There are a number of medical conditions that can lead to Crohns-like symptoms and nonspecific inflammation in the colon -- UC, bacterial infection, etc. So there really is no one-size-fits-all test to nail down the Crohns diagnosis with certainty. Granulomas on biopsy says CD, but thta finding is not always present in Crohns. Scattered apthous ulcers are also a strong indicator -- but again, not every CD patient has them. Skip areas point to Crohns, especially as opposed to UC, but they can also show up in other conditions. In most cases a scope, coupled with clinical history (symptoms over time) and biopsies will say Crohns with very high certainty (or not), but this is a very individual disease, with different findings in the same patient over time, so don't be too discouraged that you still don't have a sure answer.
As for family and friends. it's your body, not their . . . and I don't believe that God is sending messages about your medical condition to others.
Hang in there... it too have gotten negative comments from family and friends. It can be hard to handle when you are trying to take care of yourself. Keep going to the GI, even if you don't have Crohn's you are experiencing some problems and they need to be evaluated. Just like Mike said it could be a number of things and it might take a while to diagnose. Someday your family will understand. let them know you do not feel well and want to make sure you are taking care of yourself.
I have learned to not let it bother me as much. it was difficult at first when others just dismissed my disease but now I have learned to deal with it.
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
indigosunrise, Sorry to hear your family members are doubters. It happens often with many diseases. If someone has not experienced it they cannot always understand and then they start to put the blame on the patient. Do not let that happen to you.
You did not make this up, you have a problem and yes it will show up eventually. Stay strong and take care of you. Dome here and vent anytime..........we are open 24/7. Kitt
Thanks everyone! The support here is awesome!
Jellybean I hope you find a doctor who will help you out soon! That has got to be frustrating! I am wondering what my GI will say today. At least she will have the notes to review from my internist (my internist thinks I have IBD, specifically Crohn's, but since the biopsies were negative for it, I don't think my GI believes I have anything). I will be glad when today is over! Sadly I am dreading this appointment more than I did the scopes!