Am I over reacting maybe?

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Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 2/10/2008 8:54 PM (GMT -6)   
My 5 year old daughter has been having issues with going poop since she was pretty much a baby...and now I noticed pretty much anytime she eats that she is complaining her stomach hurts...I am calling her pediatrician to have her checked for crohn's this week if possible. Am I just being paranoid because I have it and had the symptoms so long without being diagnosed? What do you all think and what should I ask the pediatrician?
Currently taking prednisone 40mg, Levoxyl 200mcg, Pentasa 500mg tablets 2 tabs 3 times daily, Ranitidine 300mg 1 tablet twice daily, Darvocet as needed for pain, GNC Women's UltraMega Bone Density vitamin, (Just started Remicade 1-31 given along side benadryl and something with a D)
Dr said with my ileum being so severe that the remicade will speed up me needing the surgery because of the scarring. :-(

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 2/10/2008 9:27 PM (GMT -6)   
In my opinion, it's a very good idea to have your child see her doc and begin to investigate. Hopefully her issues are as simple as a dairy allergy, food allergy. But they could be more serious like celiac or Crohn's.

I am now 36, and my own mother points to several digestive issues in my very young childhood that pointed to Crohn's yet there wasn't much known about Crohn's at the time and this disease can be very evasive. I can remember several school lunches of tea and graham crackers and dinners of cream of wheat. I can remember many trips to the bathroom with "hot water and sugar" to soothe my tummy and get things going. I had the ther typical misdiagnoses of appendicits and an eating disorder. Our pediatrician knew something was wrong but couldn't identify it. Hopefully, your child's doc will be able to get to the bottom of things for you quickly. Good luck.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa

Blue Velvyt
Regular Member

Date Joined Sep 2006
Total Posts : 194
   Posted 2/10/2008 9:27 PM (GMT -6)   
There should be no paranoia in caring for your children, your doing the right thing doing whats best for them, there can be no harm in testing. :) My two cents

Veteran Member

Date Joined Oct 2004
Total Posts : 3932
   Posted 2/10/2008 10:12 PM (GMT -6)   
Since yo have it, there is always the SLIGHT chance she will. Not paranoid at all in my book.


Veteran Member

Date Joined Jan 2003
Total Posts : 1668
   Posted 2/10/2008 10:18 PM (GMT -6)   
Definitely not being paranoid my Dear. Most definitely something to talk to your Daughter's Ped about to put them on notice especially with your own history. Not sure that they will jump right in and do testing, but maybe they will or maybe something they will keep a close eye at all future checkups.

My IBD Daughter (now 26) was pretty much constipated since birth. Her many Peds never thought it was a big deal. Increase fiber, yadda, yadda. She never had stomach aches or any other symptoms until about 16 and even then her complaints were not taken all that seriously. Was formerly diagnosed Crohns/Colitis at age 17 when more prominent symptoms started appearing.

Always go with your Mom instinct!!

Veteran Member

Date Joined Jul 2003
Total Posts : 1205
   Posted 2/10/2008 11:00 PM (GMT -6)   
Get her checked for Celiac too.
Do you talk about your tummy problems around her sometimes kids repeat and act as we do.
Confucius say : He who goes to bed with itchy butt wakes up with stinky finger.

Words of wisdom: Never trust a fart

:) Sugarmarie A.K.A. Poopy Pants :)

Regular Member

Date Joined Dec 2006
Total Posts : 70
   Posted 2/11/2008 12:16 AM (GMT -6)   
and true milk protein allergy. it can (and has with my granddaughter) paralized her colon. to a point of malnutrition.
however, it can be caught with a simple blood test. not the colonoscopy we were told to go thru with her. (argh)
many food allergies will do this and present in odd ways, such as asthma, in her case cystic fibrosis symptoms, intense pain (which she had).....
mary, we heard all the same. apple juice,,miralax, and we ended up with 2 Tablespoons of mineral oil a day (12 lb baby) and she still could not go. it backed up and enlarged her colon badly. and yet, not one ped paid any attention, not to mention the pain she was in. did you hear "she will go when she needs to?" not!
dont quit looking. :) good luck.

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 2/11/2008 1:39 AM (GMT -6)   
Yes, be proactive. Just remember that being a patient can warp our sense of balance sometimes and make us susceptible to a bit of panic factor (justifiably so). I think the best way to circumvent that would be to tell your child's doctor about your concerns - that you do worry because you have suffered, and you would not want your child to suffer the same - and then let the doctor do his work. Ask questions, give the best history you can, and leave the rest up to good ol' barium and phosphosoda. Okay, that was a bad joke. Please let us know what the doc says and how you are feeling about it afterwards!
Co-moderator - IBS Forum

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 2/11/2008 8:51 AM (GMT -6)   
My 7 year old has been having stomachs for about a year now...they even wake her up at night. I do NOT have stomach pain with my crohns, so she hever hears me say that my stomach hurts. They have done an upper gi with sbft, and has been tested for food allergies and celiac. Everything has come back fine. I just don't know what to do anymore. I know its not normal to have that many stomach aches and that severe. So, no you are not paranoid! :)

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 2/11/2008 1:53 PM (GMT -6)   
Hey there sweetie, no you are not over reacting..........she is your child.  You have a legitimate concern so make the appointment and have you little one checked out.
Hugs to you.

Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Aug 2003
Total Posts : 1017
   Posted 2/11/2008 2:15 PM (GMT -6)   
My Pedi and I have discussed that we are both aware of my daughter showing signs of CD. Fortunatly my Pedi has CD herself and treats other kids with it. Currently, we are handling it at home, because it is not at a point that she would needs meds. The other part for me - my daughter is a worrier and she is already concered about being "sick" like mommy or daddy (who has lupus). So I am talking to her that she is like mom and needs to be careful what she eats and makes sure she takes her fish oil pills, stuff like that. But she has not only had a couple of episodes that a heating pad and a trip to the bathroom took care of. Also, she has had great luck with the fish oil and if I can put off her being on meds I will. But that is what I am doing. My daugher is 8 and my mother says I showed signs as early as 6. They said I had a nervous stomach and put it off to being worried about what was going on with my mom at the time. We all know better know, but I just know the side effects of most of our drugs and if I can delay that for her I am going to. But my Pedi is fully aware of what is going on, so I also know that if I push it too far she will stop me.

Good luck and remember no one else is going to fight for your child the way you are and no one else knows them the way you do.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 2/11/2008 4:16 PM (GMT -6)   
Thanks everyone..I had a busy day at the dentist today and wasn't feeling so well but I am going to call them tomorrow and get her an appointment to be seen. I think its important that she is checked out... I don't feel so much like I am over reacting now that I heard from everyone else.
Currently taking prednisone 40mg, Levoxyl 200mcg, Pentasa 500mg tablets 2 tabs 3 times daily, Ranitidine 300mg 1 tablet twice daily, Darvocet as needed for pain, GNC Women's UltraMega Bone Density vitamin, (Just started Remicade 1-31 given along side benadryl and something with a D)
Dr said with my ileum being so severe that the remicade will speed up me needing the surgery because of the scarring. :-(

Regular Member

Date Joined Nov 2004
Total Posts : 140
   Posted 2/11/2008 4:29 PM (GMT -6)   
My son was diagnosed but not until he was 12 and I wasn't diagnosed until I was 40.  His pediatrician refered us to a pediatric gastro and she was wonderful.  Doesn't hurt to check it out.

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 2/11/2008 8:48 PM (GMT -6)   
If she has tummy aches she should be checked out, anyway. It could be sister doesn't have Crohn's but she used to complain of tummy aches around dinner time. My mom thought she just didn't want to eat. It turned out that she had a kidney infection.
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