I have been on the Humira for almost six months now ...I take two shots every other week. To date I have noticed a few positive signs....I have gained weight (maybe 8 lbs now) and for the first time in 2 years need to rethink my eating so as to not gain too much. I have a hrad time calling what i have diarrhea anymore....I still make a lot of trips, but things have firmed up a lot. My absorbtion is much better and i am no longer considered anemic. No more bleeding, haven't seen any blood (except when I hit my finger with the hammer) in 4 months. So those are the good things...on the negative....I still go a lot,... good days less than 10 trips....bad days over 20. The cramps when I go are so severe they cause nausea and at times vomiting. For the first three or four days after the shots I have major trouble sleeping and my arthritis kicks into overdrive. My movements have become more and more explosive in nature and harder to control.
So this visit I am thinking it is time to bite the bullet ...get of the Humira for 8 or 10 weeks and re-enter the world of Tysabri. I have a friend who is under going Iron infusions at Johns Hopkins and she says last week and this week the ward was filled with folks getting their dose of Tysabri....I would guess we will hear more on this board soon as to the effectiveness.
So just some open thinking and looking for some feedback.
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade. Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old