Burning Mouth...Sinusitis

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GassyLassy
Regular Member


Date Joined Nov 2006
Total Posts : 85
   Posted 2/20/2008 1:25 PM (GMT -6)   
Hi Folks,
I just got back from the ENT doc. For the last year i've been having terrible burning mouth, tongue and throat my own doc thought maybe thrush... we tried Nystatin mouth washes but they didn't work, then she thought maybe Burning mouth syndrome. However the doc today says its Stomatitis which can be a common complaint with Remicade, I just wanted to let some of you know as i was going round the bend wondering what on earth it was, everything i ate stung or felt like shards of glass.  Also i have really bad Sinusitis which he says is also another Remicade after effect (i thought it was this awful cold weather in Minnesota). Anyone got any other after effects i might  have in the future?  Been on Remicade 2 yrs now.

hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/20/2008 1:54 PM (GMT -6)   
I have had sinusitis constantly & I can hear this fluid in my ear. This has been ongoing since May. I was told it might be related to my IBD, but conflicted about that. All I know is this started happening when all of my health troubles started. I am NOT on Remicade, though. Just Azulfidine. So I don't know if my info helps you at all or not, but thought I would share....

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 2/20/2008 2:08 PM (GMT -6)   
I have had constant sinus infections, stuffy nose and plugged ears since November. I'm having a sinus CT on Friday to see what is going on since repeated rounds of antibiotics aren't doing anything. But I'm not on Remicade either. I think its just a really bad year for cold bugs. I don't usually get colds even with the CD and all the immunosuppressants, but this one I can't shake.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


hukleberrie
Regular Member


Date Joined Jan 2008
Total Posts : 491
   Posted 2/20/2008 6:33 PM (GMT -6)   
I had a CT scan that showed sinusitis & fluid in my mastoid sinus & fluid in my inner ear. I had been telling them I can constantly hear fluid... The CT just confirmed what I already knew. And after another couple rounds of antibiotics, I still have the same problem.
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