Im Crohns free!!!!!! Whoooo hoooooo!

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 2/10/2008 2:22 AM (GMT -7)   
5 days POST op illieum ''
 
So when does this stuff become  a problem againg,
 
I hear some people say 3 months, whily others 5 years. Are there and Meds that are helpflu whle in remission or do you wait fot stmptoms to reappear
'

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/10/2008 3:10 AM (GMT -7)   
Hey congrats, Well I had surgery back in 92, I have been on Remicade for about 5 years now and I am in remission. I am hoping you have a long remission.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 2/10/2008 3:37 AM (GMT -7)   
Ever tried comming off of the remicade?

AmandaH01
Regular Member


Date Joined Jan 2008
Total Posts : 100
   Posted 2/10/2008 4:53 AM (GMT -7)   
Congrats! I should be having my surgery pretty soon.. I'm so nervous about it.

Currently taking prednisone 40mg, Levoxyl 200mcg, Pentasa 500mg tablets 2 tabs 3 times daily, Ranitidine 300mg 1 tablet twice daily, Darvocet as needed for pain, GNC Women's UltraMega Bone Density vitamin, (Just started Remicade 1-31 given along side benadryl and something with a D)
Dr said with my ileum being so severe that the remicade will speed up me needing the surgery because of the scarring. :-(


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/10/2008 8:58 AM (GMT -7)   
I've had 3 resections. After the first 2, the disease came back really quickly and I had to have more resections. But, its been 10 years since my last resection. I am on maintence drugs. The point of the maintenance drugs is to keep you in remission and to avoid any underlying disease from forming scar tissue. Most doctors reccommend you stay on some form of maintenance, it just is a matter of which ones.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/10/2008 10:02 AM (GMT -7)   
I have had two resections.
After the first one I developed a stricture right where they had reconnected me, and had to have another surgery 3 years later. I didn't take any type of maintenance med after resection #1 but I take Asacol now. My Crohns is in remission but i do suffer some with problems because of the surgeries. i.e. I can't eat everything anymore and get an upset stomach very easily. But thats just me. Hope you enjoy a long long remission.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/10/2008 11:02 AM (GMT -7)   

My husband had resections in 1977, 1983 and 1993 so you can see a person may go for a long time even with active Crohn's present on scopes.  My husband does not take any meds at this time except for the arhritis medication.
I consider us very lucky and I know it will be back but we will deal with it..................

Hope this helps you is some small way.
Kitt


 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 

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