Does anyone have second thoughts on starting remecaide treatment?
never-no regrets - 50.0%
wish I started a long time ago - 0.0%
I don't like it - 8.3%
I can't tell any difference - 16.7%
thank heaven for remicaide - 16.7%
not for sure - 8.3%

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New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/7/2008 6:04 PM (GMT -6)   
Scared.... I have had crohns disease since 1992, my first year away in college. So I have had crohns for 16 years. These last three years have been my worst, with all of the meds: pain pills, fllagyl, levquin. And I am still in constant pain daily. My doctors have offered me to start Remicaide. And for some reason or another it scares me. Is there anyone out there that has or is new to the "Remicaide experience?" I have reada
about it, but I'm afraid. Please inform and encourage truthfully. Thank You In Advance!

Veteran Member

Date Joined Apr 2004
Total Posts : 2284
   Posted 2/7/2008 6:18 PM (GMT -6)   
I have had CD since I was 12 and this is the only thing that works for me. Good luck on your decision.
We can respond to irritation with a smile instead of scowl, or by giving warm praise instead of icy indifference. By our being understanding instead of abrupt, others, in turn, may decide to hold on a little longer rather than to give way. Love, patience, and meekness can be just as contagious as rudeness and crudeness.


Please allow HealingWell to continue helping others by donating:

Dx'd with Crohn's at age 12. Symptoms since age 5.

Learning to live with this Disease rather than be its victim after 36 years.

Veteran Member

Date Joined Jan 2003
Total Posts : 1668
   Posted 2/7/2008 6:23 PM (GMT -6)   

Remicade is scary, but getting less scary as time goes on and so many patients realize wonderful quality of life on it. My Aunt took it for years and years for Rheumatoid Arthritis long before my Daughter did for CD. She was actually the one who got us more comfortable with it.

My Daughter was diagnosed just as she was getting ready to head off to College. Her first four out of five years of College was a health nightmare on Pentasa, Rowasa and rounds of Prednisone. It wasn't until she was about 22 that we finally agreed to try Remicade. Holy moley, what a difference in health!! She actually got to enjoy her final/5th year of College.

Coming up to almost 5 years that my Daughter has been on Remicade. It has served her very well for most of the 5 years, only the past year it has been starting to lose its effectiveness and the dose has been doubled on and off, mostly on of late.

Remicade has been so successful for CD that they are using as first line med instead of last line in lots of cases. Many IBD children are also finding wonderful health on it.

No regrets starting and using Remicade in my Daughter's case. We are one of the cases that we wish we had started sooner, but fear stopped us from doing so. We have been thanking Heaven for it!!

ally's law mom
Regular Member

Date Joined Feb 2008
Total Posts : 35
   Posted 2/7/2008 6:23 PM (GMT -6)   
My daughter has been on Remicade for 4 or 5 years now. She feels so much better!

New Member

Date Joined Feb 2008
Total Posts : 2
   Posted 2/7/2008 6:45 PM (GMT -6)   
Thanks to all for the encouraging information.
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