embarrasing noises

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pippy32
Regular Member


Date Joined Feb 2008
Total Posts : 88
   Posted 2/22/2008 8:50 AM (GMT -7)   
Hi everyone,
 
I was hoping for some advice as im getting nowhere with my gp!! eyes I've had crohn's for 10 years and have been in remission for the last 5. I'm taking pentasa, actonel, calcium and vit b12 injections. My problem is that i get constant noises from my stomach and bowels. I've had this for as long as i've had crohn's but i don't understand why all the other terrible syptoms have gone but i'm left with this. I realise it doesn't sound like much of a problem but it affects my life hugely, i've had to go part time in work and am suffering anxiety and depression and struggle in most social situations. sad
 
My gp says it's IBS and that there's nothing i can really do about it. mad The worst noises seem to be caused by trapped wind. I'd really appreciate ANY advice. I've tried varying my diet and have cut out wheat which has helped slightly but i've hit a brick wall. Thankyou for reading!

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 2/22/2008 9:15 AM (GMT -7)   
Well just because you have a remission of active symptoms does not mean you still don't have some active disease processes underway inside. Are you being treated for Crohns by a GP? I frankly would not be comfortable with that -- a gastroenterologist is a specialist in all issues related to the GI tract, and you might consult one about possible medications that could reduce or even eliminate those bothersome noises.

pippy32
Regular Member


Date Joined Feb 2008
Total Posts : 88
   Posted 2/22/2008 11:26 AM (GMT -7)   

Thankyou for your reply. I do see a specialist, every 6 months. I told my old gastro about this a few of years ago and she was very dismissive, made me feel really stupid, i got a response of 'well yes of course you have noises, you have crohn's disease'. I've never spoken about it since and just thought it was part of the condition but it's really affecting my life now. I plucked up the courage to speak to my gp about it as he's very approachable but, as i said, i didn't really get anywhere with it.

Do you think something could be done about it? Im not getting pain, sickness or bowel movement problems (nothing major anyway although i never feel quite 'right') so i can't imagine they'd put me on any meds for it. Thanks again for the reply


Olenma
New Member


Date Joined Feb 2008
Total Posts : 1
   Posted 2/22/2008 12:14 PM (GMT -7)   
I am the mother of a Crohns' teenager with the same issue. However, the only thing I can say which I know is easier said than done, is to try not to focus to much on it. Lead your life as normal as you can.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 2/22/2008 1:10 PM (GMT -7)   
You could try yogurt.
 
In my daughter's case, you could hear the sounds across the room. Even before she was diagnosed with Crohn's, we both wondered why she had such loud abdominal rumbles.
 
Then, when prescribed Zithromax for a sinus infection, my daughter was told to eat yogurt to replenish the good bacteria which would be wiped out by the antibiotic.
 
An accidental benefit is that her rumbles died down to nearly nothing. Just from eating yogurt once a day.
 
Two years later, when diagnosed with Crohn's, she started on Entocort/SCD diet which put her into remission - and the sounds disappeared completely.
 
Of course she still eats yogurt once a day.
 
 

EmmyT
Regular Member


Date Joined Oct 2007
Total Posts : 75
   Posted 2/22/2008 1:27 PM (GMT -7)   
I was having those terrible noises along with distension and ended up having a partial bowel obstruction. The weird thing was that the pain and diarrhea didnt's start until about 3 mths before I needed surgery. No other symtoms! It was a shock. I would always have a colonoscopy/endoscopy if things don't seem right-just in case.

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 2/22/2008 2:25 PM (GMT -7)   

Hi there Pippy,

Well i had surgery about 9 yrs ago and although i felt a major improvement afterwards, i still had bouts of D and suffered bloating and distension. When i informed my GI of this and asked whether it could be the Crohn's coming back he very quickly brushed it off and said "you look fine" and that i was in remission. He said the symptoms were just IBS and it was perfectly normal. Basically he meant go away and stop wasting his time. Back then my knowledge of this disease was very minimal and i didn't question his comments. So i trusted him that i was in remission and should just get used to the "IBS" symptoms. Which i did for the last 9 yrs and in the last yr they've gotten worse and i bloat so bad i look 6 months pregnant, my tummy has started making crazy and embarrassing noises every time i eat and the D is gradually getting worse. So I requested from my GP that he refer me to a new GI as i had discovered this website and was given some very helpful advice from other members that this was most likely a stricture.

So i had a colonoscopy last wk and an SBFT today and wouldn't you know it, the area they resectioned is narrowing badly and now there's abnormalities in the large bowel too. It's obviously been getting worse over all those yrs (he didn't put me on any preventative medication either after my surgery) So i would definitely recommend that you get your GP to refer you to another GI, even if you have to travel a little further, it's SO worth it. I feel like going back to my old GI and punching his lights out for being so dismmissive and patronising. But i don't think that'd be a great idea nono   I might just make an appt with him and confront him about his 8 yrs of crap advice. Better to get it off my chest than to be feeling angry about it!!

So i personally feel that when your tummy starts making those noises, it's yelling out for some attention, literally! and there is most likely some narrowing somewhere. Try to get to the bottom of it asap. And although it's easier said than done - try to be assertive and don't take any nonsense. I am generally a quiet and shy person but i have lately become very outspoken when it comes to doctors and i refuse to be fobbed off with the usual rubbish, and believe me, they may not like it very much - but i have actually gained much more respect from doing so. It's like they suddenly take you seriously when you act like you mean business and don't just agree with everything they say.

Sorry about the long reply but I just think the sooner you find out the reason for this, the less problems you'll have to deal with. Hopefully i'm wrong and it's just a case of loud digestion. Best of luck anyway and be stern with those docs.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 2/22/2008 2:59 PM (GMT -7)   
Hi Pippy

I have the same noisy gut issues. I had a bowel resection exactly one year ago today (yes, i have anxiety today), and i noticed that even though i had less really severe cramping since we had gotten rid of my strictures, I had a overly noisy gut. I'd be sitting in the living room and my husband can hear it in the kitchen.

This noise went on for about 4 months. I was even working on my masters degree at the time and I would sit in these very small 6 person classes and my gut would starting howling and it was terribly embarassing. I totally understand how that seemingly small symptom can torture your life.

I actually ended up having a really bad flair that hospitalized me. My dr's kept saying it sounds like gas and fluids going through a narrowing. but no matter how hard they looked, they couldn't find anything. So they finally gave up and said that I just have a noisy gut (it's actually talking to me while I write!).

So, I guess what I'm saying is just staying incredibly in tune with your body right now. I could be a stricture. It might just be noisy. but you don't want to miss something. the yogurt suggestion is a good one. I keep telling myself that I need to try this because I heard it can really help.

can i ask if it ever hurts when it starting moving around? mostly mind doesn't but once in a while the cramp is incredibly painful. It's that kind of thing that keeps me worried.

Cheers
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


pippy32
Regular Member


Date Joined Feb 2008
Total Posts : 88
   Posted 2/23/2008 3:26 AM (GMT -7)   
Thankyou all so much for taking the time to reply to me. I'll definately speak to my gastro about it, i've had him for 2 years now and have never mentioned it, that probably sounds ridiculous but after the response i got last time it put me off talking about it. I have a feeling i'll be told it's just digestion but it's very difficult to live with.

I eat natural yoghurt twice a day and have also reduced the amount of carbs and sugars im eating. This has reduced the amount of bloating i get and the noises in the evening are a little less but no significant change.

Lavenderblue, i generally don't get any pain or cramping. It's hard to explain but i never feel right, i describe it as 'my stomach feels off', like it's irritated and struggling to digest, I'll eat something and it just goes crazy, it sounds like im about to have D but when i go it's solid (ish!). I've tried eliminating food groups then reintroducing them and nothing seems to work.

Lila, when you were getting the noises were they coming from a specific area? Mine are from everywhere: stomach, bowel, rectal area. If it was a narrowing would the noise come from just one area? Also, how are you being treated for it now?

LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 2/23/2008 12:57 PM (GMT -7)   
pippy-

I absolutely know what you mean when you say your "stomach feels off". I feel like that everyday, with a little added cramping usually, but not always. whenever I drink or eating anything it just starts freaking out and gurgling and throwing a tantrum like a two year old. and my noise comes from anywhere. your dr. may not even treat you for anything when you tell him/her. I know i let me dr. know every visit that my gut is very angry and she's more concerned with other symptoms i have than that. BUT i did have someone with UC tell me last week when i was in the hospital that they have the same problem and they take a really really low dose of amitryptaline (sp?). it's usually used for depression at higher doses. but they take 25mg a day and she said it helped tremendously with her noisy gut. I'm going to ask my dr. about it next time i go in.

Cheers
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 2/23/2008 1:58 PM (GMT -7)   

Hi Pippy,

To answer your question - no the noises were as you describe - from all areas! And the noises from the rectal area are the most emabarrassing (i work in a small office too) as they sound like something else :-) Oh the joys of this disease...And sometimes when i'm having the noises i can also feel what i can only describe as a ping pong ball trying to move through my intestines, i can feel exactly where it is as it's moving. I guess thats the food trying to get through the stricture.

As for treatment, in my 8 yrs since surgery i've never been put on any anti inflammatory medication. So now that it's been confirmed that i have a pretty bad stricture, my crap GI straight away said "another surgery is the only way to treat it". But he's officially DUMPED and i'm going to my new GI on March 5th and to discuss treatment options with him as he is keen to treat this asap. I have no idea what medication he might prescribe but i guess he'll suggest whatever is best for healing a stricture. If it doesn't work and if the stricture is caused by scar tissue then i may be facing another surgery. But i dare not think about that right now.

Although the noises i'm experiencing are extreme right now, i've always had noises of some sort or another over the last 8 yrs. So  i suspect that those noises and the bloating and distended feeling were the gradual narrowing taking place over the years. I just wish i had known back then what was going on. I am on a gluten free diet as i feel it helps a little, i try not to eat dairy and i have cut out sugar apart from fruit. Along with this i no longer eat processed food anymore as it's a killer for me, and simply because if you think about it, its just full of all things unnatural. Also i take probiotics which definitely help with the noises and D. Sometimes i give in and eat some bread or a couple of slices of pizza and i feel so mad with myself when i do but when i adhere to all of the above i generally feel alot better. Yet the bloating never ever goes away and that general uncomfortable feeling as though i'm full of gas, so i guess that's just because of the severe narrowing.

Hope my answers are of some use ....Lila


timmysang
Regular Member


Date Joined Sep 2007
Total Posts : 75
   Posted 2/23/2008 6:55 PM (GMT -7)   
Pippy,

You know I noticed that the it seems like the crohn's and anxiety go together. A lot of people on this board seem to suffer from both. I too have both crohn's and anxiety.

I had the same type of very loud noises from my gut. Very loud and very embarrassing. Also had distention of my intestines. What the doctors found was that I had several strictures in my small intestines. So from what I understand the strictures are caused by scar tissue that is a result of the crohn's when it is active and then goes into remission. This scar tissue restricts the normal flow of the digestive tract which causes the louder noises.

Anyway, I had a resection in Oct. 2007 and they removed about 8 inches of my small intestine. But the best part about it is that I can eat almost normally, although I do watch what I eat like nuts and anything with skins or popcorn. And the loud noises are gone. Once in awhile my gut grumbles but nothing like before.

I have read that the strictures can also be treated with medicines instead of surgery but I really don't know too much about this or have experience with it.

Good luck to you and I hope all goes well for you.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 2/23/2008 7:39 PM (GMT -7)   
Hi I just had a resection done I had very loud noises and the sound like water running threw as well as very distended abdomen. I was having bad pain 2 weeks before surgery my small intestine was very large from a stricture.THe noises were very loud and I had bad D at the end before surgery. They did an X-Ray and when I went to the hospital a CT as well as a colonscope. I really needed the surgery and now things are quite and I feel much better. I was afraid of bowel surgery but now that I have been threw it I am glad I had it .My BM's are good now and finally moving without problems hoping this will continue for me. If you are worried about it it certainly is worth checking into because I was not aware of how bad things were getting for me. Feel that the surgery came just in time for me. lol gail

pippy32
Regular Member


Date Joined Feb 2008
Total Posts : 88
   Posted 2/24/2008 3:07 AM (GMT -7)   
Lavenderblue and lila, i have exactly the same as you have described. Im definately going to talk to my consultant about it, it's really affecting my life. I thought that because i wasn't getting D or pain that all was well but this is clearly a sign that it isn't!! Lila, im on exactly the same diet as you, through trial and error and i really feel it when i 'cheat'.

I'd be very grateful if you could keep me updated as to your treatment on this thread.

Gail, i would do anything to get rid of these noises, surgery, anything!

Timmysang, did you have any other symptoms before the surgery or was it just the noises?

Sorry for so many questions, i really want to solve this problem!! Thanks again

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 2/24/2008 10:57 AM (GMT -7)   

Hi Pippy,

I can see why you would think it might not be a stricture when you have no pain or D. That's what i was thinking all along because when i had my 1st surgery i was literally doubled up in pain 24/7 and i had non stop D no matter what i ate. So i just assumed that i was still in remission and if there was anything wrong then i'd have all those symptoms again. I actually don't have much pain and the D is not really bad and i'm being told i might be facing my 2nd surgery. It's mostly the noises, bloating & discomfort etc. So don't underestimate any of your symptoms. But i will def keep you updated on the situation......Lila 


timmysang
Regular Member


Date Joined Sep 2007
Total Posts : 75
   Posted 2/24/2008 10:59 AM (GMT -7)   
Pippy,
I was diagnosed with crohn's about 11 years ago. I had been going along just fine for years. The crohn's was in remission during this time. I had been taking Pentasa on and off during this time. I though that everything was fine though. Several years ago I started noticing the noises and then the distentions in my abdomen. I had a feeling that this was related to the crohn's but I didn't do anything about it and just lived with it. No other systems that I can think of.

Then last March I ate some peanuts one night and because of the strictures I couldn't digest them normally. This was the first of three blockages that I had last year. The others blockages were caused by not being able to digest cucumbers and popcorn. The next night I would be up all night in the bathroom throwing up, because there was no where else for them to go, and my abdomen would be distended. I went to see my GI and he put me on antibiotics and prednisone all three times. The GI suspected that this was caused by a stricture. I had colonoscopy done and in Sept. of last year I had a Enteroclysis test done and that is when they found 3 strictures in my small intestine. I was actually able to see what was going on in my small intestines with the contrast that I had to take. I then had the resection surgery done in Oct. 2007.

Here is info on the test. It really wasn't as bad as it looks.

http://www.walgreens.com/library/contents.jsp?doctype=1&docid=003818
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