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Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 2/20/2008 1:20 PM (GMT -7)   
Has anyone taken Coenzyme Q10 to help boost your immune system?
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 2/20/2008 1:53 PM (GMT -7)   
Hi I never heard of it.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007
 


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 2/20/2008 2:10 PM (GMT -7)   
It's in our multi vitamin.
EMom
Mother to 15 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 2/20/2008 2:41 PM (GMT -7)   
The last thing I want to do is boost my immune system-I'm taking two different immune suppresents to try to kill my immune system.
sj

LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 2/20/2008 3:36 PM (GMT -7)   
haha sjkly. i'm in the same boat. my mom is always like, "drink this, it's good for the immune system". i'm like uh, isn't that defeating the point?
lavender


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 2/20/2008 3:45 PM (GMT -7)   
With Crohn's you don't want to boost your immune system because that's the problem with our disease; our immune system is in hyperdrive attacking our intestines. I don't know if that goes for other auto-immune diseases, but you definitely don't want to give your body any more "fuel" to destroy your intestines. That's why so many of us are on immunosuppressants.

Pentasa 500mg/8x daily down to 6x 1/08; Entocort 3mg/3x daily down to 2x 1/08; Percocet/Ultram for pain; Protonix 40mg
Neurontin, 900mg 3x/day
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 2/20/2008 4:07 PM (GMT -7)   
I'm not sure that CoQ10 boosts the immune system, but I could be wrong. I started taking it recently because it's alleged to boost your concentration and energy level. It's an enzyme that your body produces naturally, but as you get older your body produces less of it. Debatable whether or not it does anything for Crohn's disease.

regards,
Robert
Crohn's since 1988
3 resections


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 2/20/2008 4:23 PM (GMT -7)   
Hummmm!!! Interesting comments. I've never thought about my immune system being in overdrive and it needing supressing. I always thought an auto-immune disease meant that your immune system didn't work as well and because of that you were more prone to infection and because of THAT you'd want to boost your immune system. I need to go back and do some more studying!
Diagnosed in October, 2003 at age 31.
36/F/SC
Currently taking Colazal, Nexium, One-A-Day multivitamin
Secondary conditions: mouth ulcers, joint pain, extreme fatigue


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 2/20/2008 5:02 PM (GMT -7)   
I thought Q10 was for your heart.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Currently on Humira, Imuran and Entorcort. Hope to dc Imuran and Entorcort within one month of starting Humira.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 2/20/2008 5:17 PM (GMT -7)   
Traditionally, researchers have thought that Crohn's was due to an overactive immune system. In the past two years new evidence shows that Crohn's could be due to a weak immune system. But most researchers seem to agree that Crohn's involves at least a dysfunctional immune system. Whatever the immune system is, under or over active, it simply isn't working the way it should.
 
There is no question that meds like Imuran can very effectively suppress the immune system, which does suppress the inflammation of the small bowel. But what about the rest of the body? What we are doing is suppressing the entire immune system, which we need to fight off viral and bacterial infections.
 
What if our immune systems are underactive? What if the theory that Crohn's is due to an underactive immune system is correct? What if the inflammation is chronic because the gut reacts weakly...it mounts an attack to something in the intestinal environment, but not a very effective one, so it never finishes the job...hence, continuous inflammation. Sagramostin (spelling?) clinical trials are now underway to test this theory.
 
The following link takes you to the results of a clinical trial suggesting Crohn's patients have weak immune systems. 
 
 
I guess the bottom line is maybe, "Is that probiotic, which is supposed to boost my immune system, a good idea?" I haven't found any evidence suggesting probiotics make Crohn's worse, some evidence suggesting they might be able to help, and plenty of evidence showing they offer the rest of the body (including non-Crohn's issues in the GI tract) great benefits.

Post Edited (njmom) : 2/20/2008 6:39:38 PM (GMT-7)


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/20/2008 9:45 PM (GMT -7)   
It's way too oversimplified to say Crohn's is the result of an over- or under-active immune system (the immune system itself is ridiculously complex); and my take on these enzymes that they sell at health stores for 23987 dollars is that they are usually kind of a crock. I wouldn't place your bets on this coenzyme Q, but that's just me.
Co-moderator - IBS Forum

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