IBD/Ally's Law Awareness Day in Illinois

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ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/7/2008 12:44 PM (GMT -7)   
Please let me know if anyone in IL is interested in participating in IBD/Ally's Law Awareness Day to be held April 11th in Springfield.
 
Thanks,
Lisa

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/7/2008 7:48 PM (GMT -7)   
I'm not in IL but if I was I'd be interested. Let me know if you do any sister legislation in New England.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/8/2008 6:12 AM (GMT -7)   
Ally's Law is currently in legislation in MA and several other New England states. Go to the Advocacy Center at www.crohnsandme.com and you can see which states have Restroom Access Act legislation. If you have any questions, I'd be happy to help.

ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/28/2008 6:28 AM (GMT -7)   
Just a reminder...in case anyone is interested in traveling to Springfield or who lives there and wants to attend...

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 2/28/2008 12:46 PM (GMT -7)   
i was refused access to the bathroom at a sporting goods store once... He said "we don't have a restroom" I asked, "where do you and your employees go?" he said, "we hold it!"

I didn't even know how to react....what a jerk! i wanted to drop em' right there in the store and let one loose, but was afraid i would get sued!

I mean, i understand that it is a private business, but why did he have to pretend they didn't even have a bathroom? that kind of pompous arrogance drives me nuts!
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/28/2008 7:32 PM (GMT -7)   
It's really inexcusable. That's how I felt when the store manager wouldn't let my daughter use the washroom when she was obviously in tremendous pain.

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/29/2008 6:12 AM (GMT -7)   

Lisa,

Were you able to get a hold of Howard at GIRF (gastro intestinal research foundation) about setting up a table?

 

 

 


Erica
Crohn's and Ostomy in 2004


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 2/29/2008 6:29 AM (GMT -7)   
Erica,
Thanks for asking. I haven't talked to Howard yet. Will you be seeing him soon? Could you ask him? If not, I'll send him an email or call him.
 
Lisa

ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 3/1/2008 9:03 AM (GMT -7)   
We are going to be setting up meetings between the attendees and their respective legislator, so I will need to know who will definitely be attending. We will most likely be taking the train to Springfield Friday mornining and coming back Friday night. Ally will be speaking as well as several others. We already have at least 4 groups who will have tables set up and it looks promising that the Governor will be available as well.
 
If you are interested or are definite about going, please let me know and I will get more specifics to be sure your legislator is available to meet.

ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 3/3/2008 10:53 AM (GMT -7)   
We have several groups who will be exhibiting and legislators are interested in meeting with their constituents. It's very exciting. Please let people know about this important opportunity to spread awareness about IBD.

ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 3/4/2008 9:22 AM (GMT -7)   

Erica,

Could you please give me the contact information for Howard at GIRF if you haven't talked to him yet?

Thanks,

Lisa

 


ally's law mom
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 3/10/2008 5:42 AM (GMT -7)   
There's still time to register. Please let me know if you are interested in attending and meeting with your legislator.

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/13/2008 10:52 PM (GMT -7)   
Hi Lisa,

How's the registration going so far
Erica
Crohn's and Ostomy in 2004


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 3/13/2008 10:59 PM (GMT -7)   
I would ask that you please take your discussion of this cause elsewhere.

Forum rule ten:

10. No posts of an overtly political or religious nature OR posts promoting advocacy of particular personal, medical, legal, religious, political, or non-profit causes. The forums are intended for offering mutual personal support. Debating controversial subjects should be taken elsewhere. Limited religious references are allowed (ie. "my prayers are with you" or a brief quote as part of a larger post), but the forums should not be used to convert others.

This thread is advocating a political and a medical cause. I'm sorry, folks. I think it's a worthwhile cause, but HW isn't the place to discuss it.

Thanks,

Ivy.
Co-Moderator Crohn's Forum.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 3/14/2008 10:00 AM (GMT -7)   
I have a card sent to me by the Crohn's and Colitis Foundation that says,
 
 "I CAN'T WAIT"
Thank you for understanding.  The bearer of this card has a medical condition that requires him/her to use bathroom facilities urgently.
 
Thank you for your cooperation.
Crohn's and Colitis Foundation of America
 
 
On the back of the card is my name and Central Florida (I live in the Tampa Bay area).  So, if they wouldn't let me use their bathroom with this card, I'd remind them of the American's with Disabilities Act!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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