Welcome to Healing Well, angela! I'm sorry to learn of all your medical problems. The fact that you developed erythema nodosom clearly points to some sort of auto immune disease. Your gut isssues certainly warrant a thorough investigation in light of the recent worsening of symptoms. Small bowel Crohn's occurs in about
80% of people that have it. about
a third of the patients with small bowel disease have it just in the terminal ileum. The terminal ileum can usually be visualized during a colonoscopy. The other 20+ feet of the small bowel cannot be seen during colonoscopy so the disase cannot be seen with the scope. The small bowel follow through and the capsule endoscopy are two of the tests often used to look for small bowel disease.
The Prometheus 7 Serolgy is said to be 96% accurate. We have had people that have had positive tests with very few symptoms. We have had people with a positive result where the Crohn's has not been found using the typical exams. Whetther these are false positive results or the person is in a phase of remission is impossible to tell.
When your PCP gets those results and sends you off to the GI, insist they do tests to explore your small bowel. Let us know how you are doing ok?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?