CD as a result of a colonoscopy

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3Whippet
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 2/8/2008 9:22 AM (GMT -7)   
I was recently diagnosed in Dec 07 with CD as a result of a colonoscopy. I did not have any symptoms, but elected to have the procedure because my very dear friend was diagnosed with colon cancer. I was really shocked when the results came back and grateful that I did not have cancer. I presently have it in my rectum and am on Canasa 1000mg at bedtime. My docs have been less than imformative - just delivered the news and offered nothing which also shocked me. Is anyone out there that has had a similar circumstances - have found this site which has been a blessing - so much info. I would assume my case is mild, but what I would really like to know is where am I headed with all of this. My family doctor said, "you don't look like a person with CD".

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/8/2008 9:37 AM (GMT -7)   
What is your age? Chances are you have a fairly mild case, and it may remain that way. However as you can tell from scanning this forum symptoms and severity vary widely from patient to patient. Your good fortune in getting a prompt diagnosis before you experienced major symptoms will likely help in the long run -- less damage perhaps. You do not note what kind of doctor did the scope and made the diagnosis, but it's generally a good idea for Crohns patients to find a good gastroenterologist, especially one who treats a lot of inflammatory bowel disease cases, and stick with him/her long term. Crohns is really not something that should be managed by a general/primary care physician. Best of luck!

3Whippet
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 2/8/2008 10:15 AM (GMT -7)   
Thanks MikeB. I am 54 and I did go to a gastroenterologist. I have had the Promethius test and it is positive for Crohns, and I have seen the pictures taken during the Colonoscopy. So far my relationship with this group has been less than wonderful. No info, and the only time I saw the actual doctor was 3 minutes before they put me under for the procedure. It was actually the Nurse Practioner that delivered me the diagnosis. My family doctor said that was very inappropriate which I have to agree with him. All of the info that I have read never mentions a mild case, so I am assuming that this is a very progressive disease. Both of my children are Type 1 diabetics my daughter dx at 12 yrs. and son dx at 10 yrs., my daughter has no thyroid, my brother has RA and I have osteo as well. I have learned that Crohns has a strong heritary factor, but I do not know anyone in my family or my husbands family that has Crohns or Type 1 diabetes. It is a mystery to us. Thanks for your help and have a great day!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/8/2008 12:28 PM (GMT -7)   
You may find it interesting that there are two age ranges where Crohns is most commonly diagnosed -- adolescence to young adulthood, and a second, though smaller, window right around your age. And no, it is not necessarily progressive. Dr. Hanauer of the U of Chicago, says there is a subset fo Crohns patients -- which he estimates at about 20% -- who tend to have moderate stable disease over time. The progression seen in a lot of other patients is really related to the complications . . . longer disease leads to more fistulas, fissures, strictures, etc. But if there's one central and striking thing abvout Cronhns it is that no two patients are identical and everyone's disease course, severity, etc. can be very different.

3Whippet
New Member


Date Joined Feb 2008
Total Posts : 8
   Posted 2/8/2008 12:52 PM (GMT -7)   
Thanks for the info. After I was diagnosed and the more research I did, I had very subtle symptoms which I contributed to just getting older or I must have eaten something that did not agree with me. Perhaps I am one of those 20% which would really be a blessing - thanks, I will have to do some research on this. Do you happen to know any good sites? Any help would be appreciated. Thanks again. . . .
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