Out of the hospital, what a train wreck

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Sarita
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   Posted 2/8/2008 5:48 PM (GMT -7)   
Ugh, that was a horrible experience. I went on Wednesday after my PCP advised me to go due to episodes of syncope and arrhythmia. I had 2-3 EKGs done, which were totally bizarre-looking and more characteristic of a patient having a heart attack rather than a 28-year-old, physically fit woman. So I was admitted to the cardiac monitoring unit. Eventually it was determined that the arrhythmias and electrical abnormalities were due to electrolyte disturbances secondary to dehydration, which was secondary to diarrhea. The absolute incompetence of the medical team, however, resulted in absolutely no treatment for my electrolyte disturbances other than a sugar-water IV and a bunch of completely unnecessary testing for structural heart damage when they should have been checking more important things like, oh, I don't know, my completely malfunctioning kidneys or intestines! When my nephrologist came by and agreed to order some kidney tests, the nurse ordered the medical assistant to give me a Foley catheter. Which she inserted into the wrong orifice and then proceeded to pull it out and stick it back in the urethra! Which is a complete no-no since it needs to be absolutely sterile! It was also improperly placed in the urethra, causing so much pain (I've had Foleys before - they are not pleasant but should not cause such paralyzing pain that you can't move or talk) that I finally just had to take it out.

Turns out later I realized it was not entirely necessary to even HAVE a Foley catheter placed. Then I was given the option at that point to stay for further testing or leave, so I left. Which probably is why I am still alive!

What a miserable, horrible, ridiculous experience. It is just scary, the complete breakdown of communication in hospitals...
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ALI9
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Date Joined Jan 2008
Total Posts : 95
   Posted 2/8/2008 6:05 PM (GMT -7)   
I hear you I to have had misserable experiences re: cardology and hospitals, good luck to you !

broomhilda
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   Posted 2/8/2008 6:22 PM (GMT -7)   
OMG Sarita...I'm soooo sorry that this happened to you! I would have checked out too! However, do go for a follow up with the nephrologist though! Something is "out of balance" and it may not just be your electrolyes!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Ides
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   Posted 2/8/2008 6:40 PM (GMT -7)   
Sarita - I recently signed out AMA when they wanted me to stay overnight for cardiac observation. My problem was NOT cardiac in nature as proven by their own tests. I knew I was having a medication reaction [Humira]. When I asked what they were going to do to treat my problem, there was no plan and no plans to call in someone that would know how to deal with it. I left fearing that my condition would worsen if I did not get on some prednisone.

As to your problem...I think it is time that your doctors get off their collective rears and start looking into your kidney issues ASAP. This saga has gone on too long. I am so sorry it is taking so long to get any answers. I remember that trip you took to Mayo and your frustration then...and OMG this series of events these last months are worse. Hang in there, chica!
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CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


gumby44
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Date Joined Nov 2007
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   Posted 2/8/2008 7:23 PM (GMT -7)   
Sarita, I'm so sorry to hear this whole story. You know you need to get whatever tests are needed for your kidneys. Do you need different docs, or was it just incompetent hospital staff? I have no advice to offer other than that I really care about you, and hope you get some answers and relief soon!!!!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


FitzyK23
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Date Joined May 2005
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   Posted 2/8/2008 7:36 PM (GMT -7)   
Ditto Sarita!! So sorry you had to endure that h-e-double hockey sticks. It must be even scarier being a med student and really knowing everything that is going wrong. Where I live we have a couple kidney centers. Is there anyway you could self-refer to something like that? Yikes, I hope they figure you out asap. Whats going on with school? I had to get an IV the Sunday before the super bowl because I had a super nasty flu and missed a few days of class and fell behind but I am finally back on track.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


praying4healing
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Date Joined Dec 2007
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   Posted 2/8/2008 9:45 PM (GMT -7)   
wow! i cant imagine!!! i would've checked out too! i hope u plan on writing a very descriptive letter!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
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njmom
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Date Joined Apr 2006
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   Posted 2/8/2008 9:54 PM (GMT -7)   
Sarita, you deserved better. I hope you get some answers soon...

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 2/9/2008 12:58 AM (GMT -7)   
Hey sweeties,
Thank you for the collective outrage, it makes me feel less alone. I saw my PCP today, who was shaking his head the whole time as I told him the story...and then, bless him, he gave me a script for Cipro that I will use to fend the off the urinary tract infection that has already started presenting after that ridiculous Foley drama. He was also proactive enough to call my dean at school this morning, and sent a letter in support of any accommodations that I might need, especially concerning this latest round of final exams coming up. I am going to rearrange a few things but ultimately really hope to just push through with this quarter and pass, which is do-able at this point but still won't be easy. Luckily the dean and my professors have been very supportive and I'm about to get approved to have our lectures videotaped in case I miss them, which will help immensely.

I had two hospitalists, a cardiologist, and my nephrologist taking care of me at the hospital. The hospitalists were the biggest bunch of morons, but the cardiologist and nephrologist were fantastic. The nursing staff was also half-and-half, as were the medical assistants. But the communication among them was just a total cluster-you-know-what. I think I've crossed "hospitalist" off my list of potential specialties. That was depressing.

I do have a follow-up with my nephrologist when he comes back from vacation in a couple of weeks. He is a really great doctor and I'm lucky to have him; he came over to the hospital for a consult with me and was very reassuring. The plan is to finish up those urine tests and only then consider a renal biopsy, which has a lot of complications of its own, so will try to hold off if I can. But I will get it done if I need to. He is also adamant about me seeing a tropical medicine specialist. We'll see.

I have had drenching night sweats for the past couple of nights and want to scream when I wake up in a pile of nasty, wet pajamas. That is why I'm up at the moment - I can't take the sweats anymore!!!

Thank you again my darlings! I hope you are all feeling good. Keep me updated.
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FitzyK23
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Date Joined May 2005
Total Posts : 4219
   Posted 2/9/2008 8:13 AM (GMT -7)   
Sarita- if you see a tropical medical specialist let me know how it goes. My husband has some pretty bad IBS that doctors have decided is not crohns/colitis or celiac or any of the usual things. But I just think his symptoms go beyond IBS. He lived in Asia for 7 years and traveled extensively to some very very rural and poor areas. I often wonder if he picked something while over there. Granted he has been back for almost 10 years now (boy are we getting old) but that doesn't mean that something could still be living in there. He remembers having the issues when he lived in Singapore but he could have still picked it up while traveling India or something.  I would love for him to get to see some kind of foreign parasite specialist but no one here has suggested nor was I even sure they actually existed lol.


26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


stkitt
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Date Joined Apr 2007
Total Posts : 32602
   Posted 2/9/2008 8:27 AM (GMT -7)   

My Dear Sarita,

Hey there my friend, advocate for you or call me and I will advocate for you................

Are they half baked at that hospital?  Reinserted a Foley........I would have ripped it out of the bimbos hands and kicked he/she to the curb.

They do not know how to interpret a ECG for hypoK+.......... On the ECG, the QRS complexes begin to widen when the serum potassium drops to about 3 mEq/L, the ST segments may become depressed, and the T waves may begin to flatten. The U waves also begin to increase in size, becoming as tall as the T waves. Send them back to class.

Alas they all hate to see me coming because I always want to see my own ECG tracings.............
My best advice to you is stand up for you.  I know it is really hard when you are sick so please know I understand and I am sorry you had to go through this.

Hugs
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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jodyisme
Regular Member


Date Joined Dec 2006
Total Posts : 70
   Posted 2/9/2008 5:42 PM (GMT -7)   
stkitt, why is that? they (any med pros--dr- nurse etc)hate it when i ask to see the results. i tended to my granma, mom and my dad and became quite proficient as a nurse and able to read many tests from cardiac to cancer. and almost to a one, they hate to be asked.
 
most want to breeze in and say things look fine and breeze out. the thing is...as you know...test results, esp blood tests, only show more to look for (or not) and also need to show a pattern to be watchful of. (as in WBC may be low ok but if its a pattern of dropping, there is a issue)
 
i dont do it to question them, i do it for myself and my own knowledge because who is gonna be there to tend to them but myself? no one.  i need to know these things.
 
i wish more professionals would not consider us uneducated, ignorant, and that they indeed walk on water when no one is looking. we deserve to know about our illnesses and bodies. we have the right to ask any question, to say stop--hold on! we deserve the dignity as a human who has a physical problem.
 
and more of the pros know less than i have learned and that continually shocks me. how to give meds, how not to. when to flush a site and when not to. sterile techniques. how did i learn about IVs? a rn stuck one in my dad once, said watch this im busy and left! boy, did i learn quick. burned up the library card to read all the books on things.
 
sarita, next time please dont feel bad about saying hold on there! that is wrong! it is your body and your consequences when something goes wrong due to negligence. esp a cath! with your kidneys already acting up...its your right to talk. hug**** bless your heart.
 
that is the #1 thing needing changing in the medical society. i have been told "dont question the dr--dont question the chart"more times than you want to know. fine and dandy, until someone dies because i didnt speak up. (ie, dont give demerol push to a cancer patient with x and y vitals altho the nurse did it only once and i almost came unglued at her) is the chart biblical in proportions? i think not. do you think they charted that person messed up your cath? i seriously doubt it. would they chart you asking? im almost positive they would.
 
speak up! its your right!

broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 2/9/2008 10:55 PM (GMT -7)   
I have come to the conclusion that all doctors hate patients with analytical thought processes and they hate it even more when you try to get them to "think outside the box" and use their God given minds beyond the conventional norm!!!! Which I might add "the conventional norm" does not apply to most patients with auto-immune diseases! Sorry Sarita...had a bad visit with the GI this week too! Glad to hear you're doing your follow up...keep us posted!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 2/10/2008 8:18 PM (GMT -7)   
Good God! I thought I had had a couple of bad hospital trips, but that one is just off the scale..
Me thinks I smell malpractice suit in the air.

Matthew
Please tell me that is not the ONLY hospital available to you.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/10/2008 11:43 PM (GMT -7)   
I should have done a lot of things differently. I should have asked what, specifically, were the EKG changes that were so "worrisome." I should have insisted on having a consult with my GI instead of letting them run around like chickens without heads, trying to figure out what to do with me. I should have had a written history prepared for them so I didn't have to repeat it 23894 times. I should have told them not to run any silly tests without telling me ahead of time what they were running. I should have gone to another hospital, period.

Yes, there are other hospitals in the area; I should have gone to the major teaching hospital where my GI practices, or the other one where my nephrologist practices. Next time - if there is a next time - I will be prepared to do that.

If anyone wants to see how a full history should look, let me know and I'll write a prototype. Anyone with a complicated medical history should have one for such occasions.
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gumby44
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Date Joined Nov 2007
Total Posts : 4101
   Posted 2/11/2008 12:16 AM (GMT -7)   
Hi Sarita,
It is soo hard to advocate for yourself when you are feeling so sick. Try not to "should have" yourself too much. I know you probably wanted to give the hospital staff the benefit of the doubt and went along with stuff that in retrospect, that you shouldn't have. But, I guess you just have to learn from it and move forward. I hope you are feeling a little better.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 2/11/2008 10:59 AM (GMT -7)   
Sarita said...
If anyone wants to see how a full history should look, let me know and I'll write a prototype. Anyone with a complicated medical history should have one for such occasions.
That would be great!  I'd really like to see that, when you get a chance.  Health and school come first, though.
 
I'm sorry that you're feeling so lousy and had such a bad hospital experience.  I have nothing helpful to add to the discussion, but I hope things get better for you soon!

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/11/2008 11:20 AM (GMT -7)   

jodyisme

My post was my own personal thoughts and not a slam against anyone as Sarita knows my background and I try to support her with a bit of humor.
I am a CCRN 26 years experience and managed the ER and Respiratory Care..........thus they hate to see me coming comment.  They were my own staff. devil
It is very hard to be a patient when your in your own ER.  So please do not misunderstand my post.
Thanks
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/11/2008 11:22 AM (GMT -7)   

Dear Sarita,
Of course you were sick, and when your the patient it is hard as we know to much and that can be a hazard too.  I am just glad your doing better and stick to the books, you are going to be a brillant physician someday and I would be honored to work next to you. :-)
Gentle Hugs

Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


FamilyGuy
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Date Joined Jan 2004
Total Posts : 3310
   Posted 2/11/2008 2:07 PM (GMT -7)   
Wow...I'm don't know what to say. I'm glad you're out of there. I hope you can find some answers...and a better hospital. :-)

Thoughts and prayers are with you,
Jon,  Co-moderator for Crohn's Disease and Depression forums
 
"The man who insists upon seeing with perfect clearness before he decides, never decides. Accept life, and you must accept regret." -- Henri-Frédéric Amiel (1821-81), Swiss philosopher, poet 
 
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Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 2/11/2008 5:37 PM (GMT -7)   
I say thank God you are out of there too
WHAT a hades of a trip and I like Matthew hope it is NOT the only hospital available to you

keep us posted Sarita plz......
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
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Nanners
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Date Joined Apr 2005
Total Posts : 14995
   Posted 2/11/2008 5:48 PM (GMT -7)   
Wow Sarita I am so sorry you had to suffer thru a hospital experience like that. Sure hope you get things figured out soon and feeling better.

When I have severe nausea I always go into atrial fibrillation. Went into the ER last Feb with blockage symptoms they just kept looking at the A Fib and took forever to give me something for relief from the pain. So sorry you had such buffoons treating you. (BIG HUGS)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 2/11/2008 8:12 PM (GMT -7)   
Sarita.

Whew! You had me worried there fo awhile..

Matthew
I'm sure no return trips are in the offing?

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/11/2008 10:00 PM (GMT -7)   
I heart you guys!

Seriously, I think you guys are the reason I haven't gone off the deep end. It makes me tear up just thinking about it! Thank you so much.
Co-moderator - IBS Forum


Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 2/12/2008 6:21 PM (GMT -7)   
De Nada..
Just returning the favor.

Matthew
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