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broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 2/17/2008 8:44 PM (GMT -6)   
What would it take to get Turner's Syndrome listed as one of the diseases on HW?  The Turner's Syndrome Society charges $45.00 for membership on their site and I'm sure some parents don't have that kind of money but are in dire need of support and information.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 2/17/2008 9:37 PM (GMT -6)   
I think you should email peter directly about this, he's the admin of HW.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7116
   Posted 2/17/2008 10:22 PM (GMT -6)   
The subject of adding new forums to Healing Well comes up often. While the administrator/owner of Healing Well understands peoples' desires for additional forums, it is not possible at this time. There are several reasons that expansion is not currently possible. This site costs lots to keep up and running. Also, maintaining the site is done by the administrator on his own.

My suggestion is for those interested in having a place to meet is to find a forum that most closely fits the disease. Then start a thread titled with that specific disease name. Invite those that you know to come post. A couple of years ago a gal started a thread on the Ostomies Forum entitled "Total Colectomy." She suffers from Colonic Enteria. Others soon found her and today their Total Colectomy thread is on part 18. I hope that those who wish to discuss Turner's Syndrome can find a place to gather that doesn't charge money to do so.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 

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