Females: Period Problems with IBD???

Females: Do you have heavy and/or irregular periods since being dx'd with IBD?
3
Heavy - 15.8%
8
Heavy with lots of clots - 42.1%
2
Light - 10.5%
6
Normal - 31.6%

 
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hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/14/2008 11:47 AM (GMT -7)   
I have been having some very strange periods & this last one is really really bad. It has lasted about twice as long as usual & it is super heavy with huge clots. I was having a lot of problems concerning this IBD a couple weeks ago & don't know if my problem is just a female problem or if it's related to the IBD.... I would love any thoughts from females concerning their cycles...

I called my doc about it & she said to take Motrin. When I questioned her about taking ibuprofen because the GI said not to, she said just a couple times won't matter. It's already really heavy, so I don't want the flow to get heavier, so I am not sure if this is what I should do. She said if it doesn't let up tomorrow, to go to urgent care or the ER. Is that really necessary?

Veronica Ballerina
Regular Member


Date Joined Nov 2007
Total Posts : 69
   Posted 2/14/2008 11:59 AM (GMT -7)   
My last period was on nov/17, that was when I was diagonsed with CD, my doctor said that is problably because of the anemia and the lots of meds I am taking, I am not pregnant at all!
Veronica Nunes - 27 years - Brazil


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 2/14/2008 12:49 PM (GMT -7)   
I couldn't vote because mine vary from month to month...but for the most part I would guess mine are med-heavy....as we age our periods tend to change also.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/14/2008 4:38 PM (GMT -7)   
Mine have been irregular just for the last couple of months. Early, late, heavy, light, all over the board. This time it is sooooo heavy, heavier than I have ever had it. Lots & lots of huge clots. Nothing like anything I have ever had before. It's starting to scare me a bit. I used to be every 27/28 days, this one was late & heavy & LONG (normally they last 4 days tops, but this one has been a week). I took the ibuprofen & we will see what happens. I would hate to go to urgent care, but my doc isn't in tomorrow & she said to go to urgent care of the ER if it continues to be heavy with lots of clots..... My body is so out of whack. I just don't get it. I am frustrated & nervous about this all...

kgirlie
Regular Member


Date Joined Jan 2008
Total Posts : 101
   Posted 2/14/2008 4:59 PM (GMT -7)   
I am with you huckleberry. I usually have one every month for 3-4 days. This one has been nine days. I hate running off to the urgent care, but I would get it checked out if only for peace of mind. I notice mine aren't heavier, but I have a lot more pain for a few days before and during. That has been for the last twelve years with having CD. I don't know if this helps, but if you are at all concerned I would be seen. I'll be thinking of you. One more thing, watch the motrin, you don't want to upset your CD even more.
 
Kgirlie
Kgirlie
 
27 year old female dx with CD in 2001. Pentasa 4 g/day, Prednisone 30 mg/day, Amytripaline 25mg/day, Lexapro 20 mg/day, Maxalt 10 mg as needed. Mother of son, 3, and daughter, 6 months.  


broomhilda
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Date Joined May 2007
Total Posts : 1488
   Posted 2/14/2008 8:48 PM (GMT -7)   
Part of the reason they call me broomhilda...always zippin' around to get to a bathroom for something leakin'. Never had a problem with my clockwork 28 day cycle/7day period until the CD. Some months it's normal, some months it's light...most months it is incredibly heavy with clots. Already had one DNC to see if that would help. It did for awhile...now we are back to square one. Tried natural hormone therapy last month as I am also peri-menopausal...hence broomhilda again...I started 10 days early this month. Real effective stuff huh! So I threw in the towel on the natural HRT and just decided to suffer through it. If however, you are soaking a tampon/pad through in an hour....you need to go to the ER. That's not normal....that's a hemmorage!
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/14/2008 9:49 PM (GMT -7)   
I have been going through a pad & super tmpon every 2 hours, so I should be fine. It slows at night, but is constant throughout the day.

I didn't want to, I was really nervous about taking the ibuprofen, but I did anyway because this is getting out of hand. I hope it slows....

angelang40
Regular Member


Date Joined Sep 2007
Total Posts : 160
   Posted 2/15/2008 1:18 AM (GMT -7)   
Since i was diagnosed with crohns 2004 my periods have became a lot worse usually lasting 1-2 weeks and really painful so much that im in bed a week before suffering from  back problems  and nausea!so whats new lol just generally feeling crap ive still to be checked out by my doctor if im not ill with the crohns its my period i feel as though i just exist not live sad .

Krica
Regular Member


Date Joined Apr 2007
Total Posts : 99
   Posted 2/15/2008 4:09 AM (GMT -7)   
Hi, I  have problems with my period, sometimes awfull pain, specially  on my second day i cannot even get up from my bed. A few times i had candidiase just a few days before my period.
 
Currently on Imuran 100mg, fish oil, vitamin B, folic acid and homeopathic treatment.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/15/2008 6:02 AM (GMT -7)   
Well, another day of the same. I slept too long & bled all over my PJs. I am taking more ibuprofen this morning with hopes this will slow down. I don't have as much period pain, I just have constant pelvic pain & cramping (even when not on my period) that I had thought was due to some small ovarian cysts, but the GI said it was due to IBD. I feel horrid this morning. I have a horrible headache & am really achy & tired today. I don't want to go to urgent care, but just don't know what to do.....

skeptical
Regular Member


Date Joined Jun 2005
Total Posts : 369
   Posted 2/15/2008 7:06 AM (GMT -7)   
I'm pretty sure the Ibuprophen is only for the pain........it won't slow down your period, if anything, it will increase the flow.
Yes, I've had the same weird symptoms..... sometimes early, sometimes very late, twice I skipped it altogether and very clotty. My gyno said it was premenopause so that's what I had been thinking. Several years ago I had a procedure to check the lining of my uterus and they told me because my body wasn't making enough of ... oh, I forget whether it was estrogen or progesterone... I was getting a built up of tissue, hence the clotting.
 
I'm at the right age for menopause, but if you're younger, I'd go to my gyno first. Maybe if you describe your symptoms, they could work you in right away. Anyway, good luck and let us know what you decide to do.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/15/2008 8:32 AM (GMT -7)   
That's the problem, I don't use a gyno, I just see my pcp for everything & she's out today & said if everything was continuing after the ibuprofen to go to urgent care. I haven't seen any clots since taking the ibuprofen. I don't really have any pain. I thought she wanted me to take the motrin because it would stop the clotting.

I am waiting to see if it is slowing down, I think it may be. But it seems to slow a little, then it comes pouring out of me again, so I am not sure. I am just tired of cleaning up the mess every time I have to change the plumbing, you know?

daize
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 2/18/2008 4:43 PM (GMT -7)   
 I havent been diagnosed with ibd yet, there still going through test. i started going thru menopause at the age of 32(im 46 now). from the time i started having periods at age 15 they were very heavy, painfull and lasted any where from 7-10 days. the cramping would be so bad i would have to go to the er and get a shot. im pretty sure that i had at least a mild to moderate form of crohns then since no one else in my family ever experianced any of this(oh yea i didnt go over 100 lbs untill after high scool and everyone else was overweight(some concidered morbidly obese). from what ive been reading it has something to do woth prostaglandins. it has also been noted that bowl movement increases around menestraton, i firmly believe there is a link since ive stoped having periods(10 years ago) and dont suffer nearly as bad ad before. im looking into finding a female gi since i think they have more compassion and insite as t how discouriging it is when you have symptoms that could have been related but most of the time dismissed. . hoping ang praying that the come out either a more drfinitive test or procedure to diag  this. it really is crappy.  on confused thing im gratfull for is mine is not so severe that i cannot funtion. i can go to work and muddle thu it enough to collect my paycheck. thank god.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/18/2008 6:56 PM (GMT -7)   
since iv started puberty iv had heavy periods with clotting. Obviously i developed severe anemia. however, i'm currently experiencing my first menstrual cycle since my ostomy and its unusually light (sorry if thats tmi). I would take it easy on that ibuprofen tho as it is a blood thinner i think and could cause other problems.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 2/18/2008 7:36 PM (GMT -7)   
People with Crohns are advised against ibuprophen because it can cause you to bleed more, not less! Your doc probably thought for the short term it may help with pain, but not the bleeding. How old are you? Is it possible that you are having an early miscarriage? If not that, then maybe its a hormone imbalance. You will get anemic, and will need to be seen if this continues.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/19/2008 3:54 AM (GMT -7)   
No, it was my period, not a miscarriage. I am 33 & my husband is fixed & I didn't have sex lately due to not feeling well.

The ibuprofen worked. I took 3 pills 3 times in 2 days & my period finally stopped on the 3rd day. Not sure why it worked, but it did. It lasted for 9 days & was the worst period I ever had. I am glad it's over. I hope next month isn't as bad....

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/19/2008 7:11 AM (GMT -7)   
yeah but please b careful w/the ibuprofen and aleeve as gumby is right. But my cramps get so bad some times i have to pop at least one aleeve to get relief...tylenol doesnt always work
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 2/19/2008 8:30 AM (GMT -7)   
Yes. It lasts no less than 8 days now, and I get a slight diarrea with it. I also have more cramping and I am more weepy since I was diagnosed with Crohn's.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/19/2008 8:58 AM (GMT -7)   
I know about the ibuprofen. I did question my doctor about it when she told me to take it because the GI said NONE, but she said a couple wouldn't hurt me. I wasn't having period cramps, just the normal all the time IBD cramps I have been having so it wasn't for the pain that I took them. Although I though it would make it heavier, it did work & it slowed down that Saturday & had stopped by Sunday!! : ) So, if I have to, next time I will use ibuprofen again since my pcp said it was okay to take once in a while.

It is a bummer that it seems that not only do we have to deal with difficult to talk about bowel problems, but that our female problems are getting worse, too. I have a couple ovarian cysts they are watching that began with all these problems. Wondering if that isn't related to this whole IBD mess, too....?

lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 2/19/2008 9:22 AM (GMT -7)   
I was pretty interested to read these posts as my daughter has been having some heavy cycles as well. She has always been fortunate to have mild cycles and then they changed drastically. In Dec hers was so heavy and she was passing many large clots, they did an internal exam and thought they may have to give her a d&c. They put her on provera and that slowed it down. It lasted close to 4 wks and her next cycle was also very heavy. Her GI has said this has nothing to do w/ her crohns. Apparently that is not necessarily true as many of you seem to be having similar issues. I never let her take ibuprofen since that is not recommended with her meds, crohn's and her other bleeding issues. Best of luck to you.
Mother to 15 yr old daughter diagnosed w/CD 9/07.  Had col & endo in 9/07, small bowel follow through 11/07, surgery for abcesses 11/07.  Curently taking multi-vit, iron for anemia, bentyl prn, prilosec 20mg-x2, pentasa  500mg-x5, entocort-x3, 6 mp 50mg-x3.....still not doing well.


teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 2/20/2008 11:48 AM (GMT -7)   
Huckleberrie, I don't know if ovarian cysts are related or not. I had huge problems with them in my early 20's. I saw pcps every month for over a year. I was only about 20 when I started going in for the pain that I had been receiving since I was 12 or 13. Dad could not afford insurance. I remember leaving school with such bad cramping, going home and sleeping for the rest of the day. I missed so much school that my dad started thinking I was just using it as an excuse to skip school. After I would wake up, I would feel good enought to function, so it did look like I was faking, but I wasn't. Finally he stoped coming to get me because our office was on the 3rd floor and he couldn't get up the steps. Lucky for us, my dad's sister-in-law worked there and talked to someone so I was allowed to go home with a note that Dad had to sign once I got there. When I started working a full time job, I had insurance so I went in. For over a year, they told me the pain was in my head. I even had had a few ultrasounds. Later, I found out that tiny cysts had been showing up, but they assumed they were not big enough to be causing the pain I was telling them about. I talked to my aunt about it because I had started doubling over from the pain at work and she had been noticing it. (We worked right across the table from each other.) She told me that my great grandmother had died from ovarian cancer and asked if I had told them this. I didn't know it before she had told me, so I went in that week again with the pain. The Dr. told me again that it was all in my head and to come back in a few days or next week and let him know if the pain went away. He had his hand on the door knob, just begining to turn it when I said, "Does it matter that my great grandmother died from ovarian cancer?" He spun around, pulled out the bottom drawer to the examining table to get me a gown and said, I'll have a nurse come in and talk to you to set up another ultrasound while I go down the hall to make an appointment with a surgen if something shows up. I think that was on either a Tuesday or a Wednesday. I had an ultrasound done on Thursday, and Friday morning I went in for surgery, they removed a benign tumor the size of a fist from my left ovary. BUT IT WAS ALL IN MY HEAD! My Dad later apologized to me for doubting me. The doctors never did. In fact the surgen left me with a scar that goes from my bellybutton to my...Genitals. Years later when I had my son, my OB/GYN was visibly irate that they had "butchered" me. That is what my OB/GYN told me. He apologized many times that anyone in his profession would do something so horrible to such a young person. After my son was born, and he was again apologizing for the scar even though he had NOTHING to do with it, he said that he pulled an 8 pound baby out of a 3 or 4 inch hole, they should have been able to pull that tumor out in an inch or less. My son is 6. It still bothers my OB/GYN. Sorry this is so long. I get carried away. I still get the cramps before my period, but after the surgery, I had no problems until I was diagnosed with Crohn's.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/20/2008 12:01 PM (GMT -7)   
They have been watching my cysts. I have a few tiny ones on the right side & either one large one or 2 decent sized ones on the left. I have had 2 ultrasounds, one back in August & I just had one a couple weeks ago. They want to watch it & see if it grows, so I have to go back for another ultrasound in 2-3 months. But I was told in August (at that time my left cyst was 2.3 cm) that it wouldn't cause me pain, really. I am not sure about the size now, I don't have the ultrasound report yet, but it seems to be either growing or I have 2 on the left side, I guess. I don't know if this is related to my IBD or what. The GI says my lower pelvic pain is NOT from cysts, instead from the IBD. I am confused....

Another question, I have been having sore breasts that are really really tender. I assumed it was my period, but that has come & went & I still have the pain. I wonder if this is related to the cysts or IBD.... Any ideas?
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