I am taking 150 mg imuran a day. I have been on it for several months. At first I did seem to have nausea but it does not happen much. I have seen some improvement in my CD so I think it is well worth it. Make sure you never miss a blood test and take care of yourself.
I agree that sometimes the pamphlet with the meds can be scary. For me having CD symptoms with no meds to control it seems even scarier!
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also have Arthritis, and feel like I am falling apart sometimes...
Post Edited (CrohnieToo) : 2/18/2008 1:27:15 PM (GMT-7)
Wow, thanks everyone! I am much less scared to start the Imuran. I agree that it does sound scary to take any medicine from the warning labels (I am ironically allergic to the tylenol that was mentioned above ) but I usually feel better seeing statistics on how unlikely it is that a bad side effect will develop from any medicine I'm going to take. I was really freaked out that I had no stats to look at at all for Imuran, and although I am lucky enough to have 3 people at my job who also have either crohn's or ulcerative colitis to ask questions to whenever something happens to me, none of them have to take anything stronger than asacol to stay healthy, so I was like double scared.
My doctor surprisingly called today, thought they were closed for the holiday but they said my blood test finally came in and shows I am able to metabolize Imuran, so I'm supposed to start on that tomorrow. I'm glad there's probably going to be nothing that happens to me from taking it, and I really hope that it actually helps me get better soon, I've only had 4 weeks out of the last 4 months that my insides have been working properly, so I look forward to possibly having good luck with this medicine :D They even said since my allergies are all really bad that the Imuran might help me feel relief from those too by making my immune system chill out, so here's to hoping this stuff works! I'll post about my Imuran experience in about a week in case there are any other people new to Imuran wondering how well it works in the beginning. Thanks Lady G for posting that you feel better already from starting Imuran, I am so excited, I hope it works for me soon too!
Sorta off topic, but I hope my hair stays where it is, for the first time in years a guy actually likes me, despite all my allergies and my newly acquired crohn's problems that make most people run away in terror. If I can at least keep enough hair to look presentable and get my insides working well enough to be able to stay awake longer than 11 hours a day without prednisone, that would be like the awesomest thing ever