stricture dilation UPDATE

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sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 1/29/2008 2:41 PM (GMT -7)   
my daughter is on very short notice having a colonoscopy to dilate a stricture tomorrow morning.  I only found out today.  She hasn't been able to eat anything solid in over 2wks, and before that no fibre or things hard to digest since before christmas.
 
Has anyone else had this procedure done?  She has to start prep in a couple of hrs. 


dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 17, Dx: Crohn's, amitriptyline 20mgs,   lactaid pills, calcium 1000 mgs/day. Forvia, Remicade [double dose]
 
 Husband with treatment resistant depression   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 

Post Edited (sweeterthanhoney) : 1/30/2008 3:33:30 PM (GMT-7)


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 1/29/2008 2:47 PM (GMT -7)   

Yep,I just had it done about three weeks ago.My GI attempted it a few times,but I had so much inflammation,he was not able to widen the stricture,but since being on Humira,the procedure was a success...FINALLY!!

 

Good luck :-)

 


sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 1/29/2008 2:51 PM (GMT -7)   
thanks Lynn,
did you find it very painful after? How long did it take for you to recouperate? My daughter has to work the next day!
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 17, Dx: Crohn's, amitriptyline 20mgs,   lactaid pills, calcium 1000 mgs/day. Forvia, Remicade [double dose]
 
 Husband with treatment resistant depression   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


John510
Regular Member


Date Joined Jun 2004
Total Posts : 226
   Posted 1/29/2008 3:01 PM (GMT -7)   
Hey I am kind of in the same boat...What kind of prep does she have to go through? Please keep us updated

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/29/2008 6:56 PM (GMT -7)   
I had this done several years ago and no, there was no pain after the procedure., although I always feel fragile for a day or two after a colonoscopy. My stricture had closed to less than 1/16 of an inch and they were able to dilate it enough that it bought me about two years before it closed completely and i needed surgery. It was a really painless process, and well worth the attempt as it lengthened the time between resections.
Belleenstein:

30+ years living with Crohn's.


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 1/29/2008 7:08 PM (GMT -7)   

No pain afterwards at all. The prep is always the worse part devil

Hope she does well!! I actually went to IHOP right after leaving the Endo Center.

 


sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 1/29/2008 8:42 PM (GMT -7)   
She is doing a prep called Pico Salax. We live in Canada and this is a very easy prep too do. I've had it myself. It is a powder you mix with 150 mls of water and it taste like orange. She took the first package at 6pm and the second at 9 pm. Shes been going and hasn't any problems. She also has been on a liquid diet for almost 2 wks so maybe there isn't as much there. This prep is more expensive, but really worth it. Very easy.

Thanks for the good news that those of you who have had this had no problems! That really eases my mind.
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 17, Dx: Crohn's, amitriptyline 20mgs,   lactaid pills, calcium 1000 mgs/day. Forvia, Remicade [double dose]
 
 Husband with treatment resistant depression   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 1/29/2008 10:24 PM (GMT -7)   
Wow, interesting! I have never heard about having a colonoscopy to dilate a stricture. Thanks for posting everyone.


~sukay~
Diagnosed Bipolar - August 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
Leo Buscaglia

Post Edited (sukay) : 1/30/2008 10:31:14 AM (GMT-7)


sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 1/30/2008 3:35 PM (GMT -7)   
well, the day is done.  There was a windchill factor of -47C this morning when we started out, and school was canceled.  We got there fine, but had alot of trouble locating parking and I had to park a good distance away and walk. BRRRRR!  I had lots of headgear along so only my legs got cold.  I dropped Jerica off at the front door so she wouldn't have to walk.
The colonoscopy went well and quick.  The Dr did not find what we were expecting.  There was NO narrowing and everything looked fine!!??!!  So he as well as we are very perplexed at what is going on.  He wants her to stop the Remicade, put her back on the Imuran and increased her Amitryptaline in hopes that will help with her pain.  He mentioned IBS, but I don't see how it can be that.  I have that and it doesn't resemble her problems at all.  He isn't changing her diagnosis of Crohns though.
We will still go for the MRI on Feb 25/08 and have a follow up appointment in approx 6 wks from now.
Thank your for your prayers of protection.  Please continue prayer for clarity as to what is really going on and that they will pinpoint it so Jerica can be pain free.
 
p.s.
The prep went good with minimal problems.
dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 17, Dx: Crohn's, amitriptyline 20mgs,   lactaid pills, calcium 1000 mgs/day. Forvia, Remicade [double dose]
 
 Husband with treatment resistant depression   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


sweeterthanhoney
Veteran Member


Date Joined Oct 2005
Total Posts : 540
   Posted 1/31/2008 7:00 PM (GMT -7)   
bump

dx: fibromyalgia, IBS-C,Myofacial Pain Syndrome, Chronic Headaches, hypothyroidism,anemia, insomnia,mild depression.
 
Meds:
Clonazapam .25mgs, Oxy IR 2.5-3xs/day 5 mgs at bedtime, Synthroid, Zopiclone, flexeril 
 
Supplements:    professional vit/mineral, magnesium/malic acid, Ester C,
 
Daughter Jerica 18, Dx: Crohn's, amitriptyline 50mg, Forvia, AZA 150mgs
 
 Husband with treatment resistant depression:   Effexor-450mgs
 
                                     
Jerimiah 29:11                      
 


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/31/2008 8:53 PM (GMT -7)   
I'm glad that they didn't find a stricture where they expected to, but I suspect it does little to ease your concerns. Something is causing her pain, isn't. Has her small bowel been thoroughly evaluated?
Belleenstein:

30+ years living with Crohn's.

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