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sadlilboy
New Member


Date Joined Jan 2008
Total Posts : 2
   Posted 1/29/2008 2:43 PM (GMT -7)   
hi im a 16 years old and ive had crohns for about 5 years now but ive only been diagnosed with it since october 2007
i am currently taking asacol 2 2x a day
and ganedon 2 1x a day
 
i try my hardest to stick to my diet but its hard as a 16 year old boy seeing his friends and family eating all the good stuff and im left out my school doesnt offer any alternative food for me so i dont eat at school im in a flare up 5 days out of the week and i lost my appitite agian we cant afford to go to the doctors after the 10,000 dollar hospital bill
and we dont qualify for medicare
we can barly afford the asacol.
we pay it by the week and i stoped taking it for about 2 weeks cuz we didnt have the money, but i paid the price not in cash but in sleepless hours and embaressing school acidents
but i am back on it paying for it by the week.

im asking for easy cheap diets that i can go on
if you know of any assistance for medication or doctor visits please reply
or emial me at
merxese@yahoo.com

Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 1/29/2008 2:48 PM (GMT -7)   
Oh goodness I am so sorry to hear that you are having a difficult time with your crohns. Alright here is the deal...you may not qualify for medicare, but you should be able to qualify for disability if you try. It is a really long process and you will probably be denied the first time, but I would try it. I am in the middle of the glorious process right now after going to the hospital 3 times and having a surgery....crazy hospital bill overall from the 4 stays....75,000. YIKES! I feel for ya. See if your doc can get you some Asacol samples because it is very important that you take your meds, and fortunately for you 4 Asacol a day is a very low dose. If these arent working talk to your doc about other therapies that may also be cost effective. In terms of cheap diets...I dont have a specific diet, but what works for me is: avoiding foods such as nuts, seeds, popcorn, processed meats, highly fatty foods, fruits and veggies that are hard to digest: celery, brocolli, berries, etc. If you have issues with dairy products try soy products, which helps a lot of people. Hmm...I will look up some programs for medications and see what I find and email you. Don't get yourself stressed out and worried because you will throw yourself into a flare.
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Prednisone, Oxycodone, Oxycontin, Remicade,
6-mp.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 1/29/2008 2:55 PM (GMT -7)   
Here are some websites that I found regarding patient or medication assistance:
http://www.patientmedicationassistance.com/
http://www.rxassist.org/
http://www.makoa.org/freemedicine.htm

Although I attached these websites I have no idea if they are legitimate or accountable since I havent read over them. Just thought I would give you websites so that you and your family can look into them....best of luck!

I found this on the Asacol Website...it seems to be a card for 15 bucks off a month for Asacol prescriptions...read about it. I think you fill out a survey and fill out info for a newsletter and you get this card, info about Asacol and samples....sounds good.

https://www.activatethecard.com/loyaltyscriptgenrc_web/appSecLoyaltyscriptGenrcWebWelcome.jsp?pgmId=asacol

 


Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Prednisone, Oxycodone, Oxycontin, Remicade,
6-mp.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon

Post Edited (Crohnie8) : 1/29/2008 3:02:28 PM (GMT-7)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 1/29/2008 3:00 PM (GMT -7)   

Hi Merxese and welcome to Healing Well. I am so sorry to hear you have this dredful disease. I am old enough to be your mom and I know how hared it is on me. The accidents you mentioned, honey us ole peeps and young alike have them too, I guess its just part of this disease.

First off you can get help with your medication. Your parents can get help with your medication free of charge. In fact, one of your parents or yourself, need to call the drs office and let them know your parents do not have the money to buy your medicine with. Most of the time the drs have free samples given to them for their patients by the drug rep. Also, the drug companies thru your drs office can arrange to have your medication sent free of charge or if they require any payment it would be very little. Many, many people do not have ins and they get their meds either by free samples from the dr or the drug company.

Most drs also will give a patient a reduced fee if they know the patient has no insurance and are having to pay cash for a visit. Have your parents contact the drs office on this. If I think of anything else I will either email you or post here. Many people get their meds free and drs visits at a reduced rate.

It really upsets me that you did not have your medication for a couple of weeks and had to go w/o. Thats just so unfair.So, please discuss this with your parents and call your drs office ASAP.... Susie



straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 1/29/2008 3:03 PM (GMT -7)   
Hey, Chronnie8 gave you some very good tips on what to eat, I forgot to address that in my post...Susie


sadlilboy
New Member


Date Joined Jan 2008
Total Posts : 2
   Posted 1/30/2008 11:44 AM (GMT -7)   
thanks alot Crohnie8 and Susie. i will try that deit. i usually try to stay away from fast food and cerals, and rice and fruits but its hard at times

i guess i am ganna have to go to the doctors office :(
to be honest im scared to go. last time i went was before i was diagnosed and they looked at me and said u dont look right ( was 16 yrs old 4 ft 11 and weighed 68 lbs) so they took my blood and i had a heblogoblin of 5 wen it shuldve been 14 and they asked me how im still able to walk around and be awake.

so they admited me to the hospital and i spent 5 days eating nothin but sugar free jello and chiken brooth so they could do my lower gi and then i had to not eat anything for 32 hours then i had to drink that chalky peptobismo nasty white liquad so they cuold do my upper gi...it was horrible...
atleast i havent had surgery yet so i am thankfull for that.

well ill check out those sights u gave me

emial me any time

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 1/30/2008 1:24 PM (GMT -7)   
Check with all the pharmacies in your area- grocery stores, too.  Walmart has started a $4 prescription plan for selected meds, and other stores are starting programs to compete.  You may find one that covers your meds for a lot less than "list" price.  I looked on the Walmart website, and didn't see Asacol on the list, but I'd talk to someone anyway.  They might have more info in the store than what is posted online.  Good luck!
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