Just want to vent...

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Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 2/4/2008 12:09 PM (GMT -6)   
I go see my GI tomorrow, even though nothing really came of my scopes, besides inflammation that they cannot pin point to anything.  Family members and friends do not believe anything is wrong with me and I can "feel" their disapproval regarding the appointment I have tomorrow.  I honestly feel they do not want to try to understand some of the symptoms and stuff I have--they blame it on something else and one friend even claims that God told her I would be ok and that I really don't have IBD.  I try not to tell anyone anything anymore because it hurts to not be believed.
Anyhow, if I really do have Crohn's, isn't it bound to show up ONE DAY?  Somewhere, sometime, somehow?? 
Anyhow, thanks for letting me vent.

Regular Member

Date Joined Mar 2007
Total Posts : 301
   Posted 2/4/2008 12:32 PM (GMT -6)   
Hi indigo,

I am really sorry to hear that the people that you are closest to are not being very understanding.Sometimes it is hard on loved ones to face or understand that you may have a chronic illness.You are obviously having symptoms,& you need to keep seeing your GI to get a diagnosis,whatever it may be,to get proper treatment.

Also,sometimes it takes awhile to get a proper diagnosis.It took me nearly 8 years to get dx'd w/crohns.I really hope that you get this all figured out soon,but in the meantime,hang in there & vent to us.Most of us understand where you are coming from.

Good luck & take care.I hope that you have a great day :)
Official Crohns DX-march 2004.Pentasa 4000mg,B12,Probiotics
         1 resection
Cardiomyopathy DX-may 2004.Coreg,Altace,Digitek,Lasix,Potassium,very low-sodium diet

Veteran Member

Date Joined Mar 2006
Total Posts : 1169
   Posted 2/4/2008 1:18 PM (GMT -6)   

There are a number of medical conditions that can lead to Crohns-like symptoms and nonspecific inflammation in the colon -- UC, bacterial infection, etc. So there really is no one-size-fits-all test to nail down the Crohns diagnosis with certainty. Granulomas on biopsy says CD, but thta finding is not always present in Crohns. Scattered apthous ulcers are also a strong indicator -- but again, not every CD patient has them. Skip areas point to Crohns, especially as opposed to UC, but they can also show up in other conditions. In most cases a scope, coupled with clinical history (symptoms over time) and biopsies will say Crohns with very high certainty (or not), but this is a very individual disease, with different findings in the same patient over time, so don't be too discouraged that you still don't have a sure answer.

As for family and friends. it's your body, not their . . . and I don't believe that God is sending messages about your medical condition to others.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 2/4/2008 1:43 PM (GMT -6)   

Hang in there... it too have gotten negative comments from family and friends. It can be hard to handle when you are trying to take care of yourself.

Keep going to the GI, even if you don't have Crohn's you are experiencing some problems and they need to be evaluated. Just like Mike said it could be a number of things and it might take a while to diagnose.

Someday your family will understand. let them know you do not feel well and want to make sure you are taking care of yourself. 

I have learned to not let it bother me as much. it was difficult at first when others just dismissed my disease but now I have learned to deal with it.

Good luck!!


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also have Arthritis, and feel like I am falling apart sometimes...

Veteran Member

Date Joined May 2005
Total Posts : 1362
   Posted 2/5/2008 9:50 AM (GMT -6)   
Hey, it sounds like we are having opposite problems, lol. My family believes me and is behind me 110%. It is docs I am having an issue with. Maybe we should combine resourses and then we could get some real help. Hang in there!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include:Lialda, Prednisone, Canasa, and Zofran

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 2/5/2008 11:13 AM (GMT -6)   

indigosunrise, Sorry to hear your family members are doubters.  It happens often with many diseases.  If someone has not experienced it they cannot always understand and then they start to put the blame on the patient.  Do not let that happen to you.

You did not make this up, you have a problem and yes it will show up eventually.  Stay strong and take care of you.  Dome here and vent anytime..........we are open 24/7. yeah

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Regular Member

Date Joined Jun 2007
Total Posts : 93
   Posted 2/5/2008 1:25 PM (GMT -6)   
I used to be in church where there was a lot of "positive thinking" and "spoken faith." I believe it is good to be positive and speak your faith out about situations, but it can be detrimental if it prevents you from seeking medical attention. I saw this too many times. And I even delayed getting my diagnosis because I just wanted to "believe" I would be okay until I landed in the hospital. I had been bleeding for months before this but didn't go to see about it. I ended up leaving that church and doctrine but not saying you should do the same.

Since these kind of people cannot be argued with, when I encounter them now I just say "yes, yes" but ignore most of what they are saying and do what I need to do.

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 2/5/2008 1:45 PM (GMT -6)   
"That's Nice" thats what I answer to those people offering comments that don't help. It's the punchline to an old joke, but it really helps to let you get past what they said.
There are people who understand. Even if it is just here that you find them. i found there are more understanding people out there than I expected. Don't be afraid to keep looking for them! The people you have now obviously either can't or don't want to understand. This can be for so many different reason...so don't try to figure them out. Just know that you know yourself and what you are feeling.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Regular Member

Date Joined Nov 2007
Total Posts : 497
   Posted 2/5/2008 2:18 PM (GMT -6)   

Thanks everyone!  The support here is awesome! 

Jellybean I hope you find a doctor who will help you out soon!  That has got to be frustrating!  I am wondering what my GI will say today.  At least she will have the notes to review from my internist (my internist thinks I have IBD, specifically Crohn's, but since the biopsies were negative for it, I don't think my GI believes I have anything).  I will be glad when today is over!  Sadly I am dreading this appointment more than I did the scopes! 


Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 2/5/2008 8:05 PM (GMT -6)   
Please keep us updated. I hope you get through the appointment OK -and perhaps she'll have some helpful information for you.

Good luck,

Bulldog Fan
New Member

Date Joined Oct 2007
Total Posts : 15
   Posted 2/5/2008 10:15 PM (GMT -6)   
I hope your appointment goes okay. I understand your frustration. My sister has IBS and she said to me, "Now you know what I go through." Another time she said, "You might as well get use to it. You'll be dealing with it the rest of your life." I know IBS is terrible, but I don't quite think the risk of surgery and the other complications compare. Hang in there. This group of folks in this forum are so supportive and informative. I hope you don't have Crohn's, but if you do, this is the place to come for support and info!
Diagnosed CD 10/9/07.  Meds: Lialda 2.4gm, Predisone 40mg (decreased down to 20mg), Effexor XR 75 mg

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