Desperation, Huge decision, Makers Diet, mental health, all here

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Blue Velvyt
Regular Member


Date Joined Sep 2006
Total Posts : 194
   Posted 2/10/2008 7:12 PM (GMT -7)   
Heya all,
 
I spent the last week of January in the hospital with searing abdominal pain, vommiting for 7 days and ate no food or drink in that time othe then the iv.
 
It was a week of mental hell, I was treated like a criminal after a false positive methaphetamine test came back. Just by typing that some people will assume your lying and others will not, I could be wrong, I hope Im wrong, I hope people think the best and are willing to give you the benifit of the doubt.
 
I was told in the er there was no false positive for meth, only to have members here show me there were many possible ways to fp. I had a cold for three weeks, thinking the remicade didnt help, was on vicks the whole time right up till I went to the er. Yup you guessed it, vicks will test you fp, the hospital (kaiser) didnt believe me.
 
The er had no qualms about telling me I was the lowest form of life, a drug abuser faking an illness to get narcotics, they made my wife cry her eyes out, they accused her of collaboarting to get me high.
 
40 years I have been with kaiser, 3 years I have been with my GI, who now is passing me to someone else due to my "crack" problem.
 
I left the hospital in the worst pain ever, in the end I was told I had mild gastritas and was constipated.
 
days later I got a call from a Doctor telling me my GI guy referred me to her, I assumed it was the new GI guy...WRONG it was a psychiatrist (fill in totally offended flip out here). Needless to say, I thanked the Shrink for the call and told her it wouldnt be needed. I was extremley nice, even though my inside voice was screaming.
 
1 week later my original GI doctor calls me, he simply says, after biopsying my stomach in the er he found large quantities of H Pylori. He said it was enough to make you scream and be sick for a week. Then he scheduled a follow up appointment with him.
 
No mention of the shrink, no mention of passing me on to another gi guy, no apology......
 
This is me turning the other cheek, this is me realizing none of this is worth my life and my sanity.
 
 
Afte 3 years with chrons, the worst three years of my life, nearly 60 pounds lighter, sick every day for all those years, my mind a scrambled mess, the tests, the scopes, the surgeries, the mental abuse every time I went to the er.....
 
I have QUIT WESTERN MEDICINE.
 
I stopped it all, the pentassa, the prednisone, the zantac, the karofate, the b 12 injections, the vitamin d pills, multi vitamins, fiber, remicade....done!
 
WTH am I thinking, how crazy am I to doubt western medicine? I could feel myself dying every day, the swollen mass's in my throat and under my armpits, my muscles aching to the point of tears, the three hours of sleep a day, my temper, my eyes watering and stinging constantly the 21 pill daily cocktail...... 3 YEARS
 
That was three weeks ago, I broke, I pulled out the bible, brand new, untouched for years, a gift from a friend years back, I am not and never have been to church, I do not belong to any established religion, I do believe in God. I make no aspersions either way, to each his own, whatever way anyone wants to worship or not worship is their choice.
 
I bring all this up because I also owned the Makers Diet book, this, like the Bible, went untouched for 3 years, I put my faith in western medicine back then.
 
I was desperate, I hadnt eaten in a week, I would try anything now. My wife ( who always wanted me to try the book diet) went to the whole foods store and bought exactly what was descibed in phase 1 of The Makers Diet book.
 
Within 3 days I lost 50% of my pain, within a week, 80% of my pain gone. Three weeks later Im going into phase 2, this is the best day Ive had in 3 years. I would cry right now, but my tears of sadness are gone. I still have apprx 10% abdominal pain remaining.
 
You can call this whatever you want, a miracle, a scientific resolution through clean organic food and organic hygeine products, a fluke, remission, whatever you want.
 
I am not her to sell this book, to offer any cures to others, to compare my situation with others, everyone is different, drugs work for some, not for others. i was desperate, no drugs were helping. This helped.
 
My life appears open again, I went outside for the first time in months, I'm happy, or happy enough and I intend to stay that way.
 
This book may not cure anyone ever but me, but I would plead you to try this diet, it is very specific. I read somewhere that you cant cheat on this diet or it doesnt work. I am not cheating, it is working.
 
If you have not ever tried this Biblicaly based diet, then I hope you will consider it.
 
I know everyones situation is different, but if you even think this might help try it.
 
Anyway, my two cents about diets, metal health and the large dissapointment (for me anyway) that is the kaiser system.
 
By no means am I telling aanyone to stop thier medications, I was desperate, I made a desperate decision, one that I also told my Doctor about. His words to me were " If its working for you dont change anything, Ill take a miracle"
 
All I want now is to pass on this story in the hope that just one person can gain some better health from and of my advice, I hope all of you find better health, for now, I have.
 
I should thank Dr Jordan Rubin, the author of the book, he will probably never know what he ahs done for me.
 
I will thank all of you who have kept my mind afloat these past years when it drifted into darkened waters.
 
I will continue to post and keep everyone updated if there are any changes, if for some reason I return to illness, you better belive I will post that story as well.
 
Thanks
 
Velvyt

Post Edited (Blue Velvyt) : 2/10/2008 7:16:15 PM (GMT-7)


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/10/2008 9:02 PM (GMT -7)   
I am so glad you are feeling some relief! And sorry for everything you went through with the docs. Some can be insenstivie, that's for sure.

I am a big fan of the Maker's Diet and wish more ppl with CD would also try it because it does help.

But what do you mean you just stopped taking prednsione??? Did you at least wean yourself??? You cannot just stop taking prednisone, unless you were on it for like a week only.

Also, even Jordan Rubin says that we need supplements, especially ppl with CD. So please at least find a natural B12, iron, etc.

Keep us posted on your health, and don't give up on conventional medicine, there are lots of doctors who are so willing to try natural ways and medicine too. Talk to CrazyHarry, he is on the MD, med free, but still sees his GI (from what I gather). Even my GI encourages me to try natural things. If you are unhappy with your GI, find another one who will also encourage you with natural remedies.

Best wishes.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 2/10/2008 10:44 PM (GMT -7)   
fantastic news. my story followed a similar parallel, in that i was broken and at my wits end then found the diet and now feel like i have my life back. stick with it. hopefully things will only get better. they have for me in the time i've been on it. i cheated and started on phase 3 but it did work. then i had the opportunity to meet jordan rubin. he put me on an extreme version of the diet for 4 months. that really did it for me and allowed me to feel the best i can ever remember. congrats to you!
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 2/11/2008 3:05 AM (GMT -7)   
Blue, I understand where you're coming from, but please... PLEASE... don't just quit taking your medicine like that.

Quitting pred puts you at risk of adrenal shock. You could die. Really. I've seen the effects of sudden withdrawal of pred. You don't want to have to cope with that, believe me.

Quitting Rem means you're more likely to build up antibodies and have a reaction if ever you need to be reinfused. At best, a reaction could just make you feel sick all the time between infusions. At worst, the reaction could be severe enough to land you in hospital. It could even be life threatening. A reaction may mean that you can never use Rem again. Or the Rem may lose its effectiveness, and then you'll be in real strife.

Quitting some other meds (such as Imuran) can put you at increased risk for a reaction if ever you do need to restart. I don't know if that's true of Pentasa etc, but it may be worth finding out before you take such drastic action.

Yes, a change in diet may help, and I'm very glad it has worked for you. But please, please rethink your decision to quit taking that medicine. At the very least, please consider weaning off the pred **under medical supervision**. You're plunging into a very dangerous situation here. Please let us talk you out of it.

Ivy, very worried for you :-(
Co-Moderator Crohn's Forum.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/11/2008 6:34 AM (GMT -7)   
Your story brought tears to my eyes. I am very, very happy you've found relief! I will keep you in my prayers.
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


Blue Velvyt
Regular Member


Date Joined Sep 2006
Total Posts : 194
   Posted 2/11/2008 10:53 AM (GMT -7)   
Heya,

thanks again for the support.

A few more details to clear up what does appear to be a fairly rash decision.

You were indeed right about the prednisone, I was off it most the winter, the gi started it again in the middle of december, I had only been back on it a couple weeks when I went to the er in January. While in the er I wasnt taking any cause in the chaos of pain it did not occur to me to bring my meds and the hospital did not give me any, I never though to ask. I was on dilaudid most the week.

As for the remicade my last infusion was the end of november and after speaking with my gi he was going to switch me to humira at the end of January, in fact the appointment I had while I was admitted in the hospital with my gi was to start me on humira.

My gi guy mentioned to me that there was absolutley no crohns inflamation in my blood at the appointment.

As confusing as it all sounds, it is more confusing to a guy on dilaudid throwing up all week.

So all that being said, it seemed like the perfect time, I actually think it was a sign, as if I were being told that this was the right time for me, a window where I could safely try this book and diet.

Looking back at my post now I can see where I got carried away typing and left out details, I'm glad you guys are catching these things so that anyone reading knows all the facts and not just my summing up of events.

The one consistent thing in the last three years is that Doctors (and I mean multiple) were just guessing (alot of the time, only a few times was there actual evidence via testing) and prescribing everything from anit-depressants to narcs without truly explaining to me what would happen, what was wrong and why I needed the drugs.

I can take lots of blame for not asking enough questions, for not researching enough and for blatantly trusting anyone with an MD in front of their name.

I am not bitter toward western medicine or toward the doctors who treated me, I just think it is a weird business, perhaps the only one that does not have to guarantee any level of success but still gets paid in full.

God help me if I hear one more doctor explain to me that it is "The practice of medicine".

I just wanted to get out of it for a while, see if there really was another way to heal without all the drugs in my body. If on this diet I were to relapse without cheating I would no doubt have to return to the hospital, I prey that does not happen.

Again, there is still pain, detoxing off anything is not fun, but the difference is incredible. I can live with the current level of pain. Some discofort when passing food at certain times hours after eating, but doable.

I am only in week three now of the diet plan, this is still a cleansing period and will be for another 3 weeks or so.

Hope this extra info helps :)

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/11/2008 11:44 AM (GMT -7)   

Velvyt

Thank you for sharing your story. I have to agree with Ivy re the weaning of the meds however, you seem to have knowledge of the effects of going cold turkey off the meds.
I have found out the hard way that narcotics and the AD's don't mix well especially for me.  Many people take both and the narcs can interact with your AD and wreak all kind of mental health problems.
Keep us posted on how you are doing and I wish you the very best.
Kitt



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Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/11/2008 12:31 PM (GMT -7)   
thanks for clarifying bluevelvyt.

FYI: bloodwork is not always an accurate method to detect inflammation or active crohns. My bloodwork shows little or no inflammation, yet colonoscopies and SBFT show inflammation and very active crohns.

Oh, and now that you've shared that you are going med free and trying the Maker's Diet, you MUST keep us posted on your health!
You can be a testimony to all the rest of us. ;-)

Best wishes, I hope you go into remission!

Wakabo
Regular Member


Date Joined Sep 2008
Total Posts : 41
   Posted 9/20/2008 8:13 PM (GMT -7)   
Like EMom your post brought me to tears. I think so many of us on this forum are tired of dealing with the disease and more importantly feeling like the medical community does not listen. It can be very depressing. I know I have days where I feel like all my doctors are crazy and they dont listen to a word I am saying most the time. I am a registered nurse and of course have been very medically minded in my 15 years of crohns but as I have dealt with this disease I find it very disturbing now to look back on my health and see how many different medications I have tried. I recently traveled to a university where they "specialize" in IBD and am sad and disappointed. They really didnt hear me and the doctor had his plan ready before he even met me. I am tired of putting the blame on myself for not asking questions or researching. My husband went with me to this doctor and i realized after the appointment that if I was not a nurse I wouldnt have understood half of what he was saying or planning. I feel like i wasted another three months on doctors visits, scopes and tests. Although I do believe that there are great doctors out there I just have not found mine yet. I want to thank you for your post it was inspiring to me and I will be buying some books tomorrow. Best wishes to you!
JenG
 
Crohns since 1994, inflammatory arthritis
Allergic to Remicade which helped me so much for about 3 years
Allergic to Imuran
Taking Asacol and Aciphex, rowasa enemas, prempro, synthroid, xanax, darvocet, elavil, cymbalta, folic acid and vitamin D


hlhls
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/9/2009 6:55 PM (GMT -7)   
yeah  I am new to the forum....I have had UC for 26 years...And had a flare up in Dec 2000.  I had always been able to clear it up with meds...but no this time it went from 25% to 50% of colon affected.  Dr said, Mod to Severe.  I tried every med possible and she finally recommended go to a surgeon.  I had heard of the book "Patient Heal Thyself" about 2 years prior and I feel like God bought it to my memory at that point.  I went out and got the book and just knew that Dr Rubin was a man of intergrity and believed in his product and his testimony.  So I went off all meds and started the program in the book....I couldn't believe how great I felt just after a week!!
The bowel movement were less and less pain, etc... I had lost 36lbs.  and started to gain some of that back and had more energy than I had in 2 years!  I went 1 year later for a colonoscopy...Clear!!  the dr couldn't believe I was not on meds!  Dr Rubin's findings are truly God sent!  Please get the book and try it!!  If it worked for me ...it probably could work for almost any of you!  Thanks a million Dr Rubin and the Lord.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 1/9/2009 7:31 PM (GMT -7)   
hlhls, so glad you're doing so very well!!! You sure dug a bit to find this post! Welcome to the forum! We're glad you're here!

Blue Velvyt, are you still out there?
Mom to 16 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too.

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