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Date Joined Feb 2008
Total Posts : 10
Posted 2/13/2008 1:35 PM (GMT -7)
I know that the two topics posted are hardly related to each other. Nonetheless, I have questions on both and I figure it'd be best to post them at once. First, some background. I am a newbie Crohnie. I am a 28 yr old, Asian female. (My surgeon often jokes with me that Asians don't have Crohn's. I guess I got lucky). I was Dx June 2007 and had my first bowel resection three weeks ago. Personally, I think I started to show symptoms of Crohn's in 2003, but my doctors told me I had IBS!! =( Well, the past month has been extremely difficult on my family and I. Thus, for my first question with regards to family support. My mom has not stopped crying since I had my surgery. She feels helpless b/c she can't help me "cure" my illness. I notice there are plenty of moms on this forum. If you can suggest ways how I can comfort my mother, I'd greatly appreciate it. My family and I are Christian, so God is always a source of hope for us. However, she often feels helpless b/c: she doesn't really understand the disease; there is no cure; and the fact that she is limited in her English, so she can't fully comprehend why I need to take so many drugs! I know the heartbreak many of you, mothers, feel for your children, and I am hoping to find some solace for my mom.
Also, I notice that I consistently have oral thrush. I've been reading a lot about
Crohn's since I've been Dx, and there are theories that Crohn's symptoms can be minimized by controlling the overgrowth of Candida Albicans (the natural fungus) we have in our digestive tracts - thus, the SDC. I am wondering if anyone else have had this problem, and whether anti-fungal medications/diet has helped them control the disease.
I am grateful to have a community to share my thoughts with...feels good to NOT be alone in this fight against Crohn's. Thank you!!
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Date Joined Apr 2004
Total Posts : 407
Posted 2/13/2008 2:10 PM (GMT -7)
Hi Di, welcome to the family sorry to say....
As for your Mom give her time and let her know she's not at fault it's just like you said the luck of the draw, and it may help to let her know you can be thankful for being in a time when there is medical help and the problem has been found so treatment and understanding is obtainable.
As for the thrush OOOHH my gosh have I dealt with that - had it hit right after sinus surgery and
open leasons in the throut that the thrush set into... had to have the antifungal med to get out of my system now I make sure I eat yogurt with active cultures to keep it at bay. it also has made a difference with the tummy as well. My crohns has been in 'remission' for a while, but some tummy problems had continued, now I'm thinking that part of it was the overgrowth of the candida, since there has been a differnce since.
Good Luck and Praying for the Best for You.
May God Bless and keep you in his care.
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Date Joined Jan 2003
Total Posts : 1668
Posted 2/13/2008 2:36 PM (GMT -7)
Sorry to hear about
your diagnosis. As a Mom of an IBDer for the past 8 years I have to say God is most times my solace. Educating myself about
the disease every day for the past 8 years has helped. Sometimes the education process has been scary, but gain solace reading about
other's experiences. I get a whole ton of solace when my Daughter is doing/feeling well. I still crumble a bit when she is not. We haven't been route of surgery, so I am sure that was really tough on you and your Mom.
Parents, till the end of time, will always feel helpless when they can't fix their Child. Instead we are relegated to letting God and Drs handle the fixing. Our help comes in form of a listening ear, comfort and support.
Your Mom is being quite normal at the moment. She will feel better in time about
it. Not 100% and not all of the time, but she will come to terms with it. Trust me on that! I was one freaked out Mama for a good while after my Daughter's diagnosis at age 17 at the same time she was getting ready to go away to College. She is almost 26 now and we have survived much and will continue to survive whatever IBD brings my Daughter's way.
You sound like you have a very upbeat and "can do" attitude. That will serve you very well in dealing with IBD and in turn will help your Mom too when she sees you living your Best Life despite having to deal with IBD. When my Daughter is feeling good and doing well, so am I!!!
Wishing you Healthy Days!!
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Date Joined Aug 2007
Total Posts : 990
Posted 2/13/2008 2:38 PM (GMT -7)
Hi lakergal and welcome! You will find lots of support here. It sounds to me like you are a wonderful daughter to be so concerned for your mom! Since you stated your faith is strong, maybe encourage her to take her strength from her relationship with Christ. Maybe gently tell her that she is making you feel a bit discouraged when you need to feel ENcouraged. I don't know. It's a tough call to make from here...not knowing you all... but reassure her that time will heal... Reassure her that people are able to lead completely normal lives with CD, too.
When you said "thus the SDC", were you referring to the Specific Carbohydrate Diet? I can't speak from personal experience, but I truly believe that diet, along with probiotics would control your thrush. As the previous poster said, you may need an antifungal to clear it now, but dietary changes will definitely keep it at bay in the future. jmho...
God bless you! You are truly a thoughtful, caring daughter!
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.
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Date Joined May 2007
Total Posts : 1488
Posted 2/13/2008 6:56 PM (GMT -7)
Don't feed the fungus with sugar, breads or pasta. This is an unconventional therapy but it works for mine every single time. I take a clove of garlic and crush it. Then I place it in a water dampened gauze pad. I hold it on my tongue only for a second or two because it burns. I do this once a day for three days and my tongue is pretty pink! I haven't had it anywhere else in my mouth except the tongue. If you don't want to try this there are anti fungal mouthwashes that your GI could write a script
As for your mom, try and educate her about
the disease as much as possible. Keep reassuring her that this disease is not a death sentence. You will have good days and bad days but you will learn over time how to control your symptoms. Best of luck to you!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.
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Date Joined Apr 2006
Total Posts : 1884
Posted 2/13/2008 7:44 PM (GMT -7)
What a great daughter! Like you, my own daughter handled the diagnosis better than her mom did. She was relieved, after years of hearing docs act like it was all in her head, to finally be correctly diagnosed.
But when she was first diagnosed, I couldn't always hide the tears. So I told her, "Your dad and I are just going through a period of adjustment. It is hard for us now, but will definitely get better." She answered, with relief, "Good!"
Now, two years later, I usually think of Crohn's as just one of many things that makes my daughter who she is.
I believe that time is what your mother needs...this is a period of adjustment for her, but it will get better.
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