I've had RA for roughly 23 years and had my first Remicade infusion last September. Throughout the week following the infusion, I started to feel achy, tired and eventually had flu like symptoms...I was taken to the ER and things went downhill from there. My blood pressure bottomed out and I stopped breathing. 10 days later I got out of the hopital, 6 of those in the ICU. The belief is that I had a severe reaction to the mouse protein used in Remicade and after a lot of research, I do believe that. I used both humira and enbrel before with no adverse side effects but they didn't help my RA. Orencia is where they want me to go now but I'm not quite ready mentally for another infusion. I hope this information helps.
One more thing Beachy -- my allergist prescribed me Allegra in case I got itchy. She said it works better tham benadryl and is non-drowsy -- but to also take the full course of steroids. I never took the Allegra so I don't know if it works. Seems you took all my hivey itchiness because I had none! Thank you for being so thoughtful!
I am so sorry you are having such troubles! Shame on your Dr for not wonderiing if Humira is time-released -- which it clearly is with dosing every 2 weeks! All my Drs are with a good teaching hospital and I think this makes them a little more open to researching and new thinking -- and talking to other Drs.