How well do your meds help?

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Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/19/2008 4:40 PM (GMT -7)   
Hi,
 
I've been on meds (imuran, pred, budesonide, etc.) for years (& had a resection too) and never achieved remission. Diarrhea and other reg. crohn's symptoms daily, etc. The only reason I don't have obstructions everyday now is because of my diet.
 
Do ppl with CD even achieve remission with meds?
 
If anyone here has been in remission for more than a month (especially a lasting remission), please tell me how you did it. Was it your meds and which ones? Did you eat different?
 
 

yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 2/19/2008 5:01 PM (GMT -7)   
I had inflammation end with drugs, but pain and all-around crummy feeling didn't end until I stopped eating gluten.
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 2/19/2008 5:18 PM (GMT -7)   
I went into remission for 4 years after being diagnosed.  I had flares a handful of times that would last a day or two during that time but for the most part, I was back to "normal". 
 
I took (and still take) Colazal.
 
Just recently I've been sick again so I'm out of my remission for now.
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 2/19/2008 7:11 PM (GMT -7)   
Hey yogaprof

Isn't that called Celiac's?

Cheers
lavender


GreekGirl78
Regular Member


Date Joined Jan 2008
Total Posts : 20
   Posted 2/29/2008 3:14 PM (GMT -7)   
I have been diagnosed for 2 yrs. I was on Asacol, then Colazal, and now on the list below. I feel great, FINALLY! It took a while. I went through a couple Colonoscopies and a couple endoscopies. Even a capsule endoscopy. My most recent doctor is amazing. I started seeing him in July of 2007 and am now in remission. I went in for my most recent colon and endoscop. in December and that's when he changed my meds and I can now eat much more variety of food. I have had just 1 one day flare up and that's probably because I went a little overboard on "testing" foods I haven't had in a while. I've been in remission officially now for 88 days. Good luck to you. There really is hope!
--GreekGirl78
 
Married 29 y/o : diagnosed at 27 y/o 
Pentasa 4 pills/1x a day
Entocort 2 pills/1x a day
Multivitamin 1x a day
Calcium/Magnesium 1x a day
Iron 1x a day
Vit. B12 1 x a day


map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 2/29/2008 3:19 PM (GMT -7)   
I have a related question, for those of you who have had success with medications keeping you in remission, how long did you have wait from your crohn's diagnosis until you found the combination of medications that work for you?

ana_e
Regular Member


Date Joined Feb 2007
Total Posts : 67
   Posted 2/29/2008 4:32 PM (GMT -7)   
Good Q. I think(of course without any proof) that the current sets of medications for
CD may be working only for handful of patients. From what I gather about other
forum members saying, the medications may be adding more woes to the set of
existing problems. My opinion of course is based on my gut-feeling. As reported
on some other threads that I posted/replied to, in our daughter's case(only 4 yrs old now),
we've moved away from all std medications and using LDN + Homeopathic medications
along with probiotics and Vit supplements. We had exactly same doubts/Qs that you've
raised. She is currently in remission for past 7 months and hopefully remain there
(touch wood)
===================================================

GreekGirl78
Regular Member


Date Joined Jan 2008
Total Posts : 20
   Posted 2/29/2008 5:11 PM (GMT -7)   
When I first got diagnosed my doctor put me on Asacol and I was also taking vitamins because obviously I wasn't getting all the nutrition I should have. I was getting headaches and all the side effects and my doctor switched me to Colazal after 3 1/2 months on Asacol. I was on Colazal for about 14 months and then was referred by a friend to a specialist in Stanford and HE is a blessing. I got married in July of 2007 and stopped taking all my meds the day after my wedding. I was watching what I ate and only taking vitamins. The week I spent in Hawaii only taking vitamins and enjoying myself was the best I had felt in years. The week I went back to work I was feeling awful again. I took my Colazal again for 1 week and wasn't feeling any better so I completely stopped taking it. Went in to see my new doctor in September of '07 and he ran a few blood tests and also scheduled me for a colonoscopy and capsule endoscopy for early Dec. '07. He had me on Pentasa and Entocort by mid-Dec. and I'm now in remission and it's been nearly 2 1/2 months. I feel great. I sometimes test my body and try something I used to eat pre-CD and I know I shouldn't but it's good while it goes down and then of course it runs right through me. That has only happened twice since then and I stopped testing myself. I've been feeling excellent and I'm sure it's all in the mix of meds I'm taking. My doctor plans to have me off Entocort by the end of March. Hope I can feel this great and not have to take it.
--GreekGirl78
 
Married 29 y/o : diagnosed at 27 y/o 
Pentasa 8 pills/4x a day
Entocort 1 pill/1x a day
Multivitamin 1x a day
Calcium/Magnesium 1x a day
Iron 1x a day
Vit. B12 1 x a day

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