Should I be worried or call my doc about this??

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Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 1/29/2008 2:42 PM (GMT -7)   
Alright Here is the deal. As many of you may already know I had surgery about 6 weeks ago removing a foot of my ileum, appendix, a bit of cecum and my ileocecal valve. I am aware that it takes a while to start feeling better, but holy moses this is getting rediculous. After over 1.5 months I am still having these glorious symptoms:
-Nausea immediately after eating
-Stomach ache immediately after eating
-Extreme fatigue and exhaustion: I literally go to bed at about 9:00pm and I am still beat    when I wake up...I pretty much could lay in bed all day and sleep off and on.
-do not have normal bm's...pretty much just diarriah
-just an overall feeling of gross and sickness...
-I am unable to take anything but baths because it takes so much of my energy
-I can't walk long distances, or even short distances for that matter because it about kills me
-joint pain and fatigue
-super dry skin/slight rash on my cheeks and a bit on my chin
-I basically just feel like crap...what can I do?
If anyone has had this surgery...is this all normal for a recovery period? Should I call my doc about this...I feel like I have lupus or something
eyes  PLEASE HELP!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Prednisone, Oxycodone, Oxycontin, Remicade,
6-mp.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 1/29/2008 3:10 PM (GMT -7)   
Geez, I'm sorry to hear you're feeling so terrible!

I've never had any surgery of that area -but I don't think it could hurt to touch base with your doctor. It's been my experience that the doctor usually says "why didn't you let me know you were having these problems" whenever I've held off from calling him. I hope you start feeling better soon.
Take care,

Bev

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/29/2008 3:14 PM (GMT -7)   
Chronie, just to be on the safe side I sugggest you call your dr ASAP. You should not feel nearly as bad as you do. You should be starting to feel somewhat better instead of worse. For sure, something is not quite right with you...Susie


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 1/29/2008 3:57 PM (GMT -7)   
Yes you should call your doctor. I have had 3 resections of that basic area. All three times it took a while before I felt right, but good lord nothing like you are describing. I know I would make sure I showered before my husband left for work just in case I fell down someone was in the house, but I COULD shower. It sounds like you have something else going on. Have you monitored your temp by any chance? Could you have some underlying infection going on. The lack of energy and rash are concerning. I would give the office a call in the morning and I would be want to be seen. Don't just take "Oh that's to be expected". This is one of those times when it might be to your advantage to really make sure they are "hearing" what you are saying. Don't under play your symptoms. Please let us know how you make out when you call and keep us posted.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 1/29/2008 4:08 PM (GMT -7)   
HI there
I do agree that you need to contact your doc asap to let him or her know just how badly you are still feeling

Please keep us posted and I hope you find out what is going on right quickly

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
    www.healingwell.com Donate today to keep HW helping others
 
                     
 


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 1/29/2008 5:19 PM (GMT -7)   
I would definately call your doctor asap.  I had basically the same surgery you had 3wks ago on Thursday and I don't feel anything like what you describe.  I'm still sore from the surgery itself (incision and muscel soreness), I have diarrhea when I eat, get tired fairly quick, but am able to shower and do things around the house without too much trouble.  As far as pain in my abdomen though it's pretty much gone.  I get an occasional twinge in my right side but nothing like before surgery. I had the nausea for the first few days I was home but thankfully that's gone.  Please get to your doctor soon and make sure everything is healing ok on the inside.  Let us know.....
31year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Illeocolonic Resection 1/08
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 1/29/2008 7:51 PM (GMT -7)   
Hey all! I was able to get into my GP today and she is convinced that it is still a Crohn's thing, but instead of my terminal ileum, which they just took out she thinks it could be higher up...Awesome. While I was waiting for her I got a call from my GI cause I had called them earlier telling them my issues and she prescribed my Levsin to help with my stomach cramping. I was also given an anti-nausea to take before each meal, and see how that works. My GI is setting up to have an endoscopy done, and so we will see from there. My doc had me get some blood work to check my CBC, CMP, SED rate and Thyroid....I just dont know what the deal is and really would love to have it figured out.
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Prednisone, Oxycodone, Oxycontin, Remicade,
6-mp.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon

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