Pill Endoscopy

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Gloriousm84
Regular Member


Date Joined Nov 2007
Total Posts : 114
   Posted 2/20/2008 9:43 PM (GMT -7)   
Alrighty so my GI called me today, and said that she thinks I have crohns in my small intestine pretty much where the endoscopy and colonoscopy cannot reach. So she said I need to have a upper GI to check for strictures, and if I am clear she is going to have me do the pill endoscopy. I have a few questions about this:
1. How long do you have to be hooked up to the crazy amount of cords
2. Is the pill hard to swallow...I can take down about 15 regular ones at a time
3. What is the preperation for this test?
4. Is it helpful or provide good pics that the other scopes cannot see
 
Any help would be awesome!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Remicade every 6 weeks, 6-mp, Nexium (GERD)
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines, GERD
Surgeries: Spleen, Gallbladder, Tonsils, Adenoids, foot of terminal Ileum, Appendix, Ileocecal valve, bit of colon


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/20/2008 9:52 PM (GMT -7)   
I've got answers:

1) To put it mildly, if you ever tried to walk into a courthouse or the Pentagon or any other sensitive building while wearing this device, you'd be locked up for life. It doesn't look pretty. But it is an amazing piece of technology. If I were you, I'd take the day off when you have it done. I did not take the day off, but I might has well have, with all the questions I had to answer from my coworkers.
2) Not hard to swallow. about the size of a vitamin.
3) I had to prep like you would for a regular colonoscopy, but since this thing is visualizing your small bowel and not your colon, it might be that your GI tells you simply to fast for 8-12 hours beforehand. Some GIs will make you do a full prep but that may not be necessary.
4) You can see amazing things with this cam because a regular EGD (upper scope) only goes as far as the duodenum, and a colonoscope only goes as far as the terminal ileum. Between the duodenum and terminal ileum there are TONS of intestines. It is a good idea to have it done if you have a tricky disease.
Co-moderator - IBS Forum


brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 2/20/2008 10:36 PM (GMT -7)   
Hey, I've got some answers as well.. but Sarita's are all on target. I thought I'd just share my experience to help.

(1) I believe it records for about 8 hours. So you are hooked up for a little bit over the 8 hours. And they tell you, like Sarita said, not to go to certain places - like the airport. I took the day off from school, which I think was a good idea because there is no way that thing doesn't get noticed.
(2) The pill isn't hard to swallow at all. It's huge though - like a horse pill. But they have some coating on it that makes it go down easier. Even so though, they stand and watch you do it.. I think partly to help out if needed. But it really isn't bad at all.
(3) I think the prep depends on your circumstances. For most people though they just can't eat or drink after midnight. But for me, they were concerned about a stricture so I did prep and the same kind of liquid type diet you have before colonoscopies, but for two days.
(4) I think it's helpful if they need to see something that you can't find from elsewhere. It definitely goes further than the other tools they have.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/21/2008 5:51 AM (GMT -7)   
I posted about the Camera Pill Endoscopy a couple of weeks ago. In my case having a known partial obstruction at my old resection site I insisted that we do the patency capsule first. If you can find that post the information I posted is quite detailed. There may also be a second post, if I remember correctly, started by someone else that I also posted some quite detailed information.

The patency capsule is a dissolvable pill the same size as the PCE w/a tiny rod in it that will show up on xray or on a special hand held scanner. IF you can't pass the patency pill it was dissolve w/in 3-4 days and if it doesn't pass they and you know you are not a candidate for the PCE.

My gastro is insisting on one day of a liquid diet and then 1/2 a scope prep dose of Miralax as a prep for the PCE itself but only a liquid diet the day before the patency capsule. NPO after 10PM and then 10 AM appt for the patency capsule swallow. I'll be doing the patency capsule on the 26th of this month. Then you have to wait at least 6 days according to my gastro to do the CPE if you pass the patency capsule so I'm scheduled for the CPE on 10 Mar. You have to be at the hospital/clinic, wherever you are scheduled for the CPE EARLY in the morning! Ugh! Then return 8 hours later to return the recording unit.

No smoking 3 days before and day of the CPE until the recording unit is returned as smoking can darken the intestinal lining.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/21/2008 6:52 AM (GMT -7)   
Crohnie8, I found one of the two threads I posted info at:

http://www.healingwell.com/community/default.aspx?f=17&m=1042916&g=1043695#m1043695
 
 


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 2/23/2008 5:46 AM (GMT -7)   
I just recently had this done.  8 hours hoooked up to receiver & wires.  Capsule seems big, but goes down very easily with the water they give you.  This is how we found out I likely have Crohn's disease..  Now my doc wants the Prometheus blood test done to be more exact with the diagnosis.  But without the capsule endoscopy to see how bad it is...Oh, by the way, after a few days the capsule passes, & you won't even notice more than likely...this test was actually the more fascinating one to me...
             
 
Diagnosed with UP Sept. 2007-2nd opinion & 2nd colonoscopy confirmed UP, & UC old pain & new pain, it's spreading...Dec. 2007
misDiagnosed with Degenerative Arthritis, 2006
2 4 asacol 3x daily for UC/UP. 
Canasa suppositories, also 3x  daily,
3tsp. Donnatol elixir every 6 hours, as needed
1 20mg tab aciphex daily
1-2 depakote 3x daily for bipolar disorder
1 tramidol hcl 50mg. every 6 hours as needed for pain, but usually the donnatol takes care of it...now.
 


wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 2/23/2008 5:47 AM (GMT -7)   
Oh prep is very much like the one for colonoscopy.....
             
 
Diagnosed with UP Sept. 2007-2nd opinion & 2nd colonoscopy confirmed UP, & UC old pain & new pain, it's spreading...Dec. 2007
misDiagnosed with Degenerative Arthritis, 2006
2 4 asacol 3x daily for UC/UP. 
Canasa suppositories, also 3x  daily,
3tsp. Donnatol elixir every 6 hours, as needed
1 20mg tab aciphex daily
1-2 depakote 3x daily for bipolar disorder
1 tramidol hcl 50mg. every 6 hours as needed for pain, but usually the donnatol takes care of it...now.
 


BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 2/23/2008 4:58 PM (GMT -7)   
I agree with what everyone has said. My prep ws just fasting. I was allowed to eat a light snack a few hours into the procedure. The worst part is having that thing on you. To me, it felt like I was carrying a baby b/c it is cumbersome. Hopefully, you live in a cold climate and can cover it under a big coat if you have to walk anywhere outdoors. I stayed in my apt. all day until the little light went out, which means you can unhook yourself. Oh, that's another thing.. those stickers really stick!!.
it is very helpful for your diagnosis, so it is worth it. You may want to make sure your health insurance covers it, as mine really didn't (had no idea then) and well now it looks like I may be getting a hefty bill.. bye bye tax return.

ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 2/24/2008 10:02 PM (GMT -7)   
BitBit said...
You may want to make sure your health insurance covers it, as mine really didn't (had no idea then) and well now it looks like I may be getting a hefty bill.. bye bye tax return.


That's a good point. Can I ask you how much it cost? I don't have health insurance, but this test may be worth it for me.
Crohn's since 1988
3 resections


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 2/24/2008 11:37 PM (GMT -7)   
Ozone and Bit, you might want to try contacting the company that developed this technology and see if maybe they'd be able to help you out financially. Also talk to your docs and their billing office beforehand to see what kind of discount they might be able to offer you. When I'm having trouble paying the medical bills, I have always been able to get some sort of discount and even have had charges removed completely on occasion (you have to get very good at playing nice-nice with the billing office, and writing pleading letters, and essentially swallowing your pride a lot - which, at this juncture in my life, I've gotten good at), and at the very least have been offered good payment plans.
Co-moderator - IBS Forum


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 2/25/2008 9:27 AM (GMT -7)   
Wagggh! I just talked to someone who gastro let her actually watch the video after her PCE! My gastro said no, but I haven't given up yet. I'll harp on it when I do the patency capsule tomorrow. This is the FIRST time I've ever been HUNGRY and had difficulties w/a liquid diet!!! Bummer! Never bothered me before. Outside of towards the end getting darned tired of all the sweets and not enough salty options. Goshes, but chips and french onion dip sound so goooooood right now! And a good baked ham sandwich .....
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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