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Regular Member

Date Joined May 2007
Total Posts : 38
   Posted 1/28/2008 10:43 PM (GMT -6)   
Hello. I was diagnosed with Crohns in April 2007. I guess I am lucky after reading some of your guys post because my Crohns is not painful. Just the D and maybe some cramping. I do however get fevers, loss of appetite and weight loss. I was put on Entocort and Asacol. After the Entocort ran out the first time, I quit taking the Asacol. Bad Idea! I had another flare up in October, but this one was worse it came with an abcess to the psoas muscle. If you google that it says only .1-4% of Crohns people get this. Anyways, I love this website. You guys are so helpful and it is nice to talk to someone about this who understands. I am one of those that gets very emotional before and during a flare and my husband doesn't seem to understand as well as I want him too! :)

I have a question though. Lately, I have been have D, maybe 1-3 times a day. Before I was diagnosed with Crohns last year I had been Diagnosed with IBS at 17 years old. I called me Gastro to tell him about the D and he had me come in and do test. He doesnt think I am in a flare up-he said it sounds more like IBS right now. Also I have had 2 kidney infections with every flare up. He is determined that there is a fistula. But while I was hospitalized they did the test and didn't find anything. But he said if it is small they might not see it. Then how do you know if you have one? Also does have D automatically mean you are in a flare up for you guys?

Thank you for all the support you guys lend out!!


Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/29/2008 5:58 AM (GMT -6)   
Hi Amy, No D does not mean your in a flare. I would recommened getting a new gastro doctor. It sounds like your doctor can't tell you if you have Crohn's or IBS.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 1/29/2008 8:46 AM (GMT -6)   
Some people do have both crohns and ibs....

And yes, fistulas, can be so small that the can be very hard to find...which is very frustrating.

Regular Member

Date Joined May 2007
Total Posts : 38
   Posted 1/29/2008 7:43 PM (GMT -6)   
Thank you for the input. I have been diagnosed by 2 doctors as having Crohns. So I'm pretty sure that is what I have. When I was a teenager I was diagnosed with IBS.

So how often does any of you have the D and not be in a flare up?
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