Yes, I could pretty much feel a dull achey pain in my illeum all the time. When I was first diagnosed and for about
two years after, the pain would come and go. Some days I wouldn't really notice it at all and some days I would need pain medication and go to bed with a heating pad on my abdomen. This last year, things became worse and the pain was pretty constant. I also developed a sense of constant nausea. I never threw up but always felt like I could at any time. So, while I never developed a complete obstruction the stricture itself was getting worse and worse as it built up scar tissue from the inflammation. I finally gave in and had surgery to remove it in early january. While I'm still dealing with discomfort from the surgery itself and the diarrhea that goes along with it, my abdominal pain that I was having is gone!!!!
31year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Illeocolonic Resection 1/08
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin