entereocutaneus fistula

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

metoo50
Regular Member


Date Joined Aug 2007
Total Posts : 55
   Posted 2/3/2008 4:21 AM (GMT -7)   
 
has any one experienced an entereocutaneus fistula? Seeking advise from anyone suffering from this complication of CD. My son, 25 yrs. old, last month was diagnosed with CD. He never had any problems before. he began to have some abdominal pain, and lost weight. In Dec. 2007 he was admitted to the hospital with an abscess under his belly button. The doctors concluded that he had a periumbelical abscess. The abscess was cut, and drained. However the drainage got worse, and he was in a lot of pain. Went the the hospital again and after many tests, including a colonoscopy, he was diagnosed with CD. He is now wearing a colostomy bag to collect the drainage. The doctors are saying that the fistula will heal in 8-10 weeks. please anyone who has had a similar experience let us know what the outcome is.
 
yeah  I also have CD (20+) For many yrs. on Pren. which caused many problems. Now on Humira, doing OK, but having hot flashs, and night sweats. (50+ yrs. Mom) i never believed in the genetic link causing CD. I have an extended family and there is nobody suffering from CD.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/3/2008 6:06 AM (GMT -7)   
Hello Metoo50:How helpless you must feel! I know you would do anything to take away your son's pain. It must be doubly difficult because you yourself have the disease. Still, your knowledge and experience will be a huge source of comfort and support for your son as he copes with this diagnosis.

His doctors seem optimistic that this fistula will heal. That is good. Has he been placed on medication? I see you are on Humira. Remicade has been shown to successfully heal fistulas that had otherwise been resistant to healing.

I have not experienced a bowel to skin fistula, only bowel to bowel, so I can not offer a lot of knowledgeable advice. There are many here who have that experience though, and I know they will be along soon to offer some insight.

Hope you can help your son deal with the body image issues that go along with a fistula.. It is very difficult to accept for anyone, but I imagine especially for a young man. He may not want to talk about, but as long as he knows you're there and that he can say what's on his mind without fear.

Hugs
Belleenstein:

30+ years living with Crohn's.


WantRelief
Regular Member


Date Joined Feb 2006
Total Posts : 261
   Posted 2/3/2008 5:29 PM (GMT -7)   
Bellenstein,
How did you know that you had bowel to bowel fistulas?  My surgeon discovered mine during my recent resection, otherwise how would I have known I had this?
31year old female
CD of Terminal Illeum and Rectum Diagnosed 12/04
Illeocolonic Resection 1/08  (18 inches of terminal illeum, illeocecal valve, right colon)
Current Meds: Pentasa, Fosomax, Iron, Vitamin b12 injections, Vicodin


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 2/3/2008 6:41 PM (GMT -7)   
They found it during surgery for a bowel obstruction. The fistula developed above the stricture in the TI and communicated with the sigmoid colon. I ended up with a double resection because of the fistula. It was basically a consequence of the completely stenosed and obstructed bowel. I knew there was something wrong because of the sounds in my intestines and from the way that the enteral nutrition was pouring out of me, but it was only after the resection that my symptoms made sense to me.
Belleenstein:

30+ years living with Crohn's.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/3/2008 7:16 PM (GMT -7)   
Is he on any meds to help close it? If not, and short of having surgery, I'm not sure that it will heal. I have had my current fistula for 1 1/2 yrs. now. I go on Thurs. to talk to my surgeon about surgery...

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 2/4/2008 3:08 AM (GMT -7)   
i would not totaly beleive them meetoo50. the abcess started somewhere, probably from a fistula. when the drained it, they opend an outlet to the skin. unless they repaired the interior hole in the intestine, most likely it will continue to leak. i went through the same as your son for 4 years before i could get mine fixed. in my experiance , fistulas ( at least all of mine) just dont "heal up". they have to be fixed surgically.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Driver37
Regular Member


Date Joined Jun 2007
Total Posts : 93
   Posted 2/4/2008 7:55 AM (GMT -7)   
I had a bowel to skin fistula, from colon to stomach skin in the LRQ. I don't know which came first, the abscess or the fistula. I felt led to believe that the fistula sprung out of the abscess. They were able to see it on the CT scans.

At first they drained the abscess and left me with a hole in my stomach to catch the drainage from the fistula. The stoma was not well enough formed though to catch the drainage in a bag, so I used bandages and changed them about 2-3 times a day. I did that for about three months before they removed the fistula/abscess and did a resection. They had hoped that the fistula might close but it didn't. They gave me the option of going on Remicade or Humira instead of surgery, to try to close the fistula but I was really getting tired of changing the bandages everyday and there was no guarantee that it would close. So I opted for the surgery.

metoo50
Regular Member


Date Joined Aug 2007
Total Posts : 55
   Posted 2/5/2008 4:35 PM (GMT -7)   
My son is on Imuran 75 mg since he left the hospital. This week the GI put him on Pentasa 400 mg 3x a day. We will be going to Mount Sinai, here in NYC for a second opinion.

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/5/2008 4:40 PM (GMT -7)   
Good idea....let us know what they say.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 5:30 PM (GMT -7)
There are a total of 2,736,122 posts in 301,354 threads.
View Active Threads


Who's Online
This forum has 151451 registered members. Please welcome our newest member, YoEve.
297 Guest(s), 9 Registered Member(s) are currently online.  Details
wthj53, YoEve, porkysgal, rocckyd, ChickNorris, Ariel Smith, Mustard Seed, Tim Tam, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer