What is considered remission??

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nikki0294
Regular Member


Date Joined Sep 2007
Total Posts : 219
   Posted 2/7/2008 10:33 PM (GMT -7)   
I went to a new gi doc for a fresh approach to my crohns which was diagnosed Aug 2007.  I am still on pentasa and entocort and my stomach constantly rumbles loudly and I still have diarrhea about 4-7 a day small amounts.  I am so FRUSTRATED with this disease.  I have to have a polyp removed from my endometrium next week so my old doc told me to wait to start the 6mp until after the surgery.  What should I expect from remission???  Should the stools be perfectly formed with no rumbles and no gas??? 
 
thanks
Chris

athensgirl
Regular Member


Date Joined Apr 2007
Total Posts : 254
   Posted 2/8/2008 1:45 AM (GMT -7)   

Hi Chris,

I believe I am in remission, but that doesn't mean I don't have diarrhea sometimes, or noises from my stomach.  I just don't have pain in my stomach anymore or nausea which was a big problem for me.  Sometimes I have diarrhea but nothing I cannot control, it's about once every other week.  If I am having a bad day, I also get grumbling in my intestines and soft stools, but if I watch my diet for 1-2 days, everything is back to normal.  When I'm having a bad flare, my stomach hurts and I hear really loud noises (like when you flush a toilet!), and of course my visits to the bathroom are approx. 8-10 times with mucus.  I never experienced fever or joint pain with my Crohns, but I get this awful feeling like I'm having a really bad stomach flu.

I'm on Entocort and Pentasa, and I don't want at this point to take 6mp, although my doctor says it's my next step, because at this point, my life is very normal, I can do whatever I want, work full time etc, despite some short periods of not feeling good.

So, try not to worry too much.  If you feel it's something you cannot control, talk to your doctor.

Have a wonderful day,

Christina tongue


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 2/8/2008 7:15 AM (GMT -7)   
People without crohns do not have perfectly formed stools, their stomachs still rumble, and they still have gas!!!! My husband is living proof! :)

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/8/2008 7:24 AM (GMT -7)   
Well remission is different things to different people. In my case it is formed stools and no or minimal other symptoms most of the time. I may have a miniflare once or twice a month (a day or less) resulting from something I ate or who knows what. For someone with more severe disease, remission might be a significant reduction in symptoms to a more tolerable level that allows them to carry on normal activities. But in general remissiion does not mean total absence of any disease activity at all, even though that is a good goal and one some patients do achieve. Bottom line for me is that if my disease doe snot interfere with my life on anything like a consistent basis, I consider that remission.

rubixqueen24
Regular Member


Date Joined Dec 2004
Total Posts : 162
   Posted 2/8/2008 1:04 PM (GMT -7)   
I was really sick for about 9 months a few years back. I was 100lbs and everytime I went to the bathroom sometimes up to 40 times a day I cried because it was sooo painful. I couldn't see myself ever getting better. That was 2 years ago. I now am in remission. I use the bathroom 1-2 times a day with no pain and feel very normal. My stools do not look normal, and I do have gas but other than that perfect. I guess what I am trying to say as even though we will all experience are troubles with the disease there is always light at the end of the tunnel and to focus on that. I think what made me better was moving back to where my family was having that support and getting a freaking awesome doctor that had a very positive outlook. Remicade was my savior and a low dose of aziothioprene!
Good luck with the new doc and getting to remission. It is possible.
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