three weeks post-gluten and I'm a convert

New Topic Post Reply Printable Version
30 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/3/2008 1:12 PM (GMT -7)   
Hey all, after testing through a naturopath I have been off gluten for 3 weeks and I am really feeling better. it has been just under 2 years of constant pain, meds, and feeling all-around crummy, I have energy, an appetite and much less pain. I only wish I had done this sooner, but can't do anything about that.
I will keep you posted. yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 2/3/2008 1:42 PM (GMT -7)   
COOL!!!! l I just started gluten free 3 days ago I did test negative for Celiac ( with MD) but am trying Gluten free anyway my neighbor has a brother that is a Naturopath and talk to him about me he told him to tell me to avoid Gluten.
I went out to eat last night took my own homemade salad dressing ordered a bed of greens with grilled CK breast it was wonderful it takes getting use to but I am determined and your post has giving me a wonderful BOOST!!!
Thanks, sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 2/3/2008 2:00 PM (GMT -7)   
Great news! Glad to hear you're feeling better :-D


 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/3/2008 2:02 PM (GMT -7)   
Time flies, I cannot believe it has been 3 weeks.........hurrah for you.  I am so glad your feeling better.
Keep it up.

 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/3/2008 2:04 PM (GMT -7)   
Hi I am glad your feeling much better.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/3/2008 2:21 PM (GMT -7)   
That is awesome! I'm very happy for you!

I'm trying to get my mom to go gluten free for her IBS. Are you following a specific diet like SCD?
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/3/2008 2:57 PM (GMT -7)   

I am not following a specific diet, just no gluten. the first week I practically starved to death, but I am getting it figured out. there are lots of products in stores, and eating at home is pretty easy and healthy. I checked several books out the library and found good websites. I carry my bottle of tamari sauce to sushi restaurants as soy sauce has wheat. bread doesn't even sound good anymore.

the most amazing thing is having food sound good again. since I got sick I have had no appetite. now my husband watches me eat and says "well, that must be good!" yeah yp


48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 2/3/2008 3:25 PM (GMT -7)   
Can you post what you are eating I found a few websites but the food list are old and dated. I did go to the Health food store and am stocking up on things. I can have brown rice so I can live with this diet I am hispanic and my DH is Japanese without rice we would be in a pickle. I found a bread in refrigerator section of the health food store that does not taste like roof shingles its made from Millet its pretty good.
Are you having milk? its allowed I am having it. There are some Yoplait yogurts that are gluten free I need it for my bones and can not take calcium pills they plug me up.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/3/2008 3:56 PM (GMT -7)   
I do have milk and soy. I eat yogurt, poultry, tons of beans, rice, potatoes and cooked veggies. I can't eat raw veggies. I haven't tried the breads, and instead just eat rice crackers and corn tortillas. I am experimenting with baking and just made some peanut butter cookies. I found the recipe on Bob's Red Mill's website. they have a pretty extensive list of recipes using their products. all baked goods come out a bit weird, but good for a snack.
If you have problems with gluten (as with crohns) there is often bone loss, so calcium is important. can you eat cooked brocolli?
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 2/3/2008 4:57 PM (GMT -7)   
That's great news YP. My doctor told me that with a strict gluten free diet, not only is the diet restrictive, but there's gluten in things you wouldn't suspect. For one, you can't lick envelopes - apparently there's gluten in the glue or whatever. I hope this diet solves your health mystery (and misery).
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira, Imuran and Entorcort. Hope to dc Imuran and Entorcort within one month of starting Humira.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 2/3/2008 6:37 PM (GMT -7)   
GREAT NEWS Yogaprof. I was wondering how you were doing.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/4/2008 7:55 AM (GMT -7)   
thanks root. I am delighted! yesterday we went to a party and it was the first party I have been to in forever when i wasn't sitting down, feeling weary--I was bouncing everywhere!
and yes, skibum, gluten does hide in odd places, but I figure with no breads and cereals, if I get a trace from an envelope I am still WAY ahead.
happy monday, all, yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/4/2008 8:01 AM (GMT -7)   
So I'm curious, yogaprof. Were you ever tested (by regular doc) for Celiac? Either blood or biopsy? I'm beginning to wonder if the tests are reliable...
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/4/2008 10:05 AM (GMT -7)   

hey emom,

I tested negative for celiac, both through blood test and biopsy, so this was a surprise. I had a saliva and stool test through the naturopath and it showed a high intolerance to gluten. some docs will say either you have celiac or you are fine with gluten, but others say one can have "non-celiac gluten intolerance." I know of many people (several on this forum) who feel much better without gluten.


mama2jmt
Regular Member


Date Joined Mar 2007
Total Posts : 301
   Posted 2/4/2008 10:19 AM (GMT -7)   
Hi yogaprof,

Glad to hear that you are doing well on the gluten free diet.Restrictive diets are hard to get used to at first,but once you figure out just what kind of foods to buy,it gets a whole lot easier.My sodium restricted diet was really hard at first,just from having to read the labels on everything.

Also,I wanted to share a good alternative to soy sauce & tamari w/you & the others......Bragg's Liquid Amino.It's pure protein,all natural,16 amino acids,gluten free,non-GMO,& tastes very similar to soy sauce.

Good luck & I hope that you keep on feeling good!
~Jennifer~
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet
          


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/4/2008 10:55 AM (GMT -7)   
yogaprof said...
I tested negative for celiac, both through blood test and biopsy, so this was a surprise. I had a saliva and stool test through the naturopath and it showed a high intolerance to gluten. some docs will say either you have celiac or you are fine with gluten, but others say one can have "non-celiac gluten intolerance." I know of many people (several on this forum) who feel much better without gluten.


"non-celiac gluten intolerance." hummm.....Thanks, yogaprof. I'm beginning to think this is where my son falls. Like you, he tested negative for Celiac both in blood test and biopsy. He is nearly gluten free now, but cheats occasionally. It's tough to be nearly 16 and have to pay attention to everything that goes in your mouth. He's doing amazingly well, though.

mama2jmt, I'll be checking out the Bragg's Liquid Amino! Thanks for the tip!

UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 2/4/2008 11:56 AM (GMT -7)   
I hope it's OK to post these, if not, I'm sorry and will try to do better in the future. I thought this might be useful though:

This site lists the Safe Gluten-Free stuff:
http://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

And then a list of Unsafe Gluten-Free Stuff:
http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html

pup
The funny story of my first abscess

The paper about the apheresis study

******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


schoolgirl
Regular Member


Date Joined Oct 2007
Total Posts : 35
   Posted 2/4/2008 1:06 PM (GMT -7)   

 

yogaprof said...
I tested negative for celiac, both through blood test and biopsy, so this was a surprise. I had a saliva and stool test through the naturopath and it showed a high intolerance to gluten. some docs will say either you have celiac or you are fine with gluten, but others say one can have "non-celiac gluten intolerance." I know of many people (several on this forum) who feel much better without gluten.>>>
 With celiac, they say you are "gluten sensitive" or "intolerant" when they can't get a definite diagnosis from blood or biopsy but you respond to the gf diet.  They seem stuck in their standard measurements of damage/no damage.  There is more and more discussion about this due to people like you who obviously respond to a gf diet. 
 
 I think crohn's diagnosis is similar - they look for specific damage and if they don't find it, then you don't "have it" - yet.  I looked back at the report from my first colonoscopy/endoscopy from 5 years ago when they found celiac but not crohns.  There were "white spots" in my terminal ileum that they decided they were nothing to be concerned about because the biopsy showed nothing - and guess where they found crohn's ulcers this year! 
 
I guess from a medical viewpoint, they can't treat the unknown, but I do wish I had been more aware of the possibilities back then and had a follow up colonscopy much sooner. 
 
good for you yogaprof on your success with the gf diet!  It's not easy, but it can be done.  The store-sold breads are pretty awful by the way - so you're not missing anything there.  Try online or get a breadmaker and make your own from a Bob's Red Mill mix or something.
 
Becky
Dx with Crohn's Aug 2007; celiac sprue July 2003; Type II diabetes Nov 2006.  Current meds: Entocort , Asacol, Levoxyl, Fosomax, various vitamin supplements.


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/4/2008 2:18 PM (GMT -7)   
thanks for the tips and good wishes.
I agree, Schoolgirl, things I have read on celiac forums make me think of things I have seen here...docs want definite signs, yet folks do well on meds or diets even without a clear diagnosis. celiac (or gluten intolerance) is, however, so much easier to deal with than crohns, because you don't need any meds that are so hard to take, you just need to stop eating. I do, emom, think it woud be so hard to cut out food for a teenage boy. I don't care if I ever eat pizza again, but I am old!
I am truly shocked how good I feel. what a joy!
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 2/4/2008 3:08 PM (GMT -7)   
Hi Schoolgirl, my doctor is willing to treat for crohn's without definite evidence. I had a negative colonoscopy with negative biopsies and he said he'd rather do a trial of medication than the capsule endoscopy. I responded very well to pentasa and they diagnosed me with IBD, unspecified.
The last gi I went to wasn't willing to treat me after negative tests.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/4/2008 4:41 PM (GMT -7)   
YP, I'm glad something is finally working for you!!! Its about time.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 2/4/2008 7:16 PM (GMT -7)   
Hi All,

I can't help but share this flour combination with people who are going Gluten Free. I was diagnosed with Celiac 3 years ago and this flour mix is AMAZING. You can use it in place of regular flour. I just baked up a fantastic batch of bagels tonight :) You can find all the ingredients at a good health food store or a place like whole foods. A bit of effort to mix it up but it is fantastic. As a note if you are making bread type products you will want to add about 1/2 tsp extra of xanthan gum per cup of flour to the recipe. Xanthan gum acts like "Gluten" to bind the flour together. If anyone is looking for some gluten free suggestions feel free to ask me :)

"Wendy Wark's Gluten Free Flour Mix"
2 1/4 cups brown rice flour
1/4 cup potato starch flour
3/4 cup sweet rice flour
2/3 cup tapioca starch flour
1/3 cup corn starch
2 tsps Xanthan Gum

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 2/4/2008 7:44 PM (GMT -7)   
sweet. glad to hear it. the next step now, which is pretty extreme and you have to be committed, is to go off sugar. once you adapt like you have going gluten free isnt all the hard to do.

i've found that going virtually grain free works best for me. i'll have some sprouted grain bread or cereal or oatmeal on occasion, but small quantities. my sweet tooth is gone and i dont miss it.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Sugarmarie
Veteran Member


Date Joined Jul 2003
Total Posts : 1205
   Posted 2/4/2008 7:50 PM (GMT -7)   
I was wondering if we could start a thread for GLUTEN FREE where we can post what we ate that day to help give each other ideas of what to eat. Hey , Moderators will that be alright. Please let us know.
TIA,sm
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/4/2008 9:33 PM (GMT -7)   
Sugar- I think that is a great idea! One for gluten free and one for SCD/Makers maybe?
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 

New Topic Post Reply Printable Version
30 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, December 03, 2016 8:59 PM (GMT -7)
There are a total of 2,732,388 posts in 301,013 threads.
View Active Threads


Who's Online
This forum has 151175 registered members. Please welcome our newest member, melissapsa.
259 Guest(s), 13 Registered Member(s) are currently online.  Details
PeteZa, desert bound, Ides, compiler, Scaredy Cat, mpost, mbisoux, Hawaii3654, Duffykani, puppylover, BostonMarigold, Kmuth, Mister Mike


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer