thru all of the tests and they said I just had IBS, that was when I was 20 (40 now, yikes) So all of these years, I would have bad flares try different diets, read all the books and get thru it. It was never constant. When I was pregnant with both my boys, I never felt better. I was 30 with my first, and then say in the last five years my symptoms have changed. Severe D, fissures that would not heal, ulcers so they thought in my stomach, extreme fatigue. So I insisted on another colonoscopy, and the surgeon found a large lesion? in my colon and told me to be prepared because he thought it looked like cancer. Waiting for those test results was the worst days of my life. Biopsy results showed it was only inflammation. The surgeon who I highly admire, was so thankful but shocked because he has seen alot and to him it looked like the worst. Anyhow, he said at the time he thinks it might be Crohn's. So I found myself the best of best GI at a university hosp. and after many tests again they finally confirmed (by CT) that I have C. It showed a slight narrowing in the TI. I was put on Pentasa 500mg 2-2/day. I felt so much better. That was 2 years ago. Since then, D has stopped and stool is skinny. Severe cramps, vomitting, fatigue, joint pain. I was put on Entocort last summer and it helped maybe a little bit. I am now off the entocort because surgeon believes it builds up too much in the bowels like sand and wants me off it for surgery. Especially when you have a stricture and the meds. can build up in one spot. I am assuming I will stay on Pentasa after surgery as maintenance. Surgery is was my only option now because no meds. will take away the scar tissue. Do you have a stricture and where? what meds are you on? Sorry my story was so long in the end...lol Thanks for listening.
Thanks for your quick reply. I have a foot long of cd in my terminal ilieum. After a recent SBFT my GI stated that it was still contained in the same area and hadn't spread, but it was now more narrowed and with strictures. (Test done around Nov. 27, 2008)
I am only on remicade & methotrexate right now. He too took me off the entocort after the test results and said it wasn't going to help me anymore at this point and that my next move would be to have surgery, but said he wanted to prolong that as long as possible. He told me to get back to him if my symptoms were to get out of hand.
I have no D, but a lot of bloating, cramping, gas, occassional nausea but I am not in dire pain. Just uncomfortable some of the time.