After 14 months of almost non-stop flare-up, I'm finally feeling pretty good for the past week or so.
Why? Unclear, but:
Massive doses of Prednisone (just tapering down to 35 mg yesterday).
Maybe my 3rd Remicade Infusion finally got that medicine jump-started. My doc doubled the dose to 700 mg after the first two infusions gave me zero results.
At any rate, I'm still zoned-out from the Pred -- kinda dazed and confused, red-faced, swollen face and ankles, aching muscles, worried about bone decay and other side effects.... but at least some of these symptoms are diminishing.
But man-oh-man -- just the ABSENCE of that cannonball obstruction in my gut and all the cramping, misery, etc. that goes with "atypical Crohn's" -- I swear, I couldn't even remember what "normal" felt like.
Not entirely norma, of course... but close. And no, I don't expect this to last, but I'm enjoying this rare break from the misery....
I just wanted to share that with y'all. Most of my posts have been complaints (I'm sure there will be more). But I did promise more than once that I would report the good news here as well.
Anyone else have recent good results from your meds, alternate treatments, or just plain downcycles of the flare-ups? If not, just gripe and groan -- really, it's OK. I'll listen with a sympathetic ear...
Terry in Virginia