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gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 2/12/2008 10:16 AM (GMT -7)   
I just started VSL #3 probiotics. I am wondering how many pills/day that I should take? My GI seems like a great doc, but doesn't know much about diet or probiotics. I have IBS and Crohn's in my ileum. I cycle between D and C, and both drive me crazy! I do take Metamucil which helps. thanks for any advice
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/12/2008 10:23 AM (GMT -7)   
I take the packet you mix with water, one per day, though my GI has said he would nto mind me taking two. I think one pill per day would do you, but two would likely not be overkill. Might consult the VSL-3 website for dosage info.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/12/2008 2:04 PM (GMT -7)   
I would start with one pill per day (225 billion, right?) and build to more if needed. That way you can see how much you need to take to normalize things for you. Recently I knew of someone taking 4 times that amount.

Our GI is also a great guy but will not give credence to probiotics or proper diet. sad

My mom has IBS and has great success with a fiber supplement called Fiber Smart by Renew Life. It can probably only be found at health food stores. I found it recommended on an IBS website that stated psyllium products (like Metamucil) are not recommended for IBS (sorry, can't remember why). Fiber Smart is completely natural and does not have sugar or artificial sweeteners, both of which can exacerbate intestinal problems. It also contains no psyllium, and contains its own additional probiotics! (sorry...sounding like a commercial here...) If I find that website that explains why certain fiber supplements are better than others for IBS, I'll post it for you.

Good luck!
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 2/12/2008 3:37 PM (GMT -7)   
Here is what the VSL insert reads:

# bowel movements #VSL packets per day
< 5 1-2
5-8 2-4
>8 4

Keep in mind the packets (powder) have twice as many bacteria as the pills so you'd need to double that in pills (if that's what you've got)

All that said, I take 2 each morning, though they recommend more.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 2/12/2008 7:04 PM (GMT -7)   
Thanks for the input everyone!
E-mom, I thought I read that psyllium is GOOD! I'd love to read that article if you can find it. I have had IBS since being a kid, but I didn't get diagnosed with Crohn's until now (age 49) Metamucil has helped me in the past, but with my new problems with the Crohn's I seem to cycle quite quickly between the D and C. I've been taking the Probiotics for about a week and things seem to be getting better, so maybe it is helping. I noticed that you said that your son takes digestive enzymes - what is that? Thanks
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/12/2008 9:34 PM (GMT -7)   
gumby44 said...
E-mom, I thought I read that psyllium is GOOD! I'd love to read that article if you can find it. I have had IBS since being a kid, but I didn't get diagnosed with Crohn's until now (age 49) Metamucil has helped me in the past, but with my new problems with the Crohn's I seem to cycle quite quickly between the D and C. I've been taking the Probiotics for about a week and things seem to be getting better, so maybe it is helping. I noticed that you said that your son takes digestive enzymes - what is that? Thanks


Digestive enzymes are just another supplement you can buy. They aid digestion. They're enzymes made partially from plant-based ingredients, like bromelain from pineapple. The thinking is that our diet is so lacking in naturally occurring enzymes from plants and other sources, that we need to supplement them for normal digestion. I've read many articles that recommend them for CD. Though I don't have CD or IBS, I've used digestive enzymes for 15 years or so for indigestion. They make a world of difference! Like probiotics, there are many good brands of digestive enzymes out there. I use Ultra-Zyme by Nature's Plus, but I've tried other brands and thought they were good, too.

As for psyllium, I dug and finally found the website where I read about it for IBS. It seems like a really good website. They sell their own products and make recommendations about other products as well. I KNOW I remember reading about that fiber supplement I mentioned (Fiber Smart) above on this site, but cannot find it anymore (it was several years ago...I guess they re-vamped the site). In any case, I was looking for a fiber supplement that would relieve my mom's IBS symptoms which were mainly C and *major* bloating. If you scroll about 1/3 the way down on this page it tells you "If you're at all prone to bloating or gas (and many folks with IBS are), please avoid both psyllium and inulin (the main ingredients in Metamucil, Konsyl, Fybogel, Fibersure, and FiberChoice), which can seriously worsen these problems in some people with IBS." This is why I remember psyllium is not for IBS in my mom's case. She DEFINITELY did NOT want anything that would increase the bloating! (This site also does an excellent job of explaining why sugars and artificial sweeteners are not good for IBS, too.)

After reading this page again just now, I see they allow that, just as with Crohn's, each person's IBS is unique and may respond differently to different fiber supplements. It could be that psyllium is what you need. It is really interesting how they stress the importance of soluble fiber for C and D, though. I bet their product is really, really good...

Anyway, here is the website! Happy reading!

http://www.helpforibs.com/supplements/sol_fiber1.asp
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 2/13/2008 6:23 AM (GMT -7)   
Thanks for the info..I will check it out!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 2/13/2008 9:04 AM (GMT -7)   
FWIW, my GI says that, in his opinion, psyllium is the best soluble fiber out there. He said that is the number one question he gets asked as most of his patients have read all the IBS, CD, UC sites out there, and there are quite a few saying "our fiber is the best! don't take psyllium!" They're just trying to make a buck. He says you can't beat Metamucil for bang for the buck (no pun intended). That's just about word for word how our soluble fiber converstation went. Yes, he does have a sense of humor.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Pentasa 4 gm/day, started Humira 1/22/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.

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