Tips to make Golytly more tolerable

New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 2/14/2008 10:27 PM (GMT -7)   
Hey all...well I have a colonoscopy and endoscopy on Tuesday, and of course I was prescribed golytly for my prep. I haven't had this in 5 years because my GI's have since used other preps for my other 3 colonoscopies. However I do remember that it tastes horrific and made me want to vomit. Does anyone have any tips or advice to make this process less painful? I am already so nauseous as it is, and this will make it worse. Any advice would be glorious!!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 2/14/2008 10:41 PM (GMT -7)   
It does come in different flavors. Make sure the pharmacy that fills the script has a variety to choe from. Frankly, I don't care what flavor it is, it always ends up coming back up on me. Last time the GI had me do Phospho-soda and the ensuing electrolyte imbalance wiped me out. All preps are nasty IMHO! LOL
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/15/2008 1:50 AM (GMT -7)   
Show your doctor this abstract of this study from the journal "Alimentary Pharmacology & Therapeutics." Basically it says that the pills are better-tolerated than the liquid preps, and other studies have shown the pills are equally effective. This might be greek to laypeople but your doctor will appreciate the jargon.

Clinical trial: sodium phosphate tablets are preferred and better tolerated by patients compared to polyethylene glycol solution plus bisacodyl tablets for bowel preparation.

Lichtenstein GR, Grandhi N, Schmalz M, Lottes SR, Forbes WP, Walker K, Zhang B.
University of Pennsylvania, Gastroenterology Division, Philadelphia, PA 19104-4283, USA. grl@uphs.upenn.edu
BACKGROUND: Patient acceptance of bowel preparation can affect colon cancer screening compliance. Aim To compare patient acceptance, preference and tolerability of 32-sodium phosphate tablets vs. 2L polyethylene glycol solution plus 4 bisacodyl tablets for bowel preparation. METHODS: A prospective, randomized, investigator-blinded, multicentre trial was performed. Results were based on responses to a patient questionnaire. RESULTS: 411 patients (205 sodium phosphate; 206 polyethylene glycol plus bisacodyl) completed the study preparation and patient questionnaire prior to colonoscopy. More patients receiving sodium phosphate vs. polyethylene glycol plus bisacodyl found it easy to take (77% vs. 42%), reported it to be without taste (47% vs. 6%), found it easy to take with respect to volume of liquid prescribed (72% vs. 27%) and indicated they would take the same preparation again in the future (96% vs. 74%, P < 0.0001 for all). Fewer patients receiving sodium phosphate vs. polyethylene glycol plus bisacodyl had to take time off work or change ordinary activities to take the study preparation (18% vs. 52%, P < 0.0001). Nausea, vomiting, bloating and abdominal pain were reported less frequently with sodium phosphate (P < 0.0013). CONCLUSION: The 32-tablet sodium phosphate dosing regimen was easier to take and better tolerated, when compared to 2L polyethylene glycol plus bisacodyl tablets for bowel preparation.
Co-moderator - IBS Forum


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/15/2008 6:37 AM (GMT -7)   
The gastro has absolutely NO WAY of knowing what prep you used to clean out. PhosphoSoda or Magnesium Citrate (both of which I prefer to that Lytley crap that I absolutely refuse to use) can be harder on the kidneys - probably because the patient then fails to drink an adequate amount of fluids.

I'm hearing good things about Miralax (its over the counter) being more palatable to the taste, altho the volume of liquid needed remains the same. Most recommend mixing it w/Gatorade. Ask your pharamcist for the amount needed for a colonoscopy prep.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/15/2008 6:48 AM (GMT -7)   
I agree with ChronieToo. Before I became the patient from H$%l and demanded the pill prep. I did my own with clear liquids for several days and then laxatives until I was clear. I did this at least 5 times. Not one doctor knew. I can not even think about the Lytly's without gaging. There is no way I can get them down. I just about have panic attacks buying them. I did always buy the preps just in case my own version didn't do the job. Good Luck.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 2/15/2008 8:42 PM (GMT -7)   
drink it as fast as you possibly can and then rinse your mouth with water or something else to get rid of the after taste. be near the toilet though in case the gag reflex kicks in uncontrollably. i hate that stuff.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 2/16/2008 3:54 AM (GMT -7)   
I can't use the pills, so I get stuck with the liquid - but I will ONLY use MIRALAX. I don't remember if that's the brand name or the generic, but it is much more tolerable than that golytly crap. The miralax is good mixed with gatorade. It has the same consistency as gatorade - not that syrup-ey gag-o-rific texture like golytely. So, if you must do the liquid, I would ask your doc to switch your RX to miralax.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered. :-)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


gardenlady
Veteran Member


Date Joined May 2003
Total Posts : 3103
   Posted 2/16/2008 3:55 AM (GMT -7)   
I couldn't get OFF the toilet when I drank that stuff...that's about as near the toilet as you can get. I thought I was going to throw up a couple times, but managed to keep things in check. I drank it through a straw and kept the straw as far back in my mouth as I could to keep it off my tongue as much as possible.
"Let me light my lamp,"
Says the star,
"And never debate
If it will help to remove the darkness."
-- Indian poet, Rabindranath Tagore


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 2/16/2008 5:38 AM (GMT -7)   
I think I would try the Miralex.......
no there is no good way to do this and it is always hades IMHO.
Wishing you all the best and hoping you find a way not to unpleasant for you this time
Keep us posted if you try the miralex plz

LYN
  DX With Crohns,Pyoderma Gangrenosum, Anxiety/ Panic and Other Disorders
         Mod for Alzheimer's, Anxiety and Panic and Co Mod for Crohns
    www.healingwell.com Donate today to keep HW helping others
 
                     
 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 2/16/2008 10:12 AM (GMT -7)   
I have heard the Miralax works well too.....As for the Golytely, I just wanted to dump it down the kitchen sink and see how the garbage disposal liked it.............but I did get it down.  Nasty stuff. Just my 2 cents.
Kitt

 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 2/16/2008 10:51 AM (GMT -7)   
I've never had to use the liquid stuff before a colonoscopy...just the pills. I'm curious as to why someone wouldn't be able to take the pill prep over the liquid prep?
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/16/2008 12:45 PM (GMT -7)   
I've read some gastros say the pills leave a residue in the colon. I've never tried them so can't say for sure. They require the same unGodly amount of liquid in the same SHORT time period and I just can NOT do that much liquid that fast much less the sewer water taste of the Lytely products. Its upchuck city for me or so nauseous all night that I just will NOT do them. PERIOD!
 
Good luck w/your scopes. I hope you get the answers you are looking for!


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


crohnie1985
Regular Member


Date Joined Nov 2007
Total Posts : 140
   Posted 2/16/2008 5:32 PM (GMT -7)   

Hi,

I have had lots of colonoscopies over the years and because I have had so many parts of my digestive tract removed due to crohn's flares/strictures. I can't tolerate the large quantities they like you to consume. So what helps me is that if I know that I will be doing a prep I start days before the cleansing, I eat as little or no solids. So I end up having to drink less of the nasty coctail thay prescribe. I have even asks the Dr's if the colon was clean enough to get a good look and they said it was fine, hope this helps.


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 2/16/2008 6:43 PM (GMT -7)   
Ok yeah I think I am going to get the miralax since it is over the counter, but I can't remember how much I need to mix with the 64 ounces of gatorade. If anyone knows please post ASAP...I have to do prep monday!!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/17/2008 5:18 AM (GMT -7)   
Oh boy! THAT I can't tell you. I was just given the instructions for a "half" dose since this prep is only for a pill camera endoscopy for the small intestine and not the colon that needs to be "squeaky clean" for a colonoscopy. That doesn't necessarily mean that you would need a double dose tho so it is best to ask your pharmacist as he/she would most likely know the colonoscopy prep dosage. Good luck!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 2/17/2008 4:15 PM (GMT -7)   
Just another word of advice that may or may not be good lol. I would trust your own body. If you are going perfectly clear and you had good size bowel movements the days before the prep you are probably at the point that you are cleaned out. On one of my tests ( I have no idea which one)... I couldn't finish the drink and took it with me to the hospital. When I got there the nurse said if I was clear not to bother finishing it and my test went fine. Another upper GI one I was halfway through a drink when I got naseaus. She said she would see if I had enough in me and sure enough I did.

Finally in high school before crohns I had an ultra sound and was told to drink a very large amount of water. When I got there I felt like I was going to explode and pee my pants. When I was in tears from the cramps the nurse gave me permission to go release a little. I went and peed some but did not empty my bladder. When they did the ultrasound my bladder was beyond the fullness they had wanted. She completely understood why I was in tears.

So for now on I always look up WHY I have to drink something and when I feel I am at the necessary point, I call it quits. So far I haven't been wrong.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 


jdiane
Veteran Member


Date Joined Jan 2003
Total Posts : 1131
   Posted 2/18/2008 8:09 AM (GMT -7)   
Phospho Soda actually in the past has caused my colon to appear red and inflammed during colonoscopy. I do not nor have I ever had crohn's of the colon. Biopsies were taken to be on the safe side, and it was proven to be the prep that did this. So, I would say different things work for different people as people have different effects of each. I would love to try the pills next time. My GI prefers golytly as I call it. She definately knew that I chose to prep my own way because of the reaction to the phosphosoda........ oops! =o)
 
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/18/2008 2:02 PM (GMT -7)   
Crohnie8, thinking of you today as you prepare to start the prep. Do let us know how you are doing and if you did opt to do the Miralax and how "it" is "going". And be sure to let us know how the scope goes. Here is wishing for good news for you!!!! Good luck and God bless!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 2/18/2008 4:04 PM (GMT -7)   
Well I decided to do the Miralax/Dulcolax prep because I just hate golytly, and couldnt bring myself to do it. So I took the dulcolax at 1:00, and I start the Miralax at 4:00....I had diarriah even before I started any prep so I am sure that the process will be quite exciting. I have my scopes tommorow at 11:00am and I will update when I hear the news.
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


jennifer telesco
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/8/2008 1:05 PM (GMT -7)   

I just had a colo/endo the other day and did a lot of research on how to make the prep more tolerable.  I combined a lot of ideas and it worked out fine for me so I wanted to share.

I did the fleet phospho-soda, cut 1 1.5 oz bottle with 4 oz. of WHITE grape juice.   I kept the fleet and grape juice in the fridge for hours prior to drinking so it was cold. I also kept a glass of fresca next to the phospho/juice conconction. The sweetness of the juice counteracts the saltiness of the sodium phosphate IF YOU DRINK IT QUICKLY.  I held my nose and drank it down as fast as I could.  In between I would take a sip of the fresca.  Once I finished it I took a hard jolly rancher lemon candy and sucked on it until the flavor of sodium phosphate could no longer be tasted.

 

 


crashbabe2
Regular Member


Date Joined Aug 2003
Total Posts : 85
   Posted 6/8/2010 3:39 AM (GMT -7)   
Well, in case anyone reads this in the future, I would like to add a couple of cents...

I was on here looking up tips myself because I am currently prepping for my own lovely procedure. I think next time I'll definitely try the pills if I can find them... but, I wanted to say that I have a hard time with even the thought of doing the prep as I have now done them all. I agree the miralax is a lot better, but I have such a "gut" reaction to any prep because I've had so many c-scopes and so many gross experiences I do everything I can to make it go easier.

I think if you can tolerate a liquid diet for about 3 days, I would do that. I also stick toilet paper in my nose so that it diminishes the taste (I don't even like the taste of Gatorade). I also thought for those of us that vomit when taking this stuff, that it may help to train your stomach like competition eaters do before hand (plus I think it would help clean out your system). I would say about a week before the test try drinking as close to the same amount of water as you do for prep. I think the people that vomit (besides the gag reflex with just the thought of how gross the whole thing is) do not have the stomach capacity to deal with all that volume. Therefore, if you train your stomach to stretch out, it stands that you will have an easier time with the prep.

One other thing I thought of, but haven't tried, is using the miralax in a variety of drinks, perhaps even making jello with it. I think half of my problem is I get really disgusted with drinking the same thing for 3 hours. You can make 7 different things to drink with the Miralax. 2 caps for each 9 oz drink. As long as you drink them in the required time, I don't see why it would matter as long as they're not red and are still considered clear liquids.

Hope this will help somebody out, I just know there has to be a better way!!!

Best of Luck!
Laura

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8545
   Posted 6/8/2010 4:11 AM (GMT -7)   
I just drink my prep very, very slowly - 2.5 hours to sip down a litre of prep. Works just as well and spares the gag reflex at least, if not the taste buds.

I also agree with the ones who said be your own judge of when you are ready. I have left about half of the second litre before now without any problems. But last time I got so nervous about the prospect of a repeat colonoscopy I drank all two litres. It was rough.

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 6/8/2010 4:51 AM (GMT -7)   
The miralax and gatorade mine prescribed was not bad at all.  The light diet, then switch to liquid diet made things easy as well.  ON the plus side the gatorade helps keep you hydrated and electrolytes balanced while you go through this.  I felt pretty ok coming out the other side of it all.  Did the golytely years ago and hated every second of it.

Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 6/8/2010 5:15 AM (GMT -7)   
I drink it when it is at room temp. That is easier to swallow
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/8/2010 12:08 PM (GMT -7)   
Coat your lips and under your nose with mentholatum and then brush your teeth and use mouthwash as soon as you finish with the stuff - or even in between sessions of drinking. There's no reason why doctors should even be using that stuff any more with so many more options so I wouldn't be afraid at all to speak up and ask for a "plan B".
New Topic Post Reply Printable Version
26 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Saturday, December 03, 2016 3:00 PM (GMT -7)
There are a total of 2,732,235 posts in 301,003 threads.
View Active Threads


Who's Online
This forum has 151167 registered members. Please welcome our newest member, Hope2day.
326 Guest(s), 19 Registered Member(s) are currently online.  Details
imagardener2, Tagier, braddiefj, Lymepilot, Artist Mark, Albannach, summer16, RoYal DiRty, White Bird, ASAdvocate, Awake_, Dave123, snowboat, Ggrlsav, Malone26, HeyNoodles, trumpet123, JesperTrottier, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer