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rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 2/1/2008 7:25 PM (GMT -7)   
We were describing our pain and someone said, I forget who, that they also felt like they swallowed a cell phone on vibrator.  This is what I get quite regularly in my problem area, RLQ, very low, where the cyst was removed from.  Something in there vibrates for about 10 seconds at a time and it feels so strange. No pain, just vibrations. 
 
What could possibly be doing this?   I plan to ask next time I go to the gi doc but thought I'd check to see if this is common.  I don't get it in any other area of my abdomen, just RLQ
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


belleenstein
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Date Joined Feb 2007
Total Posts : 1010
   Posted 2/1/2008 8:28 PM (GMT -7)   
When I had a percutaneous drain inserted in an abscess I remember developing a cramping clenching buzzing feeling in my pelvis. Docs didn't pay much attention to my discomfort so i brushed it aside. Two weeks later when a new drain was inserted I experienced the same sensation again. I think it was my bladder spasming. I continued to get these odd feelings for months afterwards. I don't know if we're talking about the same thing, but it sure was weird.

The only other thing remotely like what you describe was a jumpy vibrating pain I felt post-surgery. This was underneath my sternum at the upper point of my incision. I awoke from surgery too soon while I was still on the table and laying in the midst of blood-soaked sheets. This vibration was excrutiatingly painful, though and I suspect it had something to do with nerve excitation. I hadn't received the post-surgical pain medication yet and I just think those pain sensors were on overload. That weird feeling persisted for months after the surgery, but was not accompanied by pain after the first incident.

I'm sure someone will come along who can explain what's going on with you, but, for sure mention it to your doc.
Belleenstein:

30+ years living with Crohn's.


FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 2/1/2008 8:30 PM (GMT -7)   
Awww I thought it was going to be about good vibrations. Oh well.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


rootsmith
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Date Joined Jan 2004
Total Posts : 598
   Posted 2/2/2008 8:09 AM (GMT -7)   
Balleenstein, it is kind of odd to me that this vibrating feeling has only occurred since I had the surgery last Feb when a cyst was removed from my lower right quadrant. The gi NP told me that it could have been a fistula and that it is not uncommon for them to not exit the skin. It was 5 cm long which she thought was very large. She didn't think there was a problem now that it was gone. However, I wonder what happens behind the closure? Does it back up? I sure hope I don't have an abscess. You would think it would have gotten much worse by now and be causing some pain (although the cyst took years to get to the size it was at the time of surgery)

This can't be my bladder, or else I've got some strange anatomy. Its too far to the right. Also, it only activates when I feel my bowel gurgling. In other words, when I first wake up I don't feel it. Then when I eat and things start up, it starts vibrating. I know I have some distorted anatomy due to adhesions but I doubt my bladder could be over there and also, I think that would cause some type of urinary urgency which I don't have. When I had a laparoscopy (before the crohn's diagnosis, although the gyn always thought I had crohns, unfortunately he died ) they found a loop of small bowel down in the right pelvis.

I will definitely mention it to my gi NP
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


belleenstein
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Date Joined Feb 2007
Total Posts : 1010
   Posted 2/2/2008 1:15 PM (GMT -7)   
There are a lot of organs in the abdomen, each with muscles, nerves and ligaments. I think these organs, when they are irritated, damaged or constricted by adhesions, have the potential to make themselves felt in ways that are not normal. Sorry you mis-understood, I was not trying to suggest the problem was with your bladder.

I have no science on which to base my suggestions, just my own observations. They are offered for you to take as an example not as a diagnosis of what's going on with you.

If you had an abscess you would likely feel ill and your white cell count would be elevated. When I have had abscesses form, the pain was intense as they started to go septic and I was very ill.

Cysts cause pain because of their size, abscesses cause pain because they are inflamed and infected. You can have a lot of pain with a very small abscess.

Best to mention this to your doc if it is bothering you.
Belleenstein:

30+ years living with Crohn's.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 2/2/2008 6:29 PM (GMT -7)   
Belleenstein, I realized what you meant, I didn't mean to sound the way I think I did. Sorry :<)
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/2/2008 6:37 PM (GMT -7)   
Whatever's going on with you Rootsmith, trust your instincts. It may only be in hindsight that you are able to figure out what's going on or maybe you will never know for sure. But the more you remain aware of how your body feels the better you will be able to document and that will help you help your caregivers figure out what's going on. Oh, and please, no apology necessary!
Belleenstein:

30+ years living with Crohn's.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 2/3/2008 6:39 PM (GMT -7)   
This has been going on soooooooooo long. I'm praying for a major breakthrough, don't even care how bad it is. Last night I threw out years of blood pressure and diet records. I have told the story so often I think it is etched in my brain.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 2/4/2008 7:46 AM (GMT -7)   
Rootsmith, I think I was the one that mentioned that feeling. I haven't had it in awhile but I really think it is nerves repairing themselves. I had my vibrations after my resection and one time when I had a bad bout of "D". It hasn't been an ongoing thing and it really didn't hurt. Just bothersome.
Vicky / 48 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (27) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 2/5/2008 11:18 AM (GMT -7)   
Interesting idea, Vicky. It does kind of feel like when you hit your funny bone but lasts longer. So it could very well be a nerve. If there is inflammation it could be irritating one of the nerves that run through there. Funny that in my case it is located right where I had the cyst removed from and with you, where you had your resection. I will definitely mention it when I go to the gi in March. (They told me it was up to me if I came in at 3 months, since I'm doing so well- HA)
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  

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