Small Bowel Follow Through

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hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/17/2008 9:07 AM (GMT -7)   
I hate to keep posting & bugging, this is all so new for me & I am trying to decipher what is going on with my body. I know the GI said that I have an IBD & she wasn't sure which one yet. I keep thinking about it & can't get it out of my head & I am wondering if I could get some input from you all who have been there before. Since I did not have a small bowel biopsy when I had my EGD/colonoscopy done, or at the time, a small bowel follow through, she didn't know. I had the small bowel follow through the next day. It was horrible & don't want to do it again. I have felt worse ever since & I thought it wouldn't be that bad. I guess I am just sissying out. Anyway at the test, the technician said that the barium went through me very quickly & I figured that was a good thing & I could get out of there sooner. Then when the radiologist went to do the flouroscopy or what have you, there was a big blob of the barium in my lower right area. He said he couldn't get a good view so he wanted to wait to see if the barium would "move along". I went to the bathroom a couple of times, and I had another x-ray done, the technician said the barium was shown throughout the colon so she showed it to him, he said wait until the next one. So we did another one, she showed it to him, he came in & did the flouroscopy & he showed me the screen & the blob & said the small bowel looks decent, he can't tell one way or the other if it is ulcerative colitis or crohn's disease. I thought everything was fine & the test came out normal except for that area that kept the barium.

Then when I told my mother, she seemed concerned about the pool of barium. I would think if it was something like a fistula or something like that they would tell me & keep me there or have my doctor call me immediately. That was Thursday, and now it's Sunday, so I am sure everything is fine & I told her that, but she's all worried. I think she's worried for nothing & that this is a good sign that everything is fine.

Could someone clue me in to if this is something to be concerned about? Is this normal to have the barium pool up in an area? Thanks.

stkitt
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   Posted 2/17/2008 9:17 AM (GMT -7)   
hukleberrie
Good Morning.  I am not sure why no biopsies were done at the time of your scope if the physician suspect and IBD.  Endoscopy plus biopsy is the gold standard for diagnosing inflammatory bowel disease
 
 
Kitt, Moderator: Anxiety ~ Panic  ~ Crohn's
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hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/17/2008 9:50 AM (GMT -7)   
They did not think that I had IBD. They were looking for cancer, I am sure of it. With my family history, that's what they were looking for. I didn't see a GI for the EGD/colonoscopy, I saw a general surgeon & I wasn't having much bowel problems at the time except more frequent BMs & blood in the stool & mucus (that I never mentioned & they never asked about.) So I don't think they were worried about IBD. They did biopsies of my colon & stomach, but not of my small bowel. The GI I just saw said that the "crypt distortion" means I have an IBD (along with the weight loss & other symptoms), she just doesn't know which one.

Any ideas as to what this pool of barium during the small bowel follow through means?

hukleberrie
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Date Joined Jan 2008
Total Posts : 491
   Posted 2/18/2008 5:44 AM (GMT -7)   
Has anyone else ever had a puddle of barium while there still is some that goes throughout the bowel?

MMMNAVY
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Date Joined Jul 2006
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   Posted 2/18/2008 5:51 AM (GMT -7)   
yes, where there is a puddle there is narrowing just after it.
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We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
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hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/18/2008 6:28 AM (GMT -7)   
Does that mean a stricture?

angelang40
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Date Joined Sep 2007
Total Posts : 160
   Posted 2/18/2008 7:48 AM (GMT -7)   
Hi huckleberry
do you ever wonder what makes up these torture procedures i do quite often!i had the small bowel study where they put the tube down through your nose into your throat then you have to swallow the barium it was hell on earth i never want to go through that procedure again i was in the room for 2 hours now i read up on all my preocedures so i know what to expect before hand! sad
Theres nothing that shocks me anymore lol i sympthise with you whole heartedly us cronnies never have an easy ride do we! sad

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/18/2008 8:18 AM (GMT -7)   
Well, I don't even really know for sure yet if I have CD or UC. Waiting to hear back, just have the IBD dx. But yes, I read up on it before hand & knew kinda what I was getting into. Just didn't realize that it seemed to make my bowels a mess... I have some pain & itchy irritated feeling down there. I don't even want to go pee because I am afraid I will have to have a BM or will have the urge at least.... Ick. I don't like this one bit. And I am HOPING that a stricture is not what is making that pool...

CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 2/18/2008 1:39 PM (GMT -7)   
I'm taking a GUESS that the barium where it was pooled was having a difficult time passing thru the ileocecal valve and into the cecum. The most likely area for Crohn's to first strike is at the very end of the terminal ileum (TI) at or just before the ileocecal valve(ICV). When doing a colonoscopy it isn't all that unusual that they can't get thru the ICV to get a good look or biopsies in the TI. (By the way, the cecum is the first part of the colon and the appendix hangs off the bottom of the cecum whilst the ICV adjoins/enters the cecum on the back or inner side which is what makes the viewing via SBFT difficult in that area, especially if there is pooled barium there).

Even when Crohn's strikes the colon it is difficult in its early stages to discern it from colitis until such time as it either "skips" to another area or it enters more deeply into the layers of the colon. Colitis spreads evenly as it progresses and it only affects the first layer or so of the colon's lining. Crohn's tends to "skip" and leave healthy areas in between and "can" eventually burrow its way all the way thru the intestinal wall in severe or untreated cases (perforation).

Fortunately, early treatment is similar or the same for both Crohn's and for colitis.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/18/2008 3:20 PM (GMT -7)   
Thanks so much for your opinion. I appreciate the input because at this point, I really don't understand all this. The surgeon never said anything at all about the small bowel or even trying to get there. He just said mild colitis & left it at that.

Does CD always strike the colon? They have found ulcers & inflammation in my colon on the colonoscopy. The GI thought that if I had had the colonscopy/EGD done a couple months later, it would have pointed to one or the other (CD or UC). She thought we would start with the SBFT test & see if it doesn't shed light on which IBD I have. Obviously, I don't think that worked.

My osteo that manipulates my back & sij & rib issues felt that I probably had CD. I am just a little nervous about it & wish I knew which form of IBD I have. I really wish I didn't have either, but knowing I think is half the battle.

So I am assuming that it is normal to have this pooling of barium at the ICV?

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/19/2008 4:11 AM (GMT -7)   
I still haven't received the results yet & am concerned a little. I have to go to work today (it has been difficult to work lately & I have missed quite a bit of work). I am tired already & have only been up an hour. I hope the cramps end.

I thought the barium would show up as a big bright blob, but it was a dark area & then a bright area to the left... Is it normal for the barium to have a hard time getting through the ICV?

How do you deal with the belly pain & cramping? Is there something I can do to lessen that pain?

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/19/2008 6:02 PM (GMT -7)   
I wish I could feel a little less concerned.... Now I am worrying even more. My mom had a colonscopy today (everything came out good) & the GI who performed the procedure was my GI that I just saw last week. She told my mom that "I was a very sick girl." She said something about results or something to my mom (I have been waiting for those SBFT results). That's it. Ugh. The waiting is killing me. And I don't like the sound of "very sick girl". I don't want to be sick. I have been trying to ignore this for a while. Please give me a little reassurance that I am fine....

LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 2/19/2008 7:08 PM (GMT -7)   
Hi huckleberrie
I'm just passing along a big hug as you wait for your results. Waiting is the worst. I hope everything works out. Just cross your fingers that they don't say, "Why don't we repeat the test for kicks and giggles". Augh! SBFT's are the worst!

Cheers
lavender


Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 2/19/2008 8:56 PM (GMT -7)   
Hi Hukleberrie
After reading your post I feel like you and I are going through the exact same thing right now! I have had a whole bunch of tests lately and one day it is UC the next day it is CD. I just had another small bowel series yesterday morning and the tech said everything looked ok...for the most part...so what does that mean? Not as ominous as a barium blob but none the less comforting. In any event I drank the barium around 8:30 AM and from 10:15 until 3 in the afternoon I had massive D and it was all barium....GROSS!!! I felt so sick all day and like you I feel worse today than I have in weeks. Not sure why I had the reaction I had since I have done these before with no problems...perhaps I am having some type of flare up. I am having another colonoscopy this Friday...just had one in mid January...ugh and then next week I am doing the pill camera endoscopy. I am hoping at the end of this that I will be able to get a final diagnosis and get some medication to help. I really know what you are saying about missing lots of work and having trouble concentrating. This stuff can really consume you especially when you are waiting for results. Just stay strong and hang in there...we will get through this yeah

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/20/2008 4:13 AM (GMT -7)   
Veebo~ I am so glad you posted. It makes me feel better, not feeling so alone. I hate to mention to my family how crappy I feel because I don't want anyone to worry, but I am tired of feeling like this. My GI is wanting to do another colonoscopy (last one in October) on me, too, but I don't want to. The last one I did with an EGD at the SAME TIME to save $ (no insurance) & I don't ever want to go through that again, ever! I felt so bad all week afterwards. I am hoping she doesn't say I have to have one. Ugh.

I am also hopeful that we both hear about what the DX is & finally get some treatment. This Azulfidine is not working for me....

Thanks LavendarBlue for the support. Things have been a little scary for me lately.... I will take all the support I can get!

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1719
   Posted 2/20/2008 5:01 AM (GMT -7)   
Hey Huckleberrie, Just wanted to offer my support while you are waiting for some answers. Have you asked your gi about changing your meds, not all drugs work for everyone. Azulfadine is actually my fall back med, it worked 26 years ago and is my main med now. Has the gi suggested prednisone in the interim while you are waiting for definite dx? And don't be discouraged if you don't get a dx right away, some CDers have had a hard time getting the right dx. Just keep after the docs until you do.
Take care.
 


Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 2/20/2008 5:13 AM (GMT -7)   
Hukleberrie. My family gets upset too when I talk to them about my issues ( I also have Celiac disease, PCOS, and IR). Sometimes when I hang up with my mom she is all choked up about to cry. That makes me feel really bad. So now I tend to button up around them and just say everything will be fine. Thankfully I can spill my guts (ha ha kind of literally) to my husband and he seems to be able absorb it all. He is a great man so I am lucky to have him. Just know that you can always vent here. There are some great folks on here that will always help through it.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/20/2008 5:32 AM (GMT -7)   
lamb61: My GI actually said that they will either have to up my meds or change them altogether. (I am really not happy about that. I HATE taking pills & putting chemicals in my body. VERY bummed about that.) I did get some prednisone when I was in Urgent Care a few weeks ago with dehydration. They put some steroids in my IV, then I had script to take for a week, which the GI said was not enough. Basically, I don't care about the DX as much as just getting my body straightened out. I am tired of being tired. Literally.

Veebo: My brother passed away just before Xmas with pancreatic cancer, so my family is really freaked out, even though with CT scans & such they have been reassured that I DON'T have cancer... Especially with the 50 lb. weight loss. When I was in the ER with low potassium. dehydration & migraine, my mom & husband really freaked out. They were crying & very worried. I hated seeing their faces with all that pain & concern, so I am trying as hard as I can go gain some weight & not talk about how horrible I feel. I can't tell my husband how scared I am or how painful my belly is because I don't need him to worry any more than he already is. Once everything is under control & some time passes since the loss of my brother, then maybe I will be able to talk to them about it.

Thanks to you guys for listening & supporting me. I am sure this SBFT test will come out fine & that they just had a hard time seeing what they need to see. I am NOT doing it again, though.

How does everyone deal with the lower abd. pain & cramping? It is non-stop & hurts worse when I am sitting down, which is often as I am at the computer most of the day working.... I am hoping there is some way I can get rid of this pain....

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/23/2008 6:59 PM (GMT -7)   
And still nothing! Not a word! And it still hurts!

How long do you all usually have to wait to receive test results?
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