What are your primary symptoms. You mentioned a fistula. Did the surgery fix that? If so, what are your symptoms that are coming back now as you come off steroids?
More important than the questions to ask, is sorting out your history so that you can present your GI with clear, concise and relevant information to help him develop a management plan.
Sometimes at an initial appointment, it is better to follow the physician's lead. As i'm sure you have noticed from posting on this board Crohn's is a highly individualized disease. It expresses itself differently in just about
everyone and not everyone responds the same way to medications, diet, exercise etc.
So your GI may not be able to answer questions relating to you and your disease until he has a better feel for how it is affecting you. May I suggest that you take the time now to really think about
your history. Write it down chronologically. Then think about
your symptoms and try to find precise terms for describing what you are experiencing and when. Write that down. Write down all of the medical/surgical interventions you have had. Yes he will have your chart, but it is really helpful if you have sorted it out in your mind as well.
questions. What are you most worried about
? What is causing you the worst problem? These are the things you might want to concentrate on. In my experience, it is far better to concentrate on three or four really pressing issues rather than going in with a grocery list. You will have other opportunities to consult in the future. there are no right or wrong questions, just figure out which you most urgently require answers to.
Good luck on Thursday.
30+ years living with Crohn's.
Post Edited (belleenstein) : 1/28/2008 10:21:08 AM (GMT-7)