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kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 2/6/2008 6:31 PM (GMT -7)   
Is daily bloating normal? No matter what I eat, by the evening I am a balloon ready to burst. It is a good thing my husband loves me. I don't think he knew what he was signing up for when he married me. Thank goodness that was six years ago. I also am very tired. I just started prednisone 30mg/day. Will prednisone help with the fatigue or just inflamation? You guys are all so educated and I am learning so much from your posts. I can also relate to Crohnie8. I am struggling with weight gain, not loss. I thought that might be the one benefit to this disease.
 
Thanks,
Kgirlie
Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 2/6/2008 7:31 PM (GMT -7)   
The prednisone should help with the fatique as well.  In fact you may want to take it with breakfast so that it doesn't interfere with sleep.
Sj

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/6/2008 8:17 PM (GMT -7)   
you might feel tired on pred if it effects your sleep, but you certainly feel more perky. I have bloating, but I also am constipated. glycolax and fiber suppliments helps that.
welcome, keep asking questions! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Mr.Beebe
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 2/6/2008 8:25 PM (GMT -7)   
Speaking form personal expirience. I get very bloaty and gassy when I consume starchy or fiberous foods. This includes fresh veggies, all grains, and sugars. The Makers diet has not only helped my to eliminate bloating but as also helped with all of my symptoms. Just my $ 0.02.
21 years old. Student. Diagnosed 1999 at age 12. Tried every med and therepy available. Currently no meds and feeling good with diet restrictions.


Elisa W.
Regular Member


Date Joined Jan 2005
Total Posts : 55
   Posted 2/6/2008 9:24 PM (GMT -7)   
Hello Hello! Yes, the makers diet is the ONLY thing that has helped me! Everything you are saying is the same for me, bloating, gas, fatigue... right now all I eat is water, meat, some veggies, berries, limes, lemons, grapefruit, almonds and some other nuts in small quantities.

I have to avoid most grains including wheat, oats, barley, rye I think. I can eat rice...there is a different kind of sugar in it. I avoid dairy, though goats products are easier to digest. I avoid coffee. The main thing that causes bloating for me is onions...even just the slightest bit...just onion powder means I am bloated for a day or two.

the best thing to do is either read the makers diet or just clean out your system and after that is done, start your self eating one thing a day something that doesn't bloat you...like meat. if you aren't bloated after maybe two days of this, then anther thing, like avocado, or raspberries, or grapefruit or something that I have listed above. When you find things that don't bloat you keep them on your list. dont add two things at once, and don't add things like sauces..you have to go very very basic here..one thing at a time, one new grain, one new form of dairy, one new vegetable, one new spice...its rough..but worth it.

even strange things like red wine vs. white wine affect me differently.

I hope this helps..(get the book right away!!) :-)
Diagonosed and operated on January 10th, 2005 in Santiago, Chile during my last semester of Grad school. 


Golfster
New Member


Date Joined Jan 2008
Total Posts : 9
   Posted 2/7/2008 2:57 PM (GMT -7)   
Have you seen your doctor lately?  It's important to determine whether this is gas build up or blockage caused by narrowing of the intestinal tract.  I started bloating about three years ago.  In my case, it was narrowing.  The prescribed medication will be based on the cause or suspected cause.
 
 
 
Male 51, diagnosed at 16.  Humira, asacol, (entocort and azasan winding down)

kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 2/7/2008 5:05 PM (GMT -7)   

Thanks for the advice. I have been seeing my doctoer and she says it's a flare and put me on prednisone. The maker's diet keeps coming up, so it won't hurt to try it. I love that you guys can all relate to me. It helps dealing with this disease a lot easier.

Kgirlie 


Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


crohnnie1974
Regular Member


Date Joined Jan 2007
Total Posts : 52
   Posted 2/8/2008 8:20 PM (GMT -7)   

hey kirgirlie

bloating is a daily challenge with crohns, it doesnt matter what you eat or drink, the inflammation is here to stay.   i will only consume liquids if i am really bad and still get bloated.  prednisone can affect everyone differently, i was on for almost a year and did not gain a pound.  when going for my remicade treatments, no one beleived i was a crohns patient, i am slim and always have been.  everyone reacts differently....i resemble a malnourished child at times due to the swelling of my abdomen, its normal and will not go away.

the best thing for this is to ice your belly for about ten minutes at a time and this will help with the swelling, also if you are having several BM's a day.  if you are the opposite, try heat, this will help to get everything moving.

just be patient and let the pred do its thing, ask lotsa questions of your GI doc and dont be afraid of the disease.  you control your body, it doesnt.


diagnosed in 2006, had crohns for 10 years
area affected illeum, small intestine, 
asacol, prednisone 40mg, Imuran, small bowel resection 2006.  just diagnosed with SLE this year, still waiting to see a rumey.


crohnnie1974
Regular Member


Date Joined Jan 2007
Total Posts : 52
   Posted 2/8/2008 8:22 PM (GMT -7)   
I have been off prednisone for about two weeks and having some side effects such as cramping, several BM's a day and loss of appetite.  I am also on remicade but it does not seem to be helping much.  I have lost the six pounds i gained on pred, in only ten days.... and am getting worried that my hard work over the year is pointless.  How long after pred does your body start producing again?

diagnosed in 2006, had crohns for 10 years
area affected illeum, small intestine, 
asacol, prednisone 40mg, Imuran, small bowel resection 2006.  just diagnosed with SLE this year, still waiting to see a rumey.


kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 2/8/2008 10:06 PM (GMT -7)   
Thanks for all of the advice. Today was a rough day, but it could've been worse. I will give the prednisone a chance. It has only been a week and I can't wait until I feel better. Thanks for the support!!!!

Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  

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