I need some help. My husband has a persistant case of rectal-fistulizing Crohn's. He's been taking Remicade every 6 weeks for a year now and everything was going great until he had to delay a treatment by 3 weeks because of a sore throat. Since then, 2 or so weeks after the treatment, life gets really difficult. After that 2 week mark his fistulas flare up, leak and bleed and his overall health goes way down. He has one seton and two fistulas without setons. The last time we talked to his GI, the doctor prescribed him Humira. We are having difficulty getting it approved by our prescription plan and we don't have the money to pay $1000 per treatment. Now the surgeon and the doctor are suggesting a temporary ileostomy. My husband is 26 and is absolutely depressed at the thought of any ostomy, temporary or not. He especially questions whether it would be worth it or not. Is there anyone out there that has fistulizing Crohn's and has experience with temporary ileostomies and can answer questions?
- Did the ostomy help?
- Was getting the ostomy worth it in your opinion?
- Did your fistulas come back after the ostomy?
- Did you develop any fistulas at the ostomy site?
Wife to 25 y/o diagnosed with Crohn's in August 2006
Possible perianal fistula presence for 2 or more years