GI appt. today – IBD DX

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hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/13/2008 4:05 PM (GMT -7)   
Well, I finally saw the GI today. She was really sweet & worked me into her lunch hour. She spent about an hour with me. She said she is sure I have an IBD, but that without more testing wasn't sure if it was CD or UC. She put me on the Low Fiber Low Residue Diet. She thinks they will have to up my meds, but wants to wait on that. She said that it may not be malabsorbtion that is causing the weight loss, but just inflammation. She thinks my WBC count is high because of the IBD. She seemed annoyed that they didn't do a small bowel biopsy with my colonoscopy. She wants to do the colonoscopy again & do a small bowel biopsy, but without having insurance, she said they would just start with the small bowel follow thru & I am having that done in the morning.

Anyway, just wanted to post an update. I am kinda bummed, but I figured that it was an IBD, so I am not surprised. I was just hoping it was antibiotic induced colitis or something to that effect, but no luck.

She thinks I need to get insurance because I will need it for the rest of my life. That is a scary thought....

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 2/13/2008 4:30 PM (GMT -7)   
I know it is hard to hear an IBD diagnosis, but you have suspected it for awhile, and now finally you can get some good meds and help. I agree that you need to figure out how to get insurance, I am self employed and my Blue Cross covers the hospital and labs, but no prescriptions or dr. visits...it was the best I could afford. Remember that you can get help from the Patient Assistance programs at the drug companies, once you know what meds that your doctor prescribes. Hope you are feeling well soon
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/13/2008 7:12 PM (GMT -7)   
Thanks for the reply. I appreciate your insight. It sure is nice to know I am not alone in this...

Does anyone also have female issues? I am having irregular periods, and the latest has been really, really long and very heavy. I was just wondering if it all could be tied together...

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/14/2008 11:43 AM (GMT -7)   
Well, I had the Small Bowel Follow Through & I don't think it provided much insight into if it's CD or UC. It went through me very quickly, but there was a bunch of barium that puddled in my large colon, on the right side. The Radiologist said that my small bowel looks okay, nothing to point one way or the other (UC or CD), but he was surprised by the pool of barium. They waited & took 2 more X-rays before they used that round thing that pushes on your belly & puts the image on the screen, & he said it was still there.

The technician seemed to think that I wouldn't have the constipation problem since it went through me so fast. I was already in the bathroom after 45 of drinking that stuff.

Any idea why it would puddle at my large colon on the lower right side? I don't understand it & the radiologist didn't seem to understand why either.....
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