I found this website today:
Seems to have a lot of interesting information. However, it cites a lot of people who ended up in our worst case scenario. If you are prone to bathroom anxiety out of the house then you may not want to read it... But, it is interesting to see people fighting for our cause.
26 Year old married female. Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD. Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra. Good times!!!