Hi everyone...I haven't posted on here in quite some time, but am needing some advice from others who understand. I have been participating in a clinical trial, taking the drug that will be marketed as Cimzia, for about a year. It was helping much better than anything else had (lost response and started having allergic reactions to Remicade) until winter came. The arthritis has been killing me. I am miserable everyday. Still working, but miserable. Since the clinical trial limits what other drugs I can take, I am somewhat restricted on trying new things (doctors wanted to try sulfasalazine but can't on the trial...could help with the Crohn's and mess up their results). Basically, I'm just told to take as much of my current pain meds (Ultracet) and arthritis meds (Salsalate) as allowed. I've also tried getting a cortisone injection in each ankle (can't do larger joints due to the small amount of steroids allowed on the trial), but the one shot wore off after only a week (other ankle is still feeling better, but it's only been a week and a half). My dilemma is whether to suffer until the winter is over and hope that I get better again then (since I was doing great until winter came) or to discontinue the clinical trial and try Humira or something like Sulfasalazine. The issue is that if I get out of the trial, I cannot get back in and right now, it has helped more than anything else has. There is no way to know if anything else will help any more than this drug is, so I am hesitant to withdraw. Also, the drug is free through the trial and I get paid to do it, so that is better than paying for Humira. Does anyone else here have very bad arthritis and any experience with Humira, as far as the joint pain is concerned? I appreciate your input.
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope. Romans 5:3-4