Possible Flare Coming...PLEASE HELP

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lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 2/22/2008 6:06 PM (GMT -7)   
I have been living with Crohn's Disease for the past two years. My doc first put me on Asacol and prednisone, but about 3-4 weeks after tapering off the steroids I flared. I went from Asacol and steroids to 6-MP and steroids (I had to come off the 6-MP b/c it was attacking my liver) to remicade and steroids. It has been about a month and a week since I tapered off the steroids and I am starting to have "questionable" signs of a relapse. My poo has some puss and a tiny bit of blood in it. ANY SUGGESTIONS? If Remicade doesn't work what am I supposed to do? Please help! I want to desperately stop this vicious cycle!

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 2/22/2008 6:48 PM (GMT -7)   
meds don't help me either, so now i try more natural things like the maker's diet, probiotics, camomile tea, and I still take my meds.

fuzzyw
Regular Member


Date Joined Feb 2008
Total Posts : 48
   Posted 2/22/2008 6:51 PM (GMT -7)   
 i urmachan...if you are sure that it's pus that's coming out, that's usually a sign of an abcess (Remicade is known for helping to heal these). I had numerous abcesses over the yrs.,; most could be seen externally & could be quite large. I would pop them open, like a pimple, & loads of pus & then blood would discharge. Many would form in the anal area & break open due to the pressure when using the toilet. I did have a serious internal rectal abcess...you'll know if you ever get one because it's excrutiating (this required hospitalization but I was able to avoid surgery)! Regardless, if you are forming abcesses then you need to see your doctor & will probably be placed on an antibiotic (pus = infection = antibiotic). The drug of choice is Flagyl but as I finally refused to take it (it made me sooo nauseas) I was continually placed on Ciprofloxacin. Regarding the Remicade, you should check out the topic 'Imuran vs. Remicade' (or something to that effect...we discussed all about Remicade & what other drugs people take w/ it). When I was on Remicade, I was also on 6-MP...I know that you said that you had to cease taking this drug but my question is...do you take Prednisone during the week that you're having your infusion? This seems to be the standard but you only mentioned tapering off of the drug. Also, some people need to stay on a continued low dose of Prednisone. I had stopped this drug but did need to take it during the infusion weeks (plus several other drugs). Lastly, Remicade can take awhile to fully work (depends on the individual) & can really help, especially w/ abcesses & fistula's but as with any drug, it's not a cure-all & not for everyone. Humira is another option. Nevertheless, your no. 1 priority is to see your doctor, ASAP! Hope you improve & please keep me posted. sad

Fuzzy:
25+ Crohn's Disease Sufferer; 2yr. Ostomate (ileostomy)
2yr. Remission for Conjunctival Malignant Melanoma
Drugs:
Ciprofloxacin as needed; Children's Vitamin/B-12 Supplement
Xanax as needed; Clonazepam 3x daily; Levothyroxin for Hypothyroidism
 
Several Eye medications used to help prevent further damage resulting from treatment for eye cancer
(former 6-MP/Remicade user - ceased due to cancer diagnosis)


fuzzyw
Regular Member


Date Joined Feb 2008
Total Posts : 48
   Posted 2/22/2008 7:04 PM (GMT -7)   
P.S. warm baths can help if you're having anal itching or are generally uncomfortable. I preferred (note: past tense as I've had an ileostomy for almost 2yrs.) using liquid baby soap as it's gentle. Soak for 30 mins. or so...this also helps to clean the area. Finally, because I was always dealing w/ terrible rectal/anal pain, I used baby wipes in place of toilet paper...so much less irritating if you're having alot of diarrhea (especially if you experience anal fissures as I did routinely...just make sure that you don't leave the area wet...pat dry w/ toilet paper, if necessary. This was one of the best things that I discovered on my own. Much relief!

Fuzzy:
25+ Crohn's Disease Sufferer; 2yr. Ostomate (ileostomy)
2yr. Remission for Conjunctival Malignant Melanoma
Drugs:
Ciprofloxacin as needed; Children's Vitamin/B-12 Supplement
Xanax as needed; Clonazepam 3x daily; Levothyroxin for Hypothyroidism
 
Several Eye medications used to help prevent further damage resulting from treatment for eye cancer
(former 6-MP/Remicade user - ceased due to cancer diagnosis)

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