For those who take B-12...

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EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/30/2008 7:15 AM (GMT -7)   
For those who take B-12, I'm just wondering how much you take each day? I think I've read here that many of you take the sub-lingual form. Do you have a brand you recommend?

Many thanks!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 1/30/2008 7:46 AM (GMT -7)   
Mine is by injection, now once a month
Belleenstein:

30+ years living with Crohn's.


Jillybean1887
Regular Member


Date Joined Jan 2007
Total Posts : 56
   Posted 1/30/2008 8:52 AM (GMT -7)   
I take it monthly as an injection.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/30/2008 8:53 AM (GMT -7)   
I used to get injections but my GP was able to wean me onto 1200mcg tabs with no problems.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/30/2008 9:52 AM (GMT -7)   
Thanks everyone!

pb4, so you take 1200mcg a day?
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/30/2008 10:52 AM (GMT -7)   
Yes, for the last 6 yrs now, with no problems and initially I had severely low B12 blood results, I had the tingling in my fingers which is the beginning signs of nerve damage due to lack of B12.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


bunnypucker
Regular Member


Date Joined Dec 2003
Total Posts : 494
   Posted 1/30/2008 1:59 PM (GMT -7)   
i do the injection every 2 weeks
 
bunny
Crohn's Disease Diagnosed 12/24/03 and Bipolar

Im 26 years old, and am currently only taking Levisin, Clidinium and protonix for my CD. I'm off my remicade--nervous. I am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar, Wellbutrin and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BP med. im on fentanyl patches for pain also, and i take some meds prn for my allergies, asthma, and migrianes.


TN Girl
Regular Member


Date Joined Dec 2006
Total Posts : 37
   Posted 1/30/2008 6:22 PM (GMT -7)   
I also do the injections every 2 weeks
Sherry
 
Living with Crohn's Disease in TN. 
Peri-anal Fistula in 1993 twice but wasn't diagnosed until 1995.
2 surgeries (1995 & 2005)
Happily Married to my Soul Mate for 18 years


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 1/30/2008 6:25 PM (GMT -7)   
i've been taking one for a few months now cos of my anemia problem. i switch brands every month looking for one i like. since i am still searching, i cant recommend one at this time. the low level of normal in the states is like 200 mcg. in europe it is 400 mcg. i've heard of some people whose treatment for crohn's is just a b-12 shot (lucky).


some fun facts about b-12 from earl mindell's new vitamin bible:

b-12 is also known as cyanocobalamin

b-12 is not absorbed well in the stomach, hence a sublingual is recommended. it should be taken with calcium to properly benefit the body.

no known cases of toxicity (ie overdose)

enemies include acids and alkalies, sunlight, alcohol, estrogen and sleeping pills

if you are a vegetarian or vegan and have excluded dairy and eggs, you should take a b-12 supplement as your diet is deficient

if you are an alcoholic (or regularly attend happy hour) you should take a b-12 supplement

same goes with heavy protein eaters.

supplements come in a variety of strengths, from 50 to 2000 micrograms (mcg)

primarily supplied by animal products (liver, beef, pork, eggs, milk, cheese, fish); few plants/plant products contain it

as a water soluble vitamin it can be stored in your body. it takes about 3 years to deplete it. --- this imho if you are deficient, this makes it sound like you've got a chronic problem going on for some time. oops...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/30/2008 6:30 PM (GMT -7)   
I use 1000 mcg sublingual tabs of methylcobalamin daily. Methylcobalamin is superior to the standard cynacobalamin found in the majority of supplements. I had low B-12 and my levels came up significantly in about 3 months.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 1/30/2008 6:32 PM (GMT -7)   
Ya, the B12 pills I take are timed-released.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 1/30/2008 6:49 PM (GMT -7)   
Hi I do the injection once a month.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 1/30/2008 7:10 PM (GMT -7)   
I take the B12 injections twice a month. I tried the sublingual but it gave me bad cramps. Why who knows.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/30/2008 8:35 PM (GMT -7)   
Wow...thanks everyone! It sure helps to get all your feedback! I do wish I'd thought about this before; had his blood levels checked or simply added it to the lineup.

The injections sound like a possibility. Really convenient. One less thing to take every day. Hummm...

Since I posted that question early this morning I've learned a bit more about the supplement form. I read somewhere what Crazy Harry posted--that it isn't well absorbed in the stomach or intestines (probably even less absorbed in CD intestines), so the sub-lingual is recommended. This causes it to by-pass the intestines and get directly into the system. Also, as Ides posted, supposedly the methylcobalamin version is superior in the sub-lingual. Sooo...I raced out this evening and bought a sub-lingual form. Guess what? I didn't read it closely (I know the store owner and we were chatting nono) and when I got home I noticed it said "in a base of sorbitol."eyes

So THAT bottle will be going back to the store. I'm going to look for a sub-lingual in some other base--maybe fructose? I've heard xylitol, sorbitol, etc, can cause diarrhea in folks WITHOUT intestinal problems. Not gonna chance that one!!!

Ides, what brand do you use? And it honestly took three months? Did you start to notice anything any sooner than that--like energy-wise? My son says he only notices the lack of energy when he's swimming. Hoping this will help a bit.
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 1/30/2008 9:33 PM (GMT -7)   
I also do injections, but am going to try the time released 1200 mcg once per day.

tinglebell
Veteran Member


Date Joined Apr 2007
Total Posts : 531
   Posted 1/30/2008 10:42 PM (GMT -7)   
I take B12 1000mcg by injection every 2 wks, and I have nerve damage. I also pop a sl methylcobalamin 3000 mcg every few days (not taking any chances) even though my doc says it is wasting my money. I believe my vitamin expert at Braintalk.org (name is Rose). I buy them at whole foods and just gave my bottle to caretaker of my MIL to give her 1 every day (she is in a nursing home and they have refused to test her because she is not anemic) She has dementia and had been on the "purple pill" for years for reflux. I just met an old colleague of mine that had been on the same med for yrs, developed severe anemia for no good reason, and a naturopath told her to have her doc give her B12 shots. She had to switch docs to get the shots and guess what, she got better and is not anemic anymore. Her level was never tested prior. But she describes all my other B12 def sx almost to a T, and I was not anemic. There lies the fallacy.
DIANNE
Humira, pred and entocort 1/08
3 small bowel resections, 1 for perforation, 2 for strictures 
 

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