Is my remicade not working anymore?

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Happy Life
New Member

Date Joined Feb 2008
Total Posts : 6
   Posted 2/12/2008 4:48 PM (GMT -6)   
I have been on Remicade for about 7 years. It has worked wonders for me-no surgeries, few flare ups, and have been able to enjoy life. However, lately I am wondering if it isn't working so well anymore. I have not been feeling so great the last few months- even right after remicade I do not seem to be doing as wonderful as before- stomach attacks are increasing, fatigue, and pain- which is difficult to handle when you have been pain free for so long- I am a little wimpier than I use to be. I have done double doses before when I was in bad shape- but not for a long time- anyone experience remicade no longer working? if so what have you done?
By the way this is my first posting- I have been reading for a while but finally got the nerve to post:)
Living with Crohns Disease since 2000, currently taking Remicade every eight weeks

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Date Joined Aug 2003
Total Posts : 1017
   Posted 2/12/2008 4:58 PM (GMT -6)   
I have been on Cade for about 7 1/2 years. We just doubled my dose because it was not working as well as it should. My doc explained that yes it does stop working and I will have to adjust the dose and when this dose stops working we will look for other meds to try. I am happy he was up front with me about it. Good luck and make sure you tell your doc about this.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.

Regular Member

Date Joined Jan 2008
Total Posts : 95
   Posted 2/12/2008 7:08 PM (GMT -6)   
I also was on remicade only about 2 1/2 yrs but it stopped working for me to , we then tried humira but had a bad reaction to it.

Aimee =)
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Date Joined Jun 2004
Total Posts : 1020
   Posted 2/12/2008 10:44 PM (GMT -6)   
It stopped working for me after 2.5 years. I stupidly ignored the symptoms, and my GI blew me off and just prescribed prednisone when I was icky, until I ended up in the hospital. Found a new GI who said 'you have built antibodies to the Remicade and it's not worth taking anymore'

I am now on Humira. It's been great as well, no reaction or issues.

Happy Life
New Member

Date Joined Feb 2008
Total Posts : 6
   Posted 2/13/2008 4:11 PM (GMT -6)   
I am a little nervous to stop remicade and try something new. What if there are side effects, with remicade I know what to expect. I don't think I could give myself shots either(humira), so that probably won't work for me-
thanks for responding.
by the way-have any of you heard of anyone getting lymphoma while on remicade? This has become a big concern with some people I have spoken to- My doctor says that he has not seen it yet.
Living with Crohns Disease since 2000, currently taking Remicade every eight weeks

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Date Joined May 2007
Total Posts : 589
   Posted 2/13/2008 4:28 PM (GMT -6)   
i was on remicade for a while. it was gradually getting weaker and weaker, so i switched to humira. at first, i didnt think i could do the self injection... but its really not that bad. the needle itself doesnt hurt (and really, with crohns you HAVE to get used to needles). its creepy to push it in though, so i just rest the needle on my skin, close my eyes, and push it in. feels weird, but its not that bad. its not easy at first, but i think you could get used to it.

also, my pediatrics doctor mentioned something about a study about lymphoma and remicade. if i remember right, she said that this study found that your odds of getting it went up by a significant amount (though they still remained low) if you were on remicade and 6mp. i could be wrong though, because this was a while ago now and i was more interested in eating pretzels at the time.

i miss being in pediatrics, they gave me pop and pretzels and had TVs and gamecubes to keep me occupied during the infusion. good times.
19, Male, diagnosed over Christmas Break of my Junior year in High School. BEST CHRISTMAS EVAR LOL

(not really)

Happy Life
New Member

Date Joined Feb 2008
Total Posts : 6
   Posted 2/14/2008 3:00 PM (GMT -6)   
Thanks for the response- I guess if the doc says I have to switch I will but I am not too thrilled with the idea. As far as the injections go, well that's another story I will have to deal with when the time comes- I just hope we can do a double dose of remicade for now.
Living with Crohns Disease since 2000, currently taking Remicade every eight weeks

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