my two cents...
Whenever I have one or two symptoms of a flare, but I don't yet feel like I'm totally flaring = it's usually because my body is tactfully trying to tell me to change something about
my eating habits. For example, the last time I had nausea and D after eating, without any other symptoms - I stopped drinking coffee at my doc's suggestion, and the symptoms stopped immediately. I had tolerated coffee just fine for years previous - but for some reason my ticket to tasty coffee had expired. Even a single cup in the morning will screw me up for an entire day...but ONLY after meals. Weird, I know.
As far as scar tissue being the issue rather than inflammation, I think that is a reasonable theory. Unfortunately, I don't think there's any very good way to tell for sure one way or the other. The digestive enzymes that I take are supposed to help digest scar tissue. This both fascinates and horrifies me - as sometimes it seems like scar tissue might be the only thing holding my guts together! I have been on these enzymes for 6 weeks, and have noticed less cramping and more tolerable gas. Perhaps investigating enzymes would be an option for you.
As far as the width of your stools - when mine get skinny like that - that's when I know I'm overdue for an Infliximab treatment. I have been on it consistently since I started the treatments, but I completely understand your apprehension at getting a treatment if there has been a few years since your last one... I call those stools my "pencil poops" because they're never any wider... obnoxious!
I completely understand not wanting to go the major RX route without exhausting all other possibilities... but don't let yourself lose any more weight or put up with any other symptoms that creep so gradually you might not notice how bad you really are... That's probably the hardest lesson that I've learned over the last few years... sometimes the decline in your quality of life is so gradual that you don't even notice... then one day you realize that you're afraid to eat anywhere not in range of a restroom, what to most people is a ridiculous amount of cramping is normal to YOU, and so on... keep your treatment options
open, but also know when to call in "the big guns".
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Remicade only, every 16 weeks.
Digestive enzymes, and probiotics.
Doing pretty darn good, all things considered.
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."