You know when you go for your GI checkup and you take a list to remember all the changes you've been through for the last 6 weeks and you're doing pretty good, you come to expect a cordial visit. I even risked literally whispering the word "remission" today!
Well this is a rant so stop reading now if you want! My GI's rating dropped from a 10 to a 5 today when I was patronized!
She checked the "rash" that she wanted me 6 weeks ago to have a "fungal scrape" done by my Derm. Which I might add she totally forgot she said. Now she is under the impression that it is psorasis again. Of course this is after the GP has given me 2 courses of anti-fungal.
The saga continues...Then I asked her if my GP (in the same practice) had discussed with her the "sensitivity" issues I had been having with benzene & benzyl alcohol (a preservative found in all kinds of things including drugs & injectables). She said she had and that intolerance to Benzene/Benzyl alcohol does not cause Crohns. Well, no crap...that wasn't what I had conveyed to the GP in the first place. He fully understood what I conveyed ....she just didn't listen to him! The only reason I had discussed the issue with the GP is because Benzene/Benzyl alcohol is in some forms of Tylenol which I've developed yet another intolerance for. She also said she wasn't "qualified" to determine if I had a sensitivity to it but in her opinion, "I know my body best and if it has responded well since I cut out the Benzene containing products that I should continue being mindful of it."
Geeeez....the stuff is in my B12 injections and is commonly found in saline IV flushes. If it causes my inflammation levels to sky rocket ...wouldn't you think it should be on my chart as an agtagonistic spirit at least! Not to mention when I'm in pain...Tylenol doesn't do any good if you can't keep it in you long enough for it to work! Hisssssss! Okay, Okay I'll admit it's in cigarettes too and I haven't quit yet. But even reducing about
12 products I use often I could tell a HUGE difference in how I felt not to mention I'm having a solid bowel once a day for the last 4 weeks! Now, that is results and is cause for applause!
I knew the visit was over when she asked me to hop on the table to check my abdomen and asked me did I need any refills. Her attention span left the room about 15 minutes prior to this point and she had to make sure she stayed on schedule for the next patient. So I told her I had one refill of Lexapro left...this translate into 1 month's supply. Not only did she not realize I was still on it, she assumed I said I was totally out and gave me a new Rx and a bunch of samples Now here's the kicker. I've been on Humira for oh about several months now so she wants to make sure to hand me the introductory literature from the Humira manufacturer before I leave in case I have any questions. At this point I was so steamed I didn't even bring up my GP's bone density report and the fact I have been put on Boniva because of the prednisone dependency!
So I guess this is just another day in the life of a Chronnie. As I'm walking out the door of a doctor's office who is a known HUGE Carolina basketball fan I take pride in the fact that I wore my Duke basketball jacket to the visit today and the only comment she could make after Duke beating the crap out of Carolina last night was, "I see you are celebrating today".
Thanks for listening!