Calcium level high?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 2/11/2008 12:12 PM (GMT -7)   
So I went to my GI for my monthly checkup and my bloodtests came back: my calcium level is high. Which I thought, no biggie, right? Apparently, having too much calcium is not a good thing. So he casually says he's referring me to an endocrinologist. I figured that was a little extreme and asked him why. He said it was just to do some more extensive testing and was not likely even related to my Crohn's issues. So, I Googled...
High calcium is indicative of parathyroid disease. Something crazy like 10 times out of 10 you have to get your parathyroid gland(s) removed. Which sounds like sooo much fun. When does this roller coaster end? Why does my intestines need empathy and want other parts of my body to be dysfunctional too? Anyone have a calcium level too high?
Pentasa 500mg/8x daily; Entocort 3mg/3x daily; Percocet/Ultram for pain; Protonix 40mg
Neurontin, 900mg/daily
Probiotic
Bentyl for cramping-3x/10mg
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Caltrate 2x/day
Currently on a Low-residue diet as of 11/26


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 2/11/2008 3:33 PM (GMT -7)   
bump
Pentasa 500mg/8x daily down to 6x 1/08; Entocort 3mg/3x daily down to 2x 1/08; Percocet/Ultram for pain; Protonix 40mg
Neurontin, 900mg 3x/day
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


upt0106
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 2/11/2008 5:57 PM (GMT -7)   
interesting...my calcium levels are way low...in fact, I'm diagnosed with osteoporosis....i guess it just goes to show that crohn's really is different for everyone!
---
-Male, age 31
-Diagnosed with Crohn's 2002 - 5 surgeries for peri-rectal abscess in 2002-2003
-Started Makers Diet 26 Jan 08
-currently on prednisone taper after landing myself in the ER with a partial obstruction


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/11/2008 6:14 PM (GMT -7)   
Did a quick search of my lists of complications of crohn's and look what I found:
Crohn's is one of the granulomatous diseases that can cause hypercalcemia.
Look at Table 3 here: Cleveland Clinic: Hypercalcemia
 
There are several other abstracts describing this particular problem. I think you might be the first person her to have high calcium. Please let us know what they decide is causing the problem.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 2/11/2008 6:37 PM (GMT -7)   

Definitely go to the endocrinologist. 

Vitamin D deficiency causes the PTH (parathyroid glands) to rise and become overactive. A good endo will check your PTH, vitamin D, etc. and then recommend what to do next.

With vitamin D deficiency common in the US and in Crohn's patients, every Crohn's patient should probably see an endocrinologist.  

Btw, if you are on Entocort then I do not recommend the typical dosing of 50,000IU vitamin D (ergocalciferol) once or twice a week for 6-8 weeks. Why? Corticosteroids are used to treat people (the very few) who have too much vit D. So I believe Entocort interferes with vit D absorption.

My daughter's own dose of 50000IU weekly caused high liver enzymes while she was on 6 mg Entocort. Worse, not long after she stopped the high dosage her vit D plummeted even though she was taking a maintenance dose of 800IU vit D3, daily.

Through trial and error she discovered the only way she can keep the PTH under control is to take at least 1800IU vit D3 daily. 

Post Edited (njmom) : 2/11/2008 7:13:27 PM (GMT-7)


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 2/12/2008 6:24 PM (GMT -7)   
Interesting for me. I've heard that maybe my CD causes my Kidneystones because of too high calcium in the blood. But also the opposite.
BTW, 10 out of 10? A bit extreme!

Matthew

brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 2/12/2008 8:15 PM (GMT -7)   
I've got just the opposite.. low Vitamin D levels. They think I might have some osteopenia already.. and I'm only 23!

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 2/13/2008 9:45 AM (GMT -7)   
Jenny,
You absolutely need to see an endocronologist, they are the experts with parathyroid issues. My husband has been dealing with parathyroid problems for almost 20 years now. He did have surgery at one point, but they were never able to find all the glands...good thing because he found out you DON'T have to have them removed. He is treated with medication that is fairly new and expensive but it works wonders! And he is followed very closely by his endo via bloodwork and urine testing.
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:44 AM (GMT -7)
There are a total of 2,732,021 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
234 Guest(s), 5 Registered Member(s) are currently online.  Details
81GyGuy, Milla, Blumen, NiceCupOfTea, trumpet123


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer