I'm really sick .........again!

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Regular Member

Date Joined Nov 2004
Total Posts : 140
   Posted 2/11/2008 4:23 PM (GMT -6)   
I have not been here for quite some time.  I have Crohns and lupus and for quite awhile, my crohns was in remission and I was dealing mostly with my lupus symptoms.  Well, about 6 months ago the bleeding started again followed by the big "D" and going to the bathroom sometimes 15 times a day.  Well, after going back to the gastro (who's middle name must be colonoscopy) I decided to go back to the Bowel Disease specialist at Cedars. I had a CT of my pelvis and stomach.  He saw inflamation (Duh) but NO Cancer or strictures - Thank you god!  He started me on Humira back then and it wasn't really working.  I started doing 1 shot a week about 3 weeks ago and really have had minimal results if any.  Desperation set in about that time, 3 weeks ago and I took a medril dose pack of prednisone.  I HATE THAT STUFF!! Good for 3 days........then BOOM - bad again.  A week off prednisone and decided to do another medril dose pack this Friday I started it - better days this weekend and less trips to the bathroom - still bleeding though.  The doctor thought that would happen. I take my last pred tomorrow so by Wed I should be back in the bathroom 10+ times a day....Anyway, I called the doctor this morning and he's out until Wed so I left a message.  My hemotologist ordered me to start another series of Iron infusions and vitamins packs at the hospital.  My first appointment is on Thursday.....my anemia is kicking in because of so much bleeding and my RBC was 11 on Friday and my platlets were over 500.  I'm just tired.....tired physically and tired of being sick.  I've had no energy today and am still in my pj's.  When I went to see the doctor at Cedars, tysabri was not yet approved - maybe that's the way to go.  I guess I will discuss these options when he calls me on Wednesday. 
Thanks for listening.......

Regular Member

Date Joined Jan 2008
Total Posts : 95
   Posted 2/11/2008 7:10 PM (GMT -6)   
Prednisone is the worst drug, I'm with you on that HATE thing. I really feel bad for you this disease sucks ,I hope you get answers and start feeling better soon Keep us posted.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 2/11/2008 7:28 PM (GMT -6)   
I am so sorry you are feeling like this again.......
I despise pred as well but I know I have to take it it has been the one thing to help for me this time around.......

Know you are being thought of and prayers coming your way
keep us posted about your appointment Thursday plz or if anything is said Wed in call

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Regular Member

Date Joined Jul 2006
Total Posts : 330
   Posted 2/11/2008 8:48 PM (GMT -6)   
I'm sorry to hear you're feeling so poorly - hopefully the doctor will be able to help you out later this week. I too hate pred, but sometimes it's the only thing that will help me out. I hope the anemia is quickly brought under control.

Wishing you the best,

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